y h oung eart

young at heart
Children’s Hospital Foundation of Richmond
S U M M E R 2012
Dear Friends,
I
MISSION
Children’s Hospital
Foundation funds and
advocates for pediatric
initiatives that improve
the status of health care
and the quality of life for
children in our region.
y
h
SUMMER
2012
oung at eart
Children’s
ation
Hospital Found
of Richmond
On the cover:
Because of an inherited condition that
prevents proper tooth development,
9-year-old Henry Bourgin recently
received his third set of dentures thanks
to dental services from Children’s
Hospital of Richmond at VCU’s Dental
Program. (Photo by Doug Buerlein)
am delighted to share this issue of Young at
Heart with you. As you read this issue, we
are about to complete yet another successful
fiscal year in support of the thousands of
children we serve at Children’s Hospital of
Richmond at VCU.
During this last quarter we have been
able to assist the hospital in a number of ways
including completing our pledge of $500,000
to the new pediatric perioperative center
and assisting with funding support for a new
neonatologist, Dr. Karen Hendricks-Muñoz,
and a new pediatric surgeon, Dr. Patricia
Children’s Hospital Foundation staff attended a Junior Board Ball
Lange—both of whom began their work in
painting workshop this spring (see page 10). Pictured (l-r), Stephanie
Allan, Director of Special Events, and Chris Broughton-Spruill, President,
February. The hospital continues to grow
worked together on a canvas from Where the Wild Things Are.
with the addition of new programs like the
Comprehensive Pediatric Obesity Treatment Center, which will begin seeing patients this summer. Because
of your continued support, we are able to provide funding for these programs and many others that, when
combined, make Children’s Hospital of Richmond at VCU the region’s full-service children’s hospital.
I often refer to the importance of community participation in our fundraising efforts and would like
to ask you to make particular note of two very important events that are being planned for the near future.
You will see information regarding Children’s Miracle Network Hospitals’ Anthem LemonAid on page 14
and the Children’s Hospital Foundation 4-Mile Walk/Run on page 15. We would very much appreciate your
participation in one or both of these events. Both are designed with family fun in mind and will offer an
opportunity for you to support our Foundation and learn more about the children we serve.
Thank you for all you do, and please continue to keep Children’s Hospital Foundation in your hearts.
Sincerely,
CHILDREN’S HOSPITAL
FOUNDATION
PRESIDENT
Chris Broughton-Spruill
DIRECTOR OF SPECIAL EVENTS
Stephanie Allan
DIRECTOR OF PUBLIC RELATIONS
Matthew E. K. Brady
ACCOUNTING MANAGER
Jodi Gibson
Chris Broughton-Spruill
President, Children’s Hospital Foundation
8
6
VOLUNTEER AND COMMUNITY
OUTREACH COORDINATOR
Lauren McDaneld
WRITER/EDITOR, Young at Heart
Alissa M. Poole
CHILDREN’S MIRACLE NETWORK
HOSPITALS
DIRECTOR
Rachel Bruni
PROGRAM COORDINATOR
Amy Dickstein
Young at Heart is published by and in
the interest of Children’s Hospital
Foundation, 2924 Brook Road,
Richmond, Virginia, 23220-1298, and
is issued four times each year. For more
information on articles appearing in
Young at Heart, contact the Director of
Public Relations at 804-249-8633 or at
the above address.
13
Look for the della Robbia
image throughout this
magazine to learn how
you can get involved
with Children’s Hospital
Foundation and make
a difference in the lives
of our children. For
many years, the della
Robbia has symbolized
the compassionate care
extended to so many
through the hospital
and supported by our
Foundation.
Children’s Stories
TRAVELING MILES FOR
SMILES
A
t least twice a year, Catherine Bourgin
loads her three children, including
9-year-old Henry, into her family’s minivan
for the two-hour trip to Children’s Hospital
of Richmond at VCU’s (CHoR) dental clinic.
Although Catherine, who lives in McLean, Va.,
has to coordinate Henry’s appointments at
CHoR’s MCV Campus around I-95 traffic, she
said “knowing I can get the best care for him
makes the drive worth it.”
When Henry was a year old, Catherine
noticed his teeth were developing with pointed
rather than the traditional straight edges.
Because Henry also had fluffy, light hair, severe
eczema and frequent respiratory problems,
Catherine raised her concerns with Henry’s
pediatrician. A few months later, after an
appointment with a geneticist, Henry was
diagnosed with ectodermal dysplasia, an
inherited disorder that can involve abnormal
development of the hair, nails, sweat glands,
teeth and, in the most extreme cases, eyes, ears,
fingers, toes and nerves. Henry’s ectodermal
dysplasia presented itself through a lack of hair,
sweat glands and teeth, leading Catherine and
her husband, Frank, to search for a dentist to
make dentures for their young son. (Henry’s
eczema was attributed to allergies to a variety
of foods including soy, peanuts, tree nuts and
legumes.)
“Teeth are needed for proper facial
formation, speech and eating,” commented
Catherine, who is a recessive carrier for
ectodermal dysplasia and had her teeth
repaired in her early 20s. “There are also social
issues associated with not having teeth, which
we didn’t want Henry to have to deal with.”
—continued on page 4
young at h eart
Henry Bourgin’s biannual trips to Richmond
for dental check ups at Children’s Hospital
of Richmond at VCU’s dental clinic are often
family affairs and include older brother,
William (right), and younger sister, Charlotte.
(Photo by Doug Buerlein)
I SUMMER 2012
3
Miles for Smiles,
continued from page 3
After being unable to find a local dentist to
help Henry, Catherine was referred to CHoR’s
Dental Program and Tegwyn Brickhouse,
DDS, PhD, Chair, Pediatric Dentistry, Virginia
Commonwealth University. Henry first saw Dr.
Brickhouse on the MCV Campus in “Pediatric
[email protected],” one of CHoR’s dental
programs. Henry, who has four natural teeth,
received aesthetic white crowns for those
teeth and his first set of dentures to replace his
missing teeth when he was three years old.
“When he got his dentures, he was so proud
and so happy,” recalled Catherine, whose goal
is for Henry to get permanent dental implants
around age 20, a goal Dr. Brickhouse supports.
