The Great Daisy Bake www.daisyfund.org

www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Complete Planning Guide
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Contents
A Letter from Daisy & Rati’s Parents
3
Donation Instructions
19
10 Reasons to Help
4
Donation Form
20
Planning Guide
5
Evaluation Form
21
Simple Planning Guide
6
Resources
23
Planning Tips - First Steps
8
Introduction to Templates
24
Planning Tips - Develop Your Plan
9
Business Donation Request
25
Planning Tips - Boost Fundraising
10
Personal Donation Request
26
Planning Tips - Action Plan
11
Thank You Letter
27
Online Fundraising Page
12
News Release
28
Tell Your Customers
13
Photo Notification
30
Registration and Donation
14
Editor’s Notes - Rb
31
Awareness T-Shirts
15
Editor’s Notes – Daisy Fund
33
Meet Grace – Featured on our T-Shirt
16
Advertising Poster
35
Registration & T-shirt Form
17
Image Resources
36
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
A Message From Daisy and Rati’s Families.
Dear Friend,
Thank you very much for your interest in hosting a Daisy Bake to support Daisy’s
Eye Cancer Fund, and children with eye cancer around the world.
By hosting this simple fundraiser, you make a vital contribution to the national and
global fight against childhood eye cancer, enabling us to continually advance life and
sight saving care for all children and their families. The simplicity of our girls’ favorite
pass-time - baking and eating cookies and cakes – has the power to help enhance
the lives of children with eye cancer around the world.
This pack contains a step-by-step guide to planning and running a successful and
personally rewarding Daisy Bake. These are only suggestions. Please feel free to
plan your event to suit your abilities, time, location, resources and related events.
Daisy lost both eyes to cancer before she was five years old, and Rati lost her life.
Our girls made us see that care needs to be dramatically improved for all children
with eye cancer around the world. Daisy’s courage, inspiration and wish to share
hope helped Rati leave a legacy that has already saved many precious young lives.
Daisy’s Eye Cancer Fund creates light from the darkness cancer brought to our lives.
Our girls inspire us daily on our journey to build high quality care that protects life
and sight for every child. With your help, we can make our girls’ dream a reality.
This is crunch time for children with eye cancer, and we are delighted you wish to
join us in creating a brighter future for them. Every fundraising and awareness
raising event you host for Daisy’s Eye Cancer Fund brings us closer to ending
preventable death and blindness from childhood eye cancer.
Your enthusiasm will make your Daisy Bake a successful and enjoyable experience.
If you have any questions or need some extra guidance in planning your event,
please feel free to contact our fundraising team – details at the bottom of this letter.
We wish you the very best, and look forward to hearing about your event.
Daisy and Rati’s mom and dad.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
10 Reasons Children with Eye Cancer
Need Your Help Today
1. 9,000 children worldwide develop eye cancer every year.
2. 7,000 of these children die due to late diagnosis, poor access to
specialist care and family support, and flawed treatment.
3. When the cancer is contained completely within the eye and treated
immediately with expert care, cure is almost guaranteed.
4. 90% of children who survive have moderate, severe or complete loss
of vision that is irreversible.
5. 95% of affected children develop cancer before their third birthday.
6. 90% of children are diagnosed because a parent sees a white glow
in the affected eye - the most common early sign.
7. Early diagnosis is a child’s best chance of life and sight saving cure,
but is often delayed due to lack of awareness among parents and
health workers about the significance of “white pupil” In a child’s eye.
8. Childhood eye cancer cannot currently be prevented.
9. Thousands of precious young children will be spared great suffering,
and their sight may be saved, by increasing awareness, access to
existing therapies and compassionate family support.
10. Major collaborative global research is needed to carefully test current
and new treatments to find the best life and sight saving cures with
the least side effects.
You can help us bring the best life saving, sight saving care
to children across the country and around the world
by simply hosting a Great Daisy Bake!
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Planning Guide
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Simple Daisy Bake Planning Guide
Curable eye cancer kills 7,000 children each year. 90% of children who survive
have moderate or severe loss of sight. By hosting a Daisy Bake, you help us
create a brighter future for all children fighting this devastating cancer.
Decide Where and When to Hold Your Daisy Bake
Choose a location with potential for a lot of visitors. Suggested locations are:
•
The reception or cafeteria of your school, college or office building
•
The entrance or parking lot of a local supermarket or shopping center
•
A community park, farmer’s market or town fair
•
Your driveway or the end of your street.
Be sure to gain the appropriate permission to hold your event there.
Decide what hours of the day will best suit your chosen location. Choose a time with
a lot of foot traffic, but not when people will be in too much of a hurry to stop.
Register Your Daisy Bake at www.daisyfund.org/daisybake.
Be among the first 25 people to register your Daisy Bake for September 2012,
and you will receive a free “white pupil” awareness banner for your event.
Recruit Volunteers
List all the tasks you need to complete, and how many volunteers you need. Create
a team of friends and family to help plan and host your Daisy Bake. We encourage
children to take part in hosting a Daisy Bake – they can help with preparations,
inviting visitors, hosting on the day and thanking people after the event.
Be Creative to Boost Support
Give your event an inspiring name. Choose a theme or hold it in celebration or
memory of someone. Plan a motivational display and offer additional attractions.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
2
Identify the Materials and Product You Will Need
•
Product (cakes, cookies, brownies,
muffins, pastries, pies, flans etc).
•
Tablecloth and stall decorations.
•
Advertising posters and flyers.
•
Plates on which to display bakes.
•
•
Napkins and bags for customers.
“White pupil” awareness materials
to display at your Daisy Bake.
•
Table(s) and chairs for your stall.
•
Donation container.
You can make your own awareness poster, or use the printable poster in this pack.
Your local community will be your best resource to obtain materials and products for
your Daisy Bake. By explaining to local businesses about your event and why you
are fundraising, you have the potential to secure donations for product and many of
the supplies you need for your Daisy Bake.
Promote Your Daisy Bake
Use email and social media to send out invitations and reminders.
Contact local TV, radio and print media. Your personal motivations and story will be
a powerful hook for reporters. Edit and use the Media Release in this pack.
Advertise throughout your community. Place posters and flyers in community halls,
sports and social clubs, schools, colleges, businesses, libraries, places of worship –
anywhere you think people will see and read about your Daisy Bake.
On the Day
•
Assign volunteer responsibilities and ensure servers know the payment options.
•
Begin setting up at least half an hour before the advertised start time.
•
Have fun, and take photos to remember your Great Daisy Bake.
•
Leave your event site safe, clean and tidy.
We encourage you to not set prices for your bakes. Inviting donations of any amount
will encourage generosity, and usually eliminate the need to provide change.
Follow Up
•
Count the money, convert cash to a check or money order.
•
Send in the money with your completed Donations Form and Evaluation Form.
•
Thank your volunteers, donors and sponsors.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Planning Tips: First Steps
Date, Location and Time
Date: Some great dates to host an event are:
•
September - Childhood Cancer Month
•
World Retinoblastoma Week (runs 7 days, beginning second Sunday in May)
•
Christmas (the busiest time of year for taking kids photos in dim light)
Location: location will have a major impact on your success, so choose it carefully!
A location with heavy foot traffic will bring you more customers – so more donations.
Some good locations for a Great Daisy Bake are:
•
The reception or cafeteria of your school, college or workplace.
•
The entrance or parking lot of a local supermarket or shopping center.
•
A community park, farmer’s market, craft fair or town fair.
•
Your driveway or the end of your street.
Time: Choose a time that will have a lot of foot traffic, but not when people will be in
too much of a hurry to stop.
Bad Weather Plans: If you are planning an open air event, consider whether to plan
a rain date or an alternative sheltered venue.
Register Your Daisy Bake
Register your event at www.daisyfund.org/daisybake. Once you have registered, we
can help you plan your event so you can reach and exceed your goal.
Permissions and Insurance
Please obtain permission from the appropriate person to host the event. For private
locations such as a supermarket, ask the business owner or manager. For public
locations such as a park, contact the agency responsible for managing the location.
You may be asked to provide a Public Liability Insurance (PLI) certificate. Please
contact us at least two weeks before your event so we can provide the document.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Planning Tips: Develop Your Plan
Set a Fundraising Goal
Decide how much money you would like to raise. Then plan how to reach your goal.
For example, through selling bakes, asking for donations, sponsorship and a raffle.
Identify What Supplies You Need
Estimate how much product you will need during your event. Multiply the number of
hours your event will last by sixty (the number of minutes in one hour). Consider
how many bakes you are likely to serve in one minute. Here is an example:
Daisy’s plans to host her event from 12pm to 2pm. Two hours multiplied by 60
minutes totals 120 minutes. She thinks she will serve one bake per minute, so she
plans to provide 120 bakes on her stall.
Make a list of all the supplies you need: e.g. product, plates, napkins, bags, table,
chairs, decorations, donation container, awareness materials, raffle prizes. Plan how
you will buy or seek donation of these supplies and who is responsible for them.
Recruit Volunteers
Volunteers can help in many ways and at every stage, from planning the Daisy Bake
and securing donations to running the stall and follow up. List all the tasks you need
to complete, and how many volunteers you need to help.
Encourage friends, family, work colleagues or fellow club members to get involved.
Carefully match their interests, skills and availability with the tasks on your list.
We encourage children to take part in hosting a Daisy Bake. Children can help with
baking, making decorations, inviting visitors, setting up, serving, keeping the area
tidy, handing out fliers, telling people about Daisy’s Eye Cancer Fund and why their
donation is important, thanking people, and clearing away.
If you are planning an event of more than an few hours, you may need volunteers to
work in shifts, so make sure you have enough to help throughout the day.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Planning Tips: Boost Fundraising Potential
Inspire Your Customers
Host your Daisy Bake in celebration or memory of someone you know who has had
cancer. Share your story, create a photographic display, and hand out awareness
cards. Offer a guest book for people to share their thoughts. Include a meaningful
activity such as a balloon or butterfly release.
Decorate Your Stall
Attract customers with a bright tablecloth, balloons, posters and other eye catching
decorations. People will want to come over to find out what is on offer.
Theme Your Event
Choose an attractive theme such as daisies, Christmas, gold (in September) or red
and white (during World Rb Week). Decorate and offer bakes reflecting that theme.
Make Donating Easy
Provide several support options in addition to your bakes, such as a raffle, wishing
well, face painting or silent auction. Tell people they can donate by check, payable
to Daisy’s Eye Cancer Fund. We will send them a receipt if they provide their
contact details. Display a “Checks Payable To” sign prominently on your stall.