“Children’s Hospital of Richmond’s doctors
are very supportive,” Catherine said. “From the
moment I met her, Dr. Brickhouse gave me the
sense she was willing to work with me and plan
long-term for Henry’s care.”
Catherine also said she appreciated the
environment of an academic health center that
encourages learning, teaching and progressive
treatment. “I didn’t have to explain ectodermal
dysplasia to them,” she recalled. “Children’s
Hospital is a pediatric center. It’s cutting-edge,
very dynamic and very positive.”
Pediatric Dental Services
CHoR’s Department of Pediatric Dentistry
specializes in providing dental care to children
with special needs and otherwise healthy
children from birth to age 18. Seven pediatric
dentists treat children at both CHoR’s MCV
and Brook Road Campuses and work with the
VCU School of Dentistry’s Advanced Education
in Pediatric Dentistry residency program at
VCU to train future pediatric dental specialists.
With approximately 15,000 visits per year
for both clinics, the department focuses on
diagnosis, education and intervention and
provides preventative and restorative care in an
environment designed specifically for children.
The lobbies and exam areas on both campuses
feature child-friendly ocean or jungle themes,
televisions tuned to children’s programming and
bright, comfortable, modern spaces.
“What is really unique is that we are the only
pediatric dental treatment center in the midAtlantic certified by the National Foundation for
Ectodermal Dysplasias (NFED) to treat children
with ectodermal dysplasia,” said Dr. Brickhouse,
who is currently following seven children from
4
Nine-year-old Henry Bourgin is a talented artist who has had multiple drawings and paintings featured in local art
shows near his home in Fairfax County, Va. (Photo by Doug Buerlein)
across Virginia with the condition.
“Henry’s smile has blossomed with his new
front teeth and dentures,” Dr. Brickhouse recalled.
“He used to be quiet and shy but is now quite
talkative and loves to share his latest stories and
interesting toys.”
New Adventures
A third grader in Fairfax County, Henry loves
football, video games, legos, swimming and
Cub Scouts. He enjoys playing with his 11-yearold brother, William, and 4-year-old sister,
Charlotte, as well as the hamster he got for
his ninth birthday. He is also a talented artist
and has had some of his drawings featured in
community art shows over the years. Although
Henry has to take precautions like staying
out of the sun and maintaining a cooler body
temperature because he lacks sweat glands,
Catherine said she “doesn’t want ectodermal
dysplasia to define him.”
Catherine has become Henry’s biggest
advocate as she educates students and teachers
at his school, talks with insurance companies
and shares her knowledge with other families
dealing with a new diagnosis.
“For all the unexpected challenges he brings
to me,” Catherine said, “I’ve learned a lot and
try to make it all into an adventure as to how to
work out obstacles.”
Now on his third set of dentures, Henry will
continue to require new sets, and more frequent
trips to Richmond, as he grows. In addition to
the clinical care provided by Dr. Brickhouse and
her team, Catherine emphasized the importance
and skill of John Cziglan, the lab technician who
makes the dentures, and the team members
like Ilean Eddleton who take care of insurance
claims.
“Many patients with ectodermal dysplasia
don’t get proper dental care because they don’t
have insurance, can’t afford the difference or
don’t know how to fight,” said Catherine, who
has spent hours on the phone with insurance
companies over the years. “You need someone
who is accurate and willing to fight for you.
Children’s Hospital provides that.”
As Henry gets older, he may also require more
specialized dental care to prepare his mouth
for permanent dental implants. Whether Dr.
Brickhouse provides that care or refers Henry to a
specialist, Catherine said she trusts Dr. Brickhouse’s
professional opinion. Most importantly, she knows
her son is comfortable with his care.
“Dr. Brickhouse is willing to work with you
and is honest about her assessment,” Catherine
said. “I feel hopeful with Dr. Brickhouse and her
team during each step of Henry’s treatment and
know at the right time in Henry’s life, we will
tackle the next thing.”
Children’s Stories
Giving
the Gift of Life
“L
ightning McQueen can go fast,” said 4-year-old Harold Parker IV in
reference to a character from his favorite movie, Cars. As he ran
around his living room one evening this spring, it was hard to believe
that four months earlier he was in Children’s Hospital of Richmond at
VCU’s (CHoR) Pediatric Intensive Care Unit, recovering from a liver
transplant.
Less than a month after her son’s April 2008 birth, Michele Parker
noticed the whites of Harold’s eyes weren’t as clear as they should be.
Harold’s pediatrician ordered blood tests, and Harold was diagnosed
with biliary atresia, a congenital condition where the bile ducts do not
develop normally. Because bile ducts help remove waste from the liver
and carry salts to help the small intestine break down fat, blocked or
missing bile ducts can lead to deadly liver damage if left untreated.
Harold, or “P” as he is nicknamed by his parents, Michele and Harold
III, was admitted to the acute care unit at CHoR’s MCV Campus and had
surgery to remove his gall bladder and attach his small intestine to his
liver. The goal was to allow Harold’s liver to drain directly to the small
intestine, bypassing the missing bile ducts and gall bladder.
“Three weeks after his surgery, doctors deemed it unsuccessful,”
recalled Michele. “They thought Harold would need a liver transplant by
eight months. Miraculously he did better with more time.”
Harold continued to grow and meet most developmental milestones
and quickly passed the eight-month transplant mark. (Because of his
enlarged liver, Harold developed a distended belly, which prevented
him from walking until 20 months.) Although he was admitted to the
hospital anytime he had a fever, Harold didn’t get sick as often as doctors
expected, coming to the hospital approximately every six months for
nearly three years.
By September 2011, after three hospital admissions in seven months,
doctors suggested the Parkers consider a transplant. Because the liver
is one of the few organs that regenerates itself, Michele and Harold III
were tested to see if they could be their son’s donor. (See page 9 for
information about living donor transplants.) Amazingly both parents
were perfect matches, but because of the level of care required after a
transplant, Harold III chose to be the donor for his son.
“When we checked in to the hospital before the surgery, P knew what
was happening,” remembered Harold III. “He said, ‘hey dad, I’m going to
get a piece of your liver.’”