Involve Absent Friends
Create an online fundraising page and Invite friends and family to donate even if they
can’t join you on the day of your event.
Employer Support
Your employer can multiply your gift if they have a Matching Gift or Volunteer
Recognition Program. Ask your Human Resources department about these
schemes. They will give you a form to complete and send to us with your donations.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Planning Tips: Action Plan
Request Donations
If you plan your event at least a month or two in advance, you will have a better
chance of securing donations for product (or ingredients) and other supplies, as well
as sponsorship and raffle prize donations. Edit the template in this pack to prepare a
compelling request letter.
Offer the company something in return for their support – such as advertising space
at your stall and a mention in your media release.
Use your own contacts and those of friends and family to approach local businesses
for support. Don’t be afraid to ask – your passion to help children with cancer will
shine through and even if the business cannot help, you will have educated them
about retinoblastoma and the importance of white eye in children’s photographs.
Promote your Daisy Bake
Create your own advertising poster, or use the poster in this pack. Place them in
high traffic areas such as schools, community halls, churches and businesses.
Contact local media such as radio, newspapers, magazines and television stations.
We encourage you to use the template media release in this pack. You can also
download our media toolkit, which includes a guide to talking with the media.
Use social media like Facebook and Twitter. Set up a Facebook event page and
invite friends to sign up. Then send a reminder message as the event approaches.
Plan For Event Day
List the tasks to be done and who is responsible for each. Ensure each volunteer
knows what they are expected to do, where and when. Give each volunteer a simple
task sheet and include your cell phone number in case of emergency.
We encourage you to not set prices for your bakes. Inviting donations of any amount
will encourage generosity, and usually eliminate the need to provide change. Also,
people who cannot afford to make a donation will learn about retinoblastoma.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Online Fundraising Page
Friends and family can support you by donating online to your Daisy Bake.
Anyone can set up a Fundraising Page at Razoo. It’s simple, free, and takes less
than 10 minutes. Donations are transferred automatically to Daisy’s Eye Cancer
Fund in England, so you don't have to collect or process any cash or cheques.
Give your page an inspiring title, add a photo and set a fundraising target. Tell your
visitors what the event means to you and why you’re asking for their support. Then
email the page address to everyone you know and invite them to donate.
Your friends can leave a message with their donation. Their details will be sent
directly to DECF, and they will automatically receive an e-receipt and thank you note.
•
Donations can be made by credit or debit card from anywhere in the world.
•
A transaction fee of 4.9% is charged to the charity.
•
A small credit card processing fee is applied.
•
Overseas banks usually charge a processing fee of approximately 1.5%,
which will not be passed to Daisy’s Eye Cancer Fund.
Please Note: A Fundraising Page for your Daisy Bake benefiting Daisy Fund USA
can only be set up through Razoo. US non-residents may set up a Page, but
donations from donors who are not US tax payers are not eligible for a tax receipt.
International supporters wishing to fundraise for Daisy Fund International may set up
a fundraising page at Everyday Hero (see below).
To set up your Daisy Bake Fundraising Page now:
•
Set up a Razoo fundraising page at www.daisyfund.org/ushero
•
Follow the step-by-step guide to building your fundraising page.
•
Tell your friends about DECF and invite them to get involved.
•
Fundraisers outside the USA may set up an Everyday Hero fundraising page
at www.daisyfund.org/ukhero
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Tell Your Customers About…
Childhood Eye Cancer
Tell your customers that a white glow in a child’s eye can be a sign of eye cancer.
Show them your awareness poster, and encourage them to spread the word.
Explain why you chose to host a Daisy Bake, and share your personal story.
Our Vision and Mission
Our Vision is “Life and sight for every child”. We aim to achieve this by:
•
Educating the public and primary health workers about retinoblastoma to achieve
early referral, diagnosis and specialist care;
•
Empowering the medical community to deliver sustainable high quality evidencebased care that gives each child the best possible opportunities;
•
Enabling family support programs that reduce practical, emotional, financial and
social burdens, and improve access to essential care;
How We Use Donated Funds
We do not currently employ any staff. 95% of donated funds go directly to activities
benefiting children with cancer. Donations fund specialist family support programs;
build sustainable, affordable care for children in developing countries, and advance
evidence based care by facilitating collaborative work among medical professionals
across the country and around the world.
How To Get Involved
Ask your customers to get involved by holding a Daisy Bake of their own, and tell
them how rewarding and fun your hosting experience has been.
Encourage them to visit www.daisyfund.org to find out more about retinoblastoma
and how their support will make a vital difference.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Registration
and
Returns
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
T: 1-314-669-1104
E: [email protected]
U.S.A.
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Order Daisy Fund
Awareness T-shirts
Proudly wear this Tee during your fundraiser. Easily identify your team,
and together send a strong educational message to your community!
Standard Tee: Simple awareness messages on the front and back.
Personalised Tee: Simple awareness message on the back, personal
photo and 30 characters personal text on the front.
Adult Sizes: Small, Medium, Large, XL, XXL,
Child Sizes: YS (5-6), YM (7-8), YL (9-10) and YXL (11-12).
Price: $15 standard T or $20 personalised T.
Payment: You can pay via paypal to [email protected], or by check.
Shipping: Standard shipping is free. Please allow 10-14 days for
delivery. If you require rush delivery, please email your requirements to
[email protected] and we will let you know the cost.
September Events: order by August 10th to ensure delivery on time!
Order your Tees today!
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Grace’s Story
Told by her mother, Paula.
Grace was almost 5 months old when we first
noticed a white glow in her left eye in photos.
We immediately took her to an optometrist and
she was diagnosed a few days later with
cancer in both eyes.
Doctors found four tumors in Grace’s left eye
with no central vision, and three in her right.
She began chemotherapy at Royal Children’s
Hospital in Melbourne, Australia, where we
lived at the time.
For the next six months, Grace received three
drugs (Vincristine, Etoposide and Carboplatin)
every month. Treatment finished in late August
2004 and halted growth of the tumors in her left
eye. Unfortunately, tumors in her right eye
continued to grow, despite additional cryotherapy (freezing treatment).
Grace underwent four weeks of radiotherapy, ending just before Christmas 2004.
She was 13 months old. Her “ball pool” photo was taken during this time.
Radiotherapy was very successful, completely destroying the cancer in Grace’s right
eye. However, in August 2005, several new tumors appeared in her left eye. She
received cryotherapy every few weeks for the next five months. Eventually, due to
the tumors and treatment, her retina detached and bleeding in the eye made careful
examination of her eye impossible. On February 6, 2006, we lost the battle to save
her left eye and it was enucleated (surgically removed).
Grace has been cancer free since the surgery.
As a parent, it is difficult to describe how one feels when told your baby has cancer
in her eyes, and that one eye may have to be removed less than a week later. Our
world was completely turned upside down….there was something wrong with our
baby, our sunshine, our pride and joy. I just wanted to run away with her and protect
her and pretend everything was just fine.
All I could do was keep telling myself I still have my Grace, her condition is utterly
treatable and curable and she’s going to be ok…..there is still so much hope. Grace
is cancer free now, and whatever lies ahead, she will always be a completely normal,
happy, healthy, delightful girl who lights up our lives and the lives of all she meets.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Daisy Bake Registration Form
Thank you for choosing to fundraise with Daisy’s Eye Cancer Fund. Please provide
all the details below so we can give you the best support in your fundraising. You
can also register online at www.daisyfund.org/daisybake.
Section A: About You (main fundraising contact)
First Name:
Last Name:
Email:
Telephone:
Skype:
Country:
Address:
Town/City:
County:
Post Code:
Section B: About Your Fundraising Event
Event Name:
Event Date:
Event Time:
Please indicate where your Daisy Bake will be held:
School
College
Place of Worship
Club
Society
Driveway / street
Business
Other
Venue Name:
Address:
Town/City:
County:
Post Code:
Fundraising Goal (how much do you hope to raise?):
Please provide a brief description of your planned event:
What inspired you to host a fundraising event for Daisy’s Eye Cancer Fund?:
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
2
Section C: T Shirt Orders (please refer to the T-shirts Ad for more info)
Please indicate the number of T-shirts you require, and personalised text.
Standard (S) T-shirt
The standard T features the Daisy Fund
logo on the front left chest, and awareness message with photo on the back.
Personalised (P) T-shirt
Text (30 characters max, including
spaces):
yS
yM
yL
yS
yM
yL
yXL
S
M
yXL
S
M
L
XL
XXL
L
XL
XXL
Total # of Standard T-shirts:
$15 per S T-shirt
Grand Total $:
Sub Total:
Check Enclosed
Total # of Personalised T-shirts:
$20 per P T-shirt
Sub Total
Via PayPal to [email protected]
For personalised Tees, email your text (30 characters max) and one high resolution
photo to [email protected], including your full name in the file name.
All T-shirts will be mailed to the address provided in Section A.
Section E: Fundraiser Declaration and Signature
Signature:
Date:
Please return this completed form with your payment for T-shirts to the
address below, or email [email protected]
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Sending In The Money You Have Raised
Congratulations on hosting your successful Daisy Bake event! We deeply
appreciate your enthusiasm, time, energy and commitment – you are helping us
save the lives and sight of babies and children fighting eye cancer.
Please complete the Fundraising Donations Return form and send it to us with all the
funds you have raised, within fourteen days of your event.
If you have any questions about paying in the money, please contact Abby at
[email protected]
Preparing the money
1. Count up your donations immediately after the event, and make a note of the
total. Count in the presence of two volunteer witnesses.
2. Please settle any bills (e.g. venue hire) before sending in money you have raised.
3. Keep checks together in a single envelope.
4. Please convert all cash donations into a personal check, cashiers check or
money order, made payable to Daisy’s Eye Cancer Fund.
5. Please return the completed Fundraising Donations Return Form, together with
the total funds raised, to the address indicated at the bottom of the form.
6. PLEASE DO NOT SEND CASH!
Receipts and saying thank you
We will send a receipt and thank you note to everyone who donates online or by
check, as long as we have their contact information. Please consider sending a
personal thank you as this will be appreciated by your donors – please feel free to
use the template thank you letter in this pack.
Thank You Very Much Four Your Support!
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Fundraising Donations Return Form
Section A: Fundraiser’s Personal Details
First Name:
Last Name:
Email:
Telephone:
Skype:
Fax:
Address:
Town/City:
County:
Post Code:
Section B: Daisy Bake Event Details
Event Name:
Event ID:
Event Date:
Location:
Expenses:
Total Raised: $
Enclosed:
$
Section C: Recognition
… I would like Daisy’s Eye Cancer Fund to send a Certificate of Thanks to the
following child, whose participation made this event such as success.