Although Harold IV showed early signs of rejection after the Nov. 14
surgery, his blood work is now that of a healthy 4-year-old. He returns
to CHoR for blood tests every two weeks and will continue to take
medication to help prevent rejection of his new liver. He is growing
young at h eart
I SUMMER 2012
After receiving a liver transplant using a portion of his father’s liver last
fall, Harold Parker IV has a lot more energy to play with his parents,
Michele and Harold III, and his sister, Elise, at their Chesterfield County
home. (Photo by Doug Buerlein)
physically and has started eating meat, something he used to avoid.
“His energy level is through the roof,” said Harold III. “He turned that
corner [after showing signs of early rejection]. It’s like he never looked
back.”
Now the boy who tired easily before surgery rarely stops moving.
He loves to eat cheetos, watch the Dallas Cowboys and play with his
5-year-old sister, Elise, in their Chesterfield County home. He also
talks energetically about his Spiderman bedroom and how he plans to
celebrate his next birthday.
When describing the opportunity to donate a portion of his liver to
his son, Harold III said he had no regrets. “I felt it was my responsibility as
a father to see that my son was ensured a good quality of life. When I look
in his eyes that are no longer yellow, words cannot describe how happy I
am to see him doing well.”
5
Giving Back
Continuing a
Tradition of Giving
W
hen Wells Fargo and Wachovia merged last summer, the
San Francisco-based financial services company brought
its history of helping the community to the East Coast. Through
Wells Fargo’s Greater Virginia volunteer chapter, which includes
company locations from Fredericksburg to Virginia Beach, Wells
Fargo has provided donations of time and dollars to Children’s Hospital
Foundation. One of 66 company-wide volunteer chapters, the Greater
Virginia chapter includes 2,800 employees from all lines of business.
“One of our focus areas is health and human services,” said Corliss Archer,
Vice President, Community Affairs Officer – Greater Virginia Wells Fargo.
“Children’s Hospital Foundation and Children’s Hospital of Richmond are the
perfect fit.”
Since 2010, Wells Fargo has donated more than $15,500 to Children’s
Hospital Foundation through sponsorships of the 10K race and the Junior
Board of Children’s Hospital Foundation’s annual Ball. Employees have
also organized teams for the Foundation’s annual Bowl-A-Thon. Donated
funds have supported new technology and equipment on the hospital’s
Transitional Care Unit and uncompensated care.
“Children’s Hospital of Richmond does so many wonderful things to
improve the quality of life for children,” Corliss remarked. “Wells Fargo believes
in the hospital’s mission of providing care without regard to ability to pay.”
In February, Wells Fargo donated $5,350 through a partnership with the
University of Richmond (UR) Athletic Department. For every three-point
Wells Fargo representatives Jason Wiles (left), Vice President and District Manager,
and Joseph Manfredi, Senior Vice President and Regional Brokerage Manager for
Central Virginia, presented a check for $5,350 to Chris Broughton-Spruill, President,
Children’s Hospital Foundation, at the Robins Center in February. The donation
represented Wells Fargo’s partnership with the University of Richmond Athletic
Department during the 2011-2012 basketball season.
shot made by a UR player during the basketball season, Wells Fargo donated $50.
The company then asked UR students to select a charity beneficiary. Students
“overwhelmingly selected Children’s Hospital Foundation,” Corliss said.
Through its Community Support Campaign, Wells Fargo employees
can also designate company dollars to donate to schools or non-profit
organizations with which they have personal connections. In 2011, Wells
Fargo’s 9,000 Virginia employees contributed $1.2 million and provided 32,650
volunteer hours to local organizations. Wells Fargo employees also designate
millions of dollars to local United Way campaigns annually.
“It’s important to Wells Fargo to give back to communities,” Corliss said.
“I’m proud to be a team member at Wells Fargo and proud of what we do in the
community.”
St. Bridget’s Students Recognized for 10 Years of Helping Children
Beth Ouellette still remembers her first visit to Children’s Hospital of Richmond
at VCU (CHoR) 10 years ago. With students from the Student Council
and a community service class at St. Bridget School, Beth toured CHoR’s
Brook Road Campus and met many of the children served by the hospital’s
Transitional Care Unit.
“The students came back to school and shared what we saw,” said
Beth, who teaches eighth grade and serves as the school’s Wishing Well
program sponsor.
In February 2002, St. Bridget’s students participated in their first
Wishing Well project, a coin collection program sponsored by the Senior
Board of Children’s Hospital Foundation. Coin canisters were placed in
the school’s kindergarten through eighth grade classrooms, and students
were encouraged to donate spare change during the two-week program.
Students who donated at least one dollar also earned a spirit day where
they did not have to wear uniforms to school.
Every February since then, St. Bridget’s students, who sponsor a
community service project each month, have participated in the Wishing
Well program, collecting a total of nearly $7,000. While some students
have personal experiences with the hospital, most participate because of
the stories their teachers share from Children’s Hospital Foundation’s web
site and the discussions they have with older students who have visited
the hospital. One student even signed up for the hospital’s summer junior
volunteer program after reading the patient stories.
6
Seventh and eighth grade representatives from St. Bridget’s Student Council proudly
displayed their 10-year Wishing Well plaque in March. Stephanie Allan (far left),
Director of Special Events, Children’s Hospital Foundation, shared the moment with
Beth Ouellette (second from left) and Charlene Bechely, Assistant Principal.
“We like the Wishing Well program,” commented Beth, “because it’s
about kids helping kids in the community. I like to remind students that many
of the things we take for granted, like going to the dentist, are difficult for
some children who need to be sedated just to have their teeth cleaned. Our
students learn that some kids are not as fortunate as we are.”
For information about how your school or organization can
participate in the Wishing Well project, contact Stephanie Allan
at [email protected] or 804-228-5827.
MAKING MIRACLES
Children’s Miracle
Network Hospitals
Children’s Miracle Network (CMN) Hospitals works in Central Virginia with Children’s
Hospital Foundation to support Children’s Hospital of Richmond at VCU (CHoR).