… I would like Daisy’s Eye Cancer Fund to inform the following family of this Daisy
Bake donation, in tribute to their child.
First Name:
Last Name:
Child’s Name:
In
Thanks
Honour
Memory
Address:
Town/City:
County:
Post Code:
Further Information:
Section D: Fundraiser Declaration and Signature
… I enclose a check for $______, which is all funds raised after expenses.
Signature:
Date:
Please return this completed form with the total funds raised to the address below.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Daisy Bake Evaluation Form
We welcome your feedback and comments about your experience hosting a Daisy
Bake. Please complete this evaluation form so we can continue to help others host a
Great Daisy Bake. Please send the evaluation form with your donations. Thank you!
If you took pictures of your event, please send us a digital photo with a brief caption.
We would love to share your pictures with others who are hosting, or thinking of
hosting, a Great Daisy Bake event. Please send photos to [email protected]
For questions 1 - 5, please rank your answers on a scale of 1 to 5, 1 being lowest /
least helpful, and 5 being highest / most helpful.
1. How helpful was the Daisy Bake Pack in hosting your Daisy Bake?
1
2
3
4
5
4
5
2. How easy to understand was the pack?
1
2
3
3. How valuable did you find the information in the pack?
1
2
3
4
5
4
5
4. How likely are you to host another Daisy Bake?
1
2
3
5. How likely are you to recommend hosting a Daisy Bake to a friend?
1
2
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
3
4
5
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
2
For questions 6 - 11, please write a brief answer to express your opinions.
6. How was your experience planning your Daisy Bake?
7. How was your experience hosting your Daisy Bake?
8. What worked best for your Daisy Bake?
9. What did not work so well for your Daisy Bake?
10. How do you feel we could improve our support for Daisy Bake hosts?
11. What information / advice could we add to the Daisy Bake pack?
Thank you for taking the time to complete our evaluation form.
Your feedback means a lot to us.
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Resources
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Daisy Bake Communication Templates
This pack includes several templates you can edit and use to help solicit support for
your Daisy Bake event. Here are some tips for using these templates.
From within the PDF, click on the letter title to download an editable word version.
Edit all prompts, and remember to delete prompts and italic notes before sending.
Follow every prompt in the News Release and Photo Op templates. Remember
to attach our Notes to the Editor for both Retinoblastoma and Daisy Fund.
Inspire the people you are contacting by sharing your personal motivations for
hosting the Daisy Bake, The more personal your message, the greater chance
you have of securing a positive response.
Include specific information about your event (date, time, location etc).
Be specific about what you are requesting, or provide a wish list of items. For
example “Please donate 150 paper plates and 150 napkins” will likely receive a
more positive response than “any help you can give will be gratefully received”.
Send the letters to everyone you know: friends and relatives, neighbors, coworkers, clubs you are involved with, local businesses and media etc.
Ask supporters to not send cash in the mail. They can bring cash on the day, pay
checks to Daisy’s Eye Cancer Fund, or donate to your fundraising page online.
Enclosing a self addressed return envelope with your letter will make responding
simple for your supporters. Write your mailing address on the return envelope so
you can receive check donations and keep track of how much you have raised.
For an even greater chance of a positive response, consider adding a stamp on
the return envelope. This is, of course, optional.
This is crunch time for children with eye cancer – they can’t wait another day
for a cure. We have a chance to save many precious young lives around
the world because of people just like you. Thank you very much!
5640 Telegraph Road, Suite 306
St. Louis • MO • 63129
U.S.A.
T: 1-314-669-1104
E: [email protected]
W: www.daisyfund.org
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Template Product / Material Donation Request Letter or Email
Use this template to contact potential business supporters.
Dear NAME,
Every year, 7,000 children die from eye cancer, and 90% of children who survive have
moderate or severe loss of vision that is irreversible. Eye cancer in babies and children
is curable, so this toll of suffering is totally unacceptable.
I need your help to host a fundraiser supporting Daisy’s Eye Cancer Fund, a non-profit
building sustainable care for all children with eye cancer and their families.
On DATE, I will host a Great Daisy Bake stall to help save children’s lives and sight. I
am aiming to raise GOAL. The money will fund specialist family support programs; build
sustainable, affordable care for children in developing countries, and facilitate
collaborative work among medical professionals to advance evidence based care. You
can find out more about Daisy’s Eye Cancer Fund at www.daisyfund.org.
I am motivated to raise funds for Daisy’s Eye Cancer Fund because SHARE YOUR
PERSONAL STORY.
Please support my fundraiser and children with eye cancer by donating EXPLAIN YOUR
SPECIFIC PRODUCT OR MATERIAL NEED. I will acknowledge your gift publicly by
EXPLAIN HOW YOU INTEND TO DO THIS.
Alternatively, you may send a financial gift (please do not send cash in the mail).
Checks should be payable to Daisy’s Eye Cancer Fund. You will receive a receipt
directly from Daisy’s Eye Cancer Fund when I send in my donations after the event.
This is crunch time for children with eye cancer. Together, we can help achieve Daisy’s
vision of life and sight saving cure for all children with eye cancer.
hank you for your support!
Sincerely,
YOUR SIGNATURE, FOLLOWED BY YOUR PRINTED NAME
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Template Personal Donation Request Letter or Email
Use this template to contact potential family and friend supporters.
Dear NAME,
Every year, 7,000 children die from eye cancer, and 90% of children who survive have
moderate or severe loss of vision that is irreversible. Eye cancer in babies and children
is curable, so this toll of suffering is totally unacceptable.
I need your help to host a fundraiser supporting Daisy’s Eye Cancer Fund, a non-profit
building sustainable care for all children with eye cancer and their families.
On DATE, I will host a Great Daisy Bake stall to help save children’s lives and sight. I
am aiming to raise GOAL. The money will fund specialist family support programs; build
sustainable, affordable care for children in developing countries, and facilitate
collaborative work among medical professionals to advance evidence based care. You
can find out more about Daisy’s Eye Cancer Fund at www.daisyfund.org.
I am motivated to raise funds for Daisy’s Eye Cancer Fund because SHARE YOUR
PERSONAL STORY.
I am currently planning and recruiting support for this exciting event. Can you help me
help children with eye cancer by donating your time and energy to join me in planning
the event or volunteering on the day? If you are interested, please give me a call me to
talk about the help I need and how you can get involved.
If you can’t volunteer, please visit my stall on the day, donate to my fundraising page at
INSERT URL or send a check gift made out to Daisy’s Eye Cancer Fund. You will
receive a receipt directly from Daisy’s Eye Cancer Fund when I send in my donations
after the event.
This is crunch time for children with eye cancer. Together, we can help achieve Daisy’s
vision of life and sight saving cure for all children with eye cancer.
Thank you for your support!
Sincerely,
YOUR SIGNATURE, FOLLOWED BY YOUR PRINTED NAME
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
Template Thank You Letter or Email
Use this template to thank your volunteers, donors and other supporters.
Dear NAME,
Thank you so much for your generous support of my Daisy Bake fundraiser benefiting
Daisy’s Eye Cancer Fund, children with eye cancer and their families.
Every year, 7,000 children die from curable eye cancer, and 90% of children who survive
have moderate or severe loss of vision that is irreversible.
Daisy lost both eyes to cancer before her fifth birthday. After her treatment ended, Daisy
and her family chose to help a little girl from Africa (Rati) whose cancer spread to her
brain. When Rati died in 2006, Daisy’s Eye Cancer Fund began addressing the
challenges that cause many children such great suffering. Daisy’s courage and wish to
share hope helped Rati leave a legacy that has already saved many precious young
lives, creating light from the darkness cancer brought to her life.
With your support, I have raised TOTAL to help Daisy’s Eye Cancer Fund provide
specialist family support; build sustainable, affordable care for children in developing
countries, and facilitate collaborative work among medical professionals to advance
evidence based care. Find out more about their work at www.daisyfund.org.
Your support means so much to me because SHARE YOUR PERSONAL STORY.
This is crunch time for children with eye cancer. They cannot wait any longer for high
quality care. Thank you for helping me support Daisy’s Eye Cancer Fund in their
mission to achieve life and sight saving care for all children with eye cancer.
Sincerely,
YOUR SIGNATURE, FOLLOWED BY YOUR PRINTED NAME
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
NEWS RELEASE
For immediate use
Weekday, Month DD, YYYY
HEADLINE Write a brief punchy headline that presents your story through a strong
compelling angle. Keep it to one line, no more than 10 words.
First Paragraph: Approach the story through your chosen angle. Do not cram every
detail into the first paragraph – you must grab the reader’s attention in the first five to ten
words. Keep the paragraph to no more than 35 words. Make every word count.
Second Paragraph: This should contain all the details of your event not already
covered in the opening paragraph. Ensure you have answered the questions what,
who, when, where and why in these first two paragraphs. Stay focused on the angle.
Briefly explain the importance of your event.
Third Paragraph: Explain your personal motivation for hosting the event. Provide a
strong human interest quote from someone involved in the event. Be sure to introduce
the person you are quoting. Whether this is yourself or someone else, write the quote in
third-person format (e.g. “…“, said Mrs Smith.).
information and emphasise your motivations.
Use the quote to add inspirational
Do not repeat details or bland facts
already stated in the lead (first two paragraphs).
Fourth Paragraph Onwards. Briefly explain about retinoblastoma. Add a statistic or
two to make a point, if this fits.
See our “10 Reasons” factsheet for suggestions.
2
Make your story relevant to your local community.
Conclude by emphasising local
involvement such as volunteers, and business donations or sponsorship, and the
importance of raising awareness among local families of young children.
Create a
sense of urgency. Keep your message short and memorable.
Provide contact information that can be included in the article, such as your online
fundraising page, telephone number or email address. Please include the Daisy’s Eye
Cancer Fund website address here. www.daisyfund.org
ENDS
[This indicates the end of information that can be included in the article]
Contact: First and last name (and job title – if relevant)
Address: [provide your full contact address]
Telephone:
Cell:
Email:
Daisy’s Eye Cancer Fund
Contact: Abby White, Chief Executive
Daisy’s Eye Cancer Fund
The Manna House
T: +44(0)1865-243-654
73 Boundary Brook Rd
E: [email protected]
Oxford, OX4 4AL, U.K.
W: www.daisyfund.org
Editor’s Notes
Editors Notes about retinoblastoma and Daisy’s Eye Cancer Fund are included in the
Daisy Bake Pack (resources section).