Buy a Miracle Balloon and Help Our
Partners Help Local Kids
Dairy Queen - June 1 - July 26
Food Lion - June 6 - 26
Love’s Travel Stops - August 26 - September 30
Find Our Champion at Food Lion
Beginning June 6, Food Lion stores will exclusively
carry specially-designed Children’s Miracle
Network Hospitals Kellogg’s Frosted Flakes, PopTarts and Cheez-It boxes. Kellogg’s will donate
$1 (up to $50,000) to CMN Hospitals for every
four boxes sold. The specially-designed packages
highlight five patients, including Kyla Roerty, a
CHoR patient and CMN Hospitals’ 2012 Virginia
Champion. Food Lion’s fundraising campaign runs
from June 6 to 26.
To learn more about the Champions Program,
visit www.cmnhospitals.org/about/champions.
Panera Continues Support
This spring, representatives from
Panera Bread Café presented a
check for $13,405 to Children’s
Miracle Network Hospitals,
representing proceeds from the
company’s Operation Doughnation
Campaign. Pictured holding
the check are (l-r) Kyla Roerty, a
Children’s Hospital of Richmond at
VCU patient; Rachel Bruni, Director
of CMN Hospitals in Richmond;
and Tony Venafro, Site Manager,
Panera Bread Café, Colonial
Heights.
young at h eart
I SUMMER 2012
Rachel Bruni (center), Director of CMN Hospitals
in Richmond, accepted a check for $10,000
from members of MACS’ executive leadership
team, Derek Gaskins and Lynn Lambrecht,
on behalf of MACS and the BP Fueling
Communities program.
MACS Presents
$10,000 Gift to
Children’s Miracle
Network Hospitals
In March, Mid-Atlantic Convenience
Stores (MACS), one of the largest
convenience store networks and fuel
distributors in the Richmond area,
presented CMN Hospitals with a
$10,000 donation raised through the
BP Fueling Communities program, a
philanthropic program created to help
local BP business owners identify needs
in their communities and help meet them.
“We’ve learned so much about the
work CMN does in Richmond, from
providing vital equipment for Children’s
Hospital of Richmond at VCU to funding
educational support groups for patients
and their families,” said Lynn Lambrecht,
Senior Vice President of Human
Resources, MACS. “The organization is
an essential source of strength in our city.”
Thanks to our Donors
Children’s Miracle Network Hospitals
recently received the following donations,
raised through the sale of CMN Hospitals
Miracle Balloon icons and from other events:
• Ace Hardware - $29,082
• Wawa - $6,850
• Enterprise Car Sales Foundation - $5,000
• American Legion - $1,800
• Country Style Dancers - $1,600
• Chico’s FAS, Inc. - $1,509
7
Reasons for Giving
KIDS COME FIRST
Children’s Hospital of Richmond at VCU (CHoR) offers the widest range of pediatric services in our region and is Central Virginia’s
full-service children’s hospital. Children’s Hospital Foundation supports the programs and initiatives of CHoR and the 50,000 children
and families it serves each year.
Hospital Representatives Tell Legislators
“Kids Come First”
N
early 50 legislators and administrative staff attended the ninth annual Children’s
Hospital of Richmond at VCU (CHoR) Legislative Reception on Jan. 12 at the
General Assembly building. Members of the CHoR Advocacy Committee partnered
with the hospital’s leadership team, Virginia Treatment Center for Children and students
from the VCU School of Social Work to promote this year’s “Kids Come First” message and
encourage lawmakers to prioritize funding for children’s education and health care.
Also in attendance were hospital patient Kyla Roerty and her parents, Gerry and Julee,
who shared their experiences accessing CHoR’s specialized care and discussed why all
children need children’s hospitals. Each year, this event provides the opportunity for the
hospital to focus on educating legislators and their staff members.
“To help tell the story of children’s health care, you need to put a face on what children’s
health care really is,” remarked Kendall Lee, Associate Director of Government Relations, VCU.
“It is rewarding to be able to discuss how Children’s Hospital of Richmond benefits its
patients and the community—or one family like the Roerty family—through the services it
delivers.”
Kendall also explained, “Continued investment in good health and good prevention is
extremely helpful in improving quality of life for kids as well as lessening the cost of health
care to everyone.”
Nine-year-old Kyla Roerty, a patient at CHoR, visited with Delegate Betsy Carr of the 69th
District and other legislators at CHoR’s ninth annual Legislative Reception earlier this year.
Dental Outreach Program Celebrates Fifth Year
Funded by a donation from Kohl’s Department Stores, the dental outreach program coordinated through a partnership between Children’s Hospital
Foundation and the Virginia Department of Health – Dental Division reached nearly 13,000 Head Start, kindergarten and first
grade students in the counties of Charles City, Chesterfield, Dinwiddie, Hanover, Henrico, New Kent and Prince George
and the cities of Colonial Heights, Hopewell, Richmond and Petersburg during the 2011-2012 school year.
“This year’s program was a great success,” said Lauren McDaneld, Volunteer & Community Outreach
Coordinator, Children’s Hospital Foundation. “We educated more children than ever before about the importance of
dental hygiene. We’re excited to reach even more children during next year’s program.”
In addition to distributing dental supplies to more than 550 classes, Foundation staff provided in-school
instruction during February’s National Dental Health Month to students at a number of Richmond City schools,
including George Mason Elementary, Ginter Park Elementary, Overby-Sheppard
Elementary, William Fox Elementary and Woodville Elementary. The 60-minute
presentation was designed to meet the Virginia Standards of Learning health
requirement and focused on the importance of dental health and hygiene.
8
Behind the Scenes:
Living Donor Liver
Transplant Program
L
ast November, then 3-year-old Harold Parker IV became the third
child in Virginia in 2011 to receive a living donor liver transplant (see
page 5). Living donor liver transplants are possible because the liver
is made up of segments and is one of the only organs that can regenerate
and grow back to almost 100 percent of its size and function.
Prior to being approved for the organ donation, the living donor
must undergo a blood test to determine blood type compatibility with
the recipient. A full medical history review and physical examination
follows, and the donor also meets with transplant psychologists to
further discuss the decision.