Your Media Release, including contacts, should be no longer than two sides.
The Great
Daisy Bake
It’s crunch time for kids with eye cancer!
FOR OPERATIONAL USE ONLY
NOT FOR PUBLICATION OR BROADCAST
Invitation to News and Picture Editors
Inspirational heading – no more than 10 words
First Paragraph: Describe your activity to be photographed, in no more than 25 words.
Make every word count.
Second Paragraph: In two – three sentences, describe who will be involved in the
activity, what they will be doing, and why.
Supporting Daisy’s Eye Cancer Fund: www.daisyfund.org
You are invited to send a representative
Time:
Indicate start-end time, or specific activity time.
Date:
Weekday, Month DD, YYYY
Venue:
Street address (include a map / directions separately
For More Information, Contact:
First and last name (and job title – if relevant)
Address: [provide your full contact address]
Telephone:
Cell:
Email:
Your Entire Photographic Notification should be no longer than one side.
Notes for Editors - Retinoblastoma
About Retinoblastoma
•
Every year, 300,000 children (0-15 years) develop cancer around the world. 85% live in
developing countries and 240,000 (80%) will not survive five years.
•
Retinoblastoma (Rb) is a rare cancer that forms in the eyes of babies and young children,
usually before the age of three years.
•
Rb can affect one eye (unilateral) or both eyes (bilateral) and a child can have multiple
tumors in one or both eyes. The cancer does not spread from one eye to the other. Each
tumor is caused by a unique genetic change in a single retinal cell.
•
Rarely, affected children develop a brain tumor called trilateral retinoblastoma. This has
traditionally been fatal, but a growing number of children in developed countries are
surviving with aggressive treatment, and they give us great hope for the future.
•
Retinoblastoma affects 1:15-20,000 live births, around 9,000 children worldwide each year.
It affects boys and girls equally, and is not more common in any race or region.
•
About 280 children develop this cancer in the USA each year, 23 in Canada, 45 in the UK
and 90 in Kenya. Please contact Daisy Fund for other country data.
•
Retinoblastoma accounts for about 3% of childhood cancer in developed countries. In large,
growing populations, it can account for as much as 15% of childhood cancers due to a
higher proportion of the population under five years.
Symptoms and Diagnosis
•
The most common early sign of Rb Is a creamy-white glow in the affected eye/s. This is
frequently seen in flash photos. When the cancer is advanced, the white reflection can be
seen with the naked eye, most often at dawn and dusk when ambient lighting is low.
•
Other symptoms include a squint (misaligned eyes) and a red, sore or swollen eye. In
developing countries, many children present with a bulging eye or ruptured eyeball because
of poor awareness and access to health care.
•
There are other reasons for a white pupil, but in young children, Rb should always be ruled
out quickly with an eye exam by an ophthalmologist.
•
In developed countries, average age at diagnosis is 30 months (unilateral) and 15 months
(bilateral). In Kenya (typical of the developing world), the average age at diagnosis is 36
months (unilateral) and 26 months (bilateral).
•
In developing countries, where families often do not have access to a camera, awareness of
white pupil is essential. By the time parents see it with their naked eye, the cancer is likely
to already threaten life, and the child needs urgent medical care.
•
Diagnosis can be confirmed with a thorough eye examination under general anaesthetic, but
no biopsy is done as this increases risk of tumor spread beyond the eye. The child should
Daisy’s Eye Cancer Fund - www.daisyfund.org
2
be treated by an ophthalmologist (eye doctor) and oncologist (cancer doctor) working
together who have experience of caring for children with retinoblastoma.
Treatment
•
Surgical removal of the affected eye/s is the most common and effective treatment. About
80% of children have at least one eye removed to protect their life, and 5% lose both eyes in
developed countries. This is usually because their cancer has not been detected early.
•
Greater awareness of white pupil – the early sign of this cancer – will save many children’s
lives, eyes and sight.
•
Other treatments include chemotherapy, laser, cryotherapy (freezing) and radiotherapy. The
eye will be removed if these treatments fail to kill the cancer.
•
When cancer has spread outside the eye or the child has trilateral Rb, intensive
chemotherapy, stem cell (bone marrow) transplant, and sometimes radiotherapy are
required to give the best chance of cure.
Prognosis
•
Children have an excellent chance of cure when retinoblastoma is fully contained in the eye
at diagnosis and they receive appropriate treatment and follow up for both eyes by doctors
experienced in managing retinoblastoma.
•
When Rb has spread outside the eye, the chance of cure is very small, even with aggressive
state of the art treatment.
•
Early diagnosis is essential for cure.
•
96-99% of children treated in developed countries are cured today.
•
In the developing world, early diagnosis and access to specialist care is limited. Most
children are not diagnosed until the cancer has already spread outside their eye, and the
aggressive treatments needed to give them a chance of cure are either unavailable or too
expensive. As a result, global survival is less than 20%.
Genetics
•
Retinoblastoma is caused by errors (mutations) on the RB1 gene. These may either be
inherited or occur during the normal process of cell division.
•
In about 50% of children, the RB1 mutation can be passed to the next generation. These
children also have a higher risk of developing other cancers throughout life.