During living donor liver transplantation at Children’s Hospital
of Richmond at VCU, the donor and recipient each have a dedicated
surgical team and are in adjacent operating rooms. Once the portion
of the donor’s liver is removed, the partial organ is placed immediately
into the recipient. The surgery for both the donor and recipient takes
about 10 to 12 hours, followed by a 10 to 14-day hospital stay. The liver
grows back in approximately two to four weeks, providing both the
donor and the recipient with a full size liver.
According to the Organ Procurement and Transplantation Network,
a part of the U.S. Department of Health & Human Services, 59 pediatric
living donor liver transplants were conducted in the U.S. in 2011. Of the
three transplants performed in Virginia, all involved a parent as a donor.
CHoR Clinics
Expand in
Community
Children’s Hospital of Richmond at
VCU (CHoR) now offers expanded
services in a multi-specialty clinic
at Bremo Road (North Building,
5855 Bremo Road, Suite 703).
Services include allergy, cardiology,
hematology/oncology and
nephrology. For more information,
call 804-628-7337.
young at h eart
I SUMMER 2012
Dr. David Lanning (second from left), pictured with the Tapia family and Dominican
Republic president Leonel Fernandez Reyna, was honored during a ceremony at the
Dominican National Palace this spring.
CHoR Physician Honored for
Treatment of Conjoined Twins
David A. Lanning, MD, PhD, Associate Professor, Division of Pediatric
Surgery, VCU Department of Surgery, and Surgeon-in-Chief, Children’s
Hospital of Richmond at VCU (CHoR), traveled to the Dominican Republic
in April to accept the country’s highest civilian honor for his efforts to
surgically separate conjoined twins during a 22-hour surgery at CHoR last
fall. Dominican Republic president Leonel Fernandez Reyna presented the
Order of Christopher Columbus rank of Knight, an honor usually reserved
for Dominican citizens or military, at a ceremony at the National Palace.
Only a handful of non-civilian foreign-born individuals have received the
award, which honors distinguished service to the country or humanity,
since it was established in 1937.
Two-year-old twins Maria and Teresa Tapia and their family also
attended the ceremony. The girls, who had been joined at the abdomen
and shared several organs, were treated by a variety of specialists during
their time at CHoR. Dr. Lanning said he accepted the award on behalf of all
the individuals who contributed to the girls’ success.
Welcome
Children’s Hospital of
Richmond at VCU (CHoR)
is committed to recruiting
and retaining nationallyrecognized clinicians,
outstanding educators and
innovative researchers.
Please join us in welcoming
these physicians to the
CHoR team:
Patricia A. Lange, MD
Associate Professor of Surgery
and Pediatrics, Division of
General Pediatric Surgery
Jose L. Muñoz, MD
Professor of Pediatrics,
Division of Infectious
Diseases
9
Community
Guests Will Feel Like Kids Again at Annual Ball
Children’s
“Martha and I have a
Hospital
real passion for children
Foundation’s
and the hospital,” said
49th annual Ball will
Cameron, whose teenage
take guests through
daughter was a Children’s
the looking glass, into a
Feeding Program patient
royal castle, through a
as a toddler, “and we
fairy garden and to other
wanted our theme to
imaginative venues as
reflect that.”
part of this year’s theme,
A white tent featuring
“Through the Eyes of
strategically-placed
a Child.” Organized by
lights and wide use
the Foundation’s Junior
of blues, greens and
Board, the Ball will
corals will take guests
transform the Country
under the sea while
Decorations Co-Chair, Kristen Goode (seated), Ball Co-Chair, Martha Bowden (middle), and local artist, Liz
Kellinger, painted the old fashioned carousel scene during the Junior Board’s Ball decorating workshop in
Club of Virginia into
rope ladders and other
March. Behind them is one of the decorations for The Nutcracker room. (Photo by Doug Buerlein)
visions of childhood
props will transform
fantasy during the Nov. 2 event.
one of the club’s dining rooms into a two-story treehouse. Images of the
Planning for this year’s event began last fall with the theme selection. children who benefit from hospital programs will be displayed on the
transformed porch playground, and Children’s Hospital Foundation’s
The Junior Board’s 50 members were then divided into 11 committees
della Robbia symbol will be featured in a stained glass window being
to handle everything from corporate and ad sponsorships to public
designed for the castle area.
relations and reservations.
“Everyone chips in and does what she can,” said Martha Bowden,
This year’s Presenting Ball Sponsor is Davenport & Company LLC.
who is co-chairing the Ball with Cameron Cummings. “Our board
Corporate sponsors as of April are Alterra Specialty; Ampa Events; Car
members share a passion for wanting to help children.”
Pool, LLC; Cellular Sales, Verizon Wireless Premium Retailer; circle S
studio, Strategic Branding & Design; LeClairRyan; Kinloch Development
With the guidance of the Ball’s Decorations Co-Chairs, Kristen
Company; Luck Stone; NewMarket Corporation; Owens & Minor, Inc.;
Goode and Kate Houck, each room, walkway and terrace at the Country
VCU Health System; and Worth Higgins & Associates.
Club of Virginia will showcase a different childhood theme. Local
artist, Liz Kellinger, created design outlines, and in March, Junior
Proceeds from the 2012 Ball will benefit the establishment of the
Board members began painting wall scenes including an old fashioned
Pediatric Obesity Treatment Center at Children’s Hospital of Richmond’s
carousel, characters from The Nutcracker ballet, and images from
Center for Endocrinology, Diabetes and Metabolism. For ticket or
the book, Where the Wild Things Are, to decorate various areas of the
sponsorship information, visit www.chfrichmond.org/ball or call
club. Rooms will have different color schemes, and some will feature
804-228-5814. The Ball will also be
cardboard cutouts of wild things, shields, beach balls and sand castles,
promoted through social media channels,
thanks to donations from Richmond Corrugated Box.
Facebook and Twitter.
Local Businesses Sponsor
Foundation Icon Sales
Stop by Bobalicious in Chesterfield Towne Center’s food court or Baskin Robbins on Forest
Hill Avenue through June 30, and support Children’s Hospital Foundation by purchasing a
Foundation icon for $1. Enjoy a sweet treat and help the many patients supported by the
Foundation.