•
About 1.5% of children with cancer in one eye and no family history have two normal copies
of RB1 in the tumour. Their cancer is caused by too many copies of MYCN, the gene most
commonly associated with high risk neuroblastoma. This form of cancer develops in young
babies, is very aggressive and is not inherited. The average age at diagnosis is 4.5 months.
•
Genetic testing is important to identify which children have the heritable form or Rb, to
identify at risk relatives and to eliminate invasive surveillance procedures for children who
are not at risk for retinoblastoma.
•
RB1 was the first “tumour suppressor” (cancer preventing) gene discovered. Research of
RB1 has increased fundamental knowledge of how all cancers form, leading to development
of new therapies and genetic tests for common cancers affecting millions of adults. Ongoing
RB1 research is vital to further our knowledge and ability to cure, and even prevent, cancer.
Daisy’s Eye Cancer Fund - www.daisyfund.org
Notes for Editors - Daisy’s Eye Cancer Fund
Our History
•
Daisy’s Eye Cancer Fund is named in honour of Daisy Lloyd, an English schoolgirl who
was diagnosed with cancer in both eyes at the age of 13 months in 2000.
•
When all treatment options failed to kill the cancer, Daisy’s family took her to Canada for
treatment that was unavailable in England, hoping to save her last eye. They created
The Daisy Fund to fundraise for her medical care in Toronto.
•
On their return to England, Daisy’s family helped an African child whose cancer relapsed
outside her eye. They donated money from The Daisy Fund to pay for travel to Canada
and initial treatment to give two-year-old Rati the best possible chance of cure.
•
Daisy’s Eye Cancer Fund was founded in 2004 in England and Canada to raise funds for
Rati’s treatment, which included bone marrow transplant.
•
Rati was in remission for a year, but when her cancer relapsed, no more treatment was
possible. When she died on 21 August 2006, we broadened the mission of Daisy’s Eye
Cancer Fund to tackle the challenges that robbed Daisy of her sight and Rati of her life.
•
Our shortened name is Daisy Fund and acronym is DECF.
Our Chapters
DECF has four Chapters, each of which is an autonomous organization with shared vision,
mission, values, programs and identity.
•
Canada – SickKids Foundation Charitable Business #: 10808-4419- RR0001
•
England – Registered Charity #: 111-11-33
•
Kenya – Registered NGO #: 218/051/2008/003/5038
•
USA – 501(c)(3) National Non Profit. EIN: 45-4886827
Our Vision and Mission
•
The vision of Daisy’s Eye Cancer Fund is to achieve life and sight saving care for every
child with retinoblastoma around the world, regardless of their personal circumstances.
•
In our mission to achieve this goal, we:
o
Educate the public and primary health workers about retinoblastoma to achieve
early diagnosis and rapid referral to specialist care;
o
Empower the medical community to deliver sustainable high quality evidencebased care that gives each child the best possible opportunities;
Daisy’s Eye Cancer Fund - www.daisyfund.org
2
o
Enable family support programs that reduce practical, emotional, financial and
social burdens and improve access to essential care.
•
DECF employs three people, a programs manager who is also Chief Executive of DECFKenya), executive assistant and Programs Manager. All are Kenyan, based in Nairobi.
•
All our team members In Canada, the UK and USA are full time or part-time volunteers.
Rati’s Challenge
•
In September 2006, Daisy’s Eye Cancer Fund launched Rati's Challenge to address the
needs of families affected by retinoblastoma in Africa. The Kenya National Rb Strategy
was launched through this program in September 2008, to build a model for capacity
building and sustainable care of children in developing countries.
•
We work in full collaboration with the Kenyan government in developing the first fully
national collaborative program to improve retinoblastoma care in a low income country.
•
We have added information about the early signs of Rb to the Mother and Child Health
booklet, which is produced by the Ministry of Health and given to parents, primary health
workers and paediatricians across the country.
•
We have trained East Africa’s first specialist ocular and orbital pathologist, and
established / equipped the Rb Collaborative Laboratory in Nairobi. Precise pathology of
removed eyes guides post-operative care and maximises the use of limited resources.
•
We have donated a Retcam™ to Kenya to enhance eye examination and treatment, aid
training and enable online consultation (telemedicine) to benefit patient care. This is
standard equipment at Rb centres in Canada, the UK and USA, but our donation was the
first to reach Africa.
•
We have created a handcrafting program at Kenyatta National Hospital in Nairobi and
Moi Hospital in Eldoret, enabling parents to generate income while their child receives
treatment. This empowers them to pay premiums for the National Hospital Insurance
Fund, which covers the cost of inpatient medical care. The program also lifts the spirit
and gives parents a healthy distraction, reducing their risk of abandoning treatment.
Daisy’s Eye Cancer Fund USA
•
Daisy’s Eye Cancer Fund USA was founded in January 2012.
•
As well as supporting vital international work, sharing hope with children and families
worldwide and improving global survival, Daisy Fund USA has two national programs:
•
Retinoblastoma Family Groups: we are developing single-state and regional family
groups across the country, so that within five years, every family will have access to
face-to-face support close to home. Each family group will provide a program of social
activities, Rb information, a small grants fund for families in need, and local advocacy.
•
National Retinoblastoma Strategy: we will lead development of a national collaborative
approach to retinoblastoma care, encompassing awareness campaigns, evidence based
medical care and family support initiatives to improve care for all affected children, adult
survivors and their families in America.
Daisy’s Eye Cancer Fund - www.daisyfund.org
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