For more information about how your business or organization can sponsor an icon
fundraiser, contact Stephanie Allan at 804-228-5827 or [email protected]
10
FOR OUR CHILDREN
Local Celebrities Put on their Dancing Shoes for Kids
E
ight local celebrities added “dancer” to their resumes this spring as
part of the second annual Dancing with the Richmond Stars event
to benefit Children’s Hospital Foundation. Organized by the MCV
Hospitals Auxiliary and presented by C&C Electrical Services, Inc., the
March 16 event raised $72,000 for Children’s Hospital of Richmond at
VCU’s (CHoR) Child Protection Team, which provides care for children
who are victims of abuse and neglect.
The Child Protection Team, the only source to treat abused and
neglected children in the Greater Metro Richmond area, operates out of
the hospital’s Pediatric Emergency Room on CHoR’s MCV Campus. The
team receives referrals from pediatricians throughout central Virginia and
provides them with a resource that can be accessed 24 hours a day and
seven days a week for immediate evaluation. The specialized team also
runs an outpatient clinic in the facility, offering appointments for medical
examinations for suspected cases of abuse and neglect.
“The MCV Hospitals Auxiliary was looking for a new event,” said Karen
Shudtz, event co-chair, of the decision to host the first Dancing with the
Richmond Stars in 2011, “and it seemed an appropriate time to join forces
with Children’s Hospital Foundation to raise funds for children. We are so
pleased to play a part in benefiting and celebrating all of the important
work being done at Children’s Hospital of Richmond.”
After the success of last year’s program, the 15-person auxiliary
board planning committee, led by Karen and her co-chair, Charlotte
Roberts, was excited to continue the event in 2012. Celebrities and
their professional dance partners from Rigby’s Jig Dance Studio began
rehearsing in January and practiced for at least 15-20 hours before the live
performance. Andrew Freiden, NBC12 meteorologist, also donated his
time to serve as the event’s emcee.
Each dancer was awarded special recognition like Fanciest Footwork
and Most Entertaining, but top honors went to Leslie Wyatt, RN, MS, Vice
President of Children’s Services and Executive Director of CHoR, for her
Members of the Dancing with the Richmond Stars event committee presented a check
for $72,000 to representatives from VCU Health System, Children’s Hospital of
Richmond at VCU (CHoR) and Children’s Hospital Foundation in April. Pictured left
to right are Maria Curran, Vice President of Human Resources, VCU Health System;
Penny Stygar, Event Committee Member; Judy Collins, Event Committee Member;
Eleanor Goode, Chairman, Children’s Hospital Foundation; Dr. Robin Foster, Director
of Pediatric Emergency Services, CHoR; Susan Richards, RN, Nurse Manager,
Pediatric Emergency Department, CHoR; Aynsley Perkins, Child Protection Team
Coordinator, CHoR; Mary Vetrovec, Event Committee Member; Diana Best, Treasurer,
MCV Hospitals Auxiliary; Karen Shudtz, Event Co-Chair; Charlotte Roberts, Event CoChair; and Jo Ann Barton, President, MCV Hospitals Auxiliary.
spirited East Coast Swing. A People’s Choice award, given to Coleman
“Coley” Wortham, III, Chairman & CEO, Davenport & Company LLC, was
added this year in memory of 2011 celebrity dancer, Russ Palmore, who
unexpectedly passed away a few weeks after last year’s show.
Other celebrity dancers were Heidi W. Abbott, Counsel, Hunton &
Williams; Lou Gambill, Co-owner, Fraîche on the Avenues; Reggie Gordon,
CEO, American Red Cross, Virginia Capital Region; Martin Rubenstein,
Owner, Martin Interior Design; Kat Simons, DJ, Lite 98; and Dianne Harris
Wright, Board Member, Massey Cancer Center & MCV Foundation.
Bowlers Battle for Fundraising Championship
Children’s Hospital Foundation’s 18th Annual Bowl-A-Thon and 5th Annual Battle of the
Banks brought together more than 100 competitors to raise $10,800 for the Foundation.
The event was supported by strike sponsors U.S. Bank, Union First Market Bank and VCU
Center for Sport Leadership.
“For years, one of my favorite events has been the Children’s Hospital Foundation
Bowl-A-Thon,” said Danise Harmon, Business Manager, Center for Sport Leadership. “In
the past, I’ve solicited donations personally, but this year the Center for Sport Leadership
was able to come on as an official sponsor. We are excited to provide financial support to
continue Children’s Hospital Foundation’s mission of caring for children.”
Top additional fundraisers included Elaine Arens, Hill Phoenix, $1,493; Ben Edgell,
Union First Market Bank, $905; and Liane Cramer, Cramer Landscaping, $495. The top
scoring team in the Bowl-A-Thon was Direct Mail Solutions with 2,250 pins, and the top
team in the Battle of the Banks segment was Union First Market Bank with 1,990 pins.
young at h eart
I SUMMER 2012
Pictured (l-r), Danise Harmon bowled with Center for Sport
Leadership students Brittany Usera, Amanda Friday, and Dana Slater.
Danise’s daughter, Daricka (not pictured), rounded out the team.
11
With Our Thanks
Children’s Hospital Foundation recently received gifts
from the following:
• Right Hand Foundation - $10,000
• Colonial Hog Chapter #1381 - $5,979
• Direct Mail Solutions - $2,500 from the River City Kids
Campaign
• Fraternal Order of Eagles – Grand Aerie - $2,000
• Thomas & Betts Power Solutions - $1,552
• Saint Andrews Society of Richmond - $1,350
• Giving Tree School - $1,025
• Patient First Corporation - $1,000
Children’s Hospital Foundation recently received the following
estate gifts:
• Ms. Margaret H. Ostergard - $10,000
• Ms. Ethel C. Kelly - $10,000
• Mrs. Eileen T. Honkala - $1,000
In Memoriam
Children’s Hospital Foundation
wishes to acknowledge with great
sadness and gratitude the passing
of Roderick Bell Mathews on April
27, 2012 after a courageous battle
with cancer. Rod was a long-time
friend of Children’s Hospital,
and he served as a member and
president of the hospital’s Board
of Trustees for many years. In
2006 Rod became a member of the
Board of Directors of Children’s Hospital Foundation where he
continued to serve until his death. He will long be remembered
for his great concern for the welfare of the children of our
community. Through his selfless generosity he has touched the
lives of thousands of children and continued to make their lives
better. Everyone in the Children’s Hospital Foundation family will
miss Rod for his ability to lead, his passion for bringing fairness
to any situation, his compassion for others and his “spectacular”
outlook on life.
Play Ball
Children’s Hospital of Richmond at VCU
patient Tyler Graves, who was featured
in the Summer 2011 issue of Young at
Heart, recently achieved one of the main
goals he set after finishing treatment for a
malignant brain tumor — getting back on
the baseball field. Now 13 years old, Tyler
returned to school full time in September
2011 and played his first baseball game
post-treatment in April, as pitcher and
infielder for the Stafford Baseball League
14U Babe Ruth Prep League.
As a national philanthropy of Kappa Delta Sorority, Children’s
Hospital Foundation has been the beneficiary of the organization’s
generous support for 114 years. The Foundation recently received
gifts from the following alumnae and collegiate chapters:
• Epsilon Pi, Virginia Tech - $6,758
• Beta Zeta, University of South Carolina - $500
• Greater Atlanta Alumnae of Kappa Delta - $371
• Bartlesville, Oklahoma Kappa Delta Alumnae - $200
• Delta Omicron, Eastern Kentucky University - $100
• West Suburban Alumnae of Kappa Delta - $75
Spring Break Memories
Residents of the Transitional Care Unit (TCU) at
Children’s Hospital of Richmond at VCU went on a
fishing trip to Harrison Lake as part of the unit’s annual
spring break camp April 9-13. Bass Pro Shops donated
12 fishing poles and tackle for the children to use on
the trip and also provided Bass Pro Shops hats to keep
them protected from the sun. In addition to supporting
this outing, Bass Pro Shops sponsored a Bass Fishing
Tournament on April 1, which raised $1,000 for
Children’s Hospital Foundation.
12
1
Snapshots
1
Representatives from
Sweet Frog and its mascot
visited patients, including
8-year-old Lydia Crouch,
in the Pediatric Intensive
Care Unit at Children’s
Hospital of Richmond at
VCU (CHoR) this spring. The
frozen yogurt chain made a
$1,500 donation to Children’s
Hospital Foundation, which
will be used to benefit the
Child Life Department.
The mascot also delivered
t-shirts, hats, and gift cards to
children at the hospital during
the visit.
4
4 More than 1,300 stuffed bunnies arrived at CHoR’s Brook Road Campus in style
2
on March 31 during the 16th Annual Bunny Run, sponsored by the Corvette Club
of Richmond. Cecile Custer, who organized the event, explained, “The Bunny Run is
important to me because I was hospitalized several times during my childhood, so
I know the first-hand impact something as simple as a fuzzy bunny can have on a
sick child.” Cecile (center) and other members of the Corvette Club visited patients,
including Iceis, 9, and Kyle, 12, during the afternoon activity.
5 Ruth Sangiuliano,
Hospital Education Program
(HEP), held up the magic
mirror for Jerziah Moore,
15, who played the Beast
in a performance of Beauty
and the Beast performed in
April by 30 children from
CHoR’s Transitional Care
Unit. Organized by the
HEP, the musical program
featured elaboratelydecorated sets created
by the children with help
from HEP and Recreation
Therapy staff.
5
2 Spirit Halloween Stores raised $28,490 for the Child Life Department at CHoR’s MCV
Campus through in-store fundraisers last fall. Patients were also treated to a party
with costumes and pumpkin painting by Spirit staff in October. Pictured (l-r) are Leslie
Wendorf, Mid-Atlantic Zone Manager, Spirit Halloween; Tom Howell, Director of Stores,
Spirit Halloween; Liz Smith, RN, PICU Nurse Manager, CHoR; Ray Smith, Special Project
District Manager, Spirit Halloween; Heather Kinney, CCLS, Senior Child Life Specialist,
CHoR; Siri Bream, CCLS, Child Life Specialist, CHoR; Stephanie Allan, Director of Special
Events, Children’s Hospital Foundation; and Jeniece Roane, RN, MS, Nursing Director,
Women’s and Children’s Health, CHoR.
3
3 Members of the Senior Board Gift Shop Committee presented a check for $10,000
in February to benefit the Transitional Care Unit and Children’s Feeding Program at
CHoR’s Brook Road Campus. Pictured (l-r) are Brenda Campbell; Maureen Dillard; Chris
Broughton-Spruill, President, Children’s Hospital Foundation; Nancy Jaffe; Susan Terry,
Gift Shop Chairman; June Tuttle; Polly Wrinkle; Eleanor Hall; and Betty Spiers.
young at h eart
I SUMMER 2012
6
6
Guests at Children’s
Hospital Foundation’s
Health & Safety Day
learned about water safety
from the Richmond YMCA
as part of the morning’s
activities on April 17.
More than 800 children
ages 4-7 attended the
annual event held on
the front lawn of CHoR’s
Brook Road Campus and
sponsored by Food Lion.
The event was supported
by 30 community
partners, including the
Richmond Police, Bomb
Squad, Department of
Fire and Emergency
Services, American Red
Cross, Commonwealth
Dermatology, and others.
13
Family Fun & More
calendarof events
Visit www.chfrichmond.org for the
most up-to-date event information.
All events benefit Children’s Hospital Foundation.
FRIDAY, JULY 20 – SUNDAY, JULY 22
How can a lemonade stand raise
$726,000? By selling one cup at a time!
Over the past 10 years, Anthem
LemonAid has raised over $726,000 for
childhood cancer treatment and research
in Central Virginia. All monies raised
support Hematology/Oncology services at
Children’s Hospital of Richmond at VCU
(CHoR). This year, proceeds will benefit the Bone Marrow Transplant program, which
serves children with various forms of blood cancer, such as leukemia.
Each registered participant receives a free LemonAid kit complete with lemonade,
cups, a pitcher, balloons, stickers and signage to help decorate the stand. We provide
the supplies; you pick the spot to set up your stand. Elephant Auto Insurance will also
donate $10 to a designated online LemonAid stand of your choice when you complete
a free Elephant Auto quote online.
Children, families, friends, and businesses are invited to set up lemonade stands
and be part of the miracle that helps “put the squeeze” on childhood cancer. To
register, visit www.anthemlemonaid.com or call 804-228-5934.
SATURDAY, AUGUST 18
Food Lion’s Tour de Lions
Register for a 5, 35, 65
or 100-mile ride to raise
funds for Children’s
Hospital of Richmond at
VCU’s (CHoR) Pediatric
Emergency Room.
Refreshing rest stops,
SAG cycling assistance,
maps and cue sheets will
be provided. Starts and
finishes at CHoR’s Brook Road Campus, 2924 Brook Road, Richmond.
Join a team or register as an individual by Aug. 17 at 5 p.m. Registration is
available at tourdelion.webs.com. Registration is $20 for adults and $10 for children
under the age of 18, with additional fundraising strongly encouraged as part of
participation.
14
MARK YOUR CALENDAR
Cars for Kids
June 1 to 30
Purchase a car from Enterprise Car Sales in June and
finance through a participating credit union. For each
qualifying sale, $250 will be donated to Children’s Miracle
Network Hospitals. 8605 Midlothian Turnpike, Richmond.
www.chfrichmond.org.
Mosaic Community Give Back
Wednesday, June 13
Mosaic Café and Catering will host
a “Give Back” night where 13% of
the pre-tax receipts from dinner
sales will be given to CHF (excludes
alcohol sales). Individuals attending
on behalf of CHF simply need to let
the hostess know they are part of
the fundraiser. 5 to 9 p.m. 6229 River
Road, Richmond.
Panera Bread Café Cookie Sales
July 16-30
Purchase a flower cookie from any Richmond-area Panera
Bread Café, and 25 cents will be donated to Children’s
Miracle Network Hospitals for every cookie sold.
Rod Run Car Show
Saturday, July 21
Join us for the 27th Annual Early Bird Rod Run Car Show,
presented by Virginia Street Rods. This event is open
to pre-1983 domestic and import cars and trucks only.
General admission is $3 (free for children under 12).
9 a.m. to 3 p.m. Victory Tabernacle Church, 11700 Genito
Road, Midlothian. For more information, visit
www.virginiastreetrods.org/registration.htm.
SATURDAY, SEPTEMBER 22
Dairy Queen’s Miracle Treat Day
Thursday, July 26
Enjoy a Blizzard from a local
participating Dairy Queen, and
at least $1 per Blizzard will be
donated to Children’s Miracle
Network Hospitals. Place your
office orders the day before so you
don’t miss this tasty treat. Visit
www.chfrichmond.org for a list of participating stores.
Richmond Chapter of Credit Unions
Golf Tournament
Monday, July 30
4-person Captain’s Choice format. Registration is $420/
team or $105/person and includes green fees, cart and
lunch. 9 a.m. shotgun start. Richmond Country Club,
12950 Patterson Avenue, Richmond. To register or learn
more, contact [email protected]
Stars on the Water
Friday, August 17 – Sunday,
August 19
Jimmy Buffett fans, tropically-minded Virginians, and just
plain fun folks should mark their calendars for the 18th
Annual Stars on the Water weekend party, presented by
the Parrot Head Club of Richmond. Features tropical rock
entertainment, games, and great raffle and auction prizes.
Sheraton Park South, Richmond. www.phcor.com.
Belle Couture Fashion Show
Saturday, August 25
Join us for “Because You Loved Me,” a charity fashion show
presented by Belle Couture Image and featuring a silent
auction, mime performance, vendors, hors d’oeuvres, and
much more. Tickets are $50. 7 p.m. Glen Allen Cultural Arts
Center, 2880 Mountain Road, Glen Allen.
Aireco Foolish Open
Golf Tournament
Thursday, September 20
Register your foursome (or sign up as an individual) for
this captain’s choice tournament where the golfer with
the highest score is the winner. $600 registration fee
includes golf for four, acknowledgement of your company
or name on a “Miracle Sponsor” sign and lunch after the
event. 9 a.m. tee off. The Crossings Golf Club, 800 Virginia
Center Parkway, Glen Allen. Contact Nancy McDaniel at
804-359-2468.
young at h eart
I SUMMER 2012
Mark your calendar for our 10th
anniversary event, featuring a new
race format perfect for the whole
family. Walkers and runners of
all ages are invited to participate
in our 4-mile course, while the
Superkid Adventure obstacle
course provides a special opportunity and challenge for children between the ages of
5 and 10. A post-race breakfast, kids’ activities, decorated stroller contest, music and
more will immediately follow the race.
Start times are 8:30 a.m. for the Superkid Adventure obstacle course and 9:00 a.m.
for the 4-Mile Walk/Run. Registration for the Superkid Adventure obstacle course is
$10 on or before September 7 or $15 after. For the 4-Mile Walk/Run, registration is $25
before September 7 or $35 after.
Race course begins and ends at Children’s Hospital of Richmond at VCU, Brook
Road Campus, 2924 Brook Road, Richmond. Register online today at www.CHFRace.org.
Contact 804-228-5827 or [email protected] for more information, including
sponsorship opportunities.
save the date
Extra Life Tournament
Saturday, October 20
Play Angry Birds on your iPhone, Farmville on Facebook or the latest PS3 game—it all
counts in this 24-hour gaming marathon benefiting Children’s Miracle Network Hospitals.
Ask friends and family to support you for as little as $1/hour and raise funds to help kids.
www.extra-life.org.
Torch Relay
Wednesday, October 31
Celebrate Halloween with Children’s Miracle Network Hospitals. Enjoy a 5K walk
beginning and ending on the front lawn of Children’s Hospital of Richmond at VCU’s
Brook Road Campus, 2924 Brook Road, Richmond. Come in your best costume to win
great prizes. Registration is $30 for adults and $5 for children ages 3-12, with additional
fundraising encouraged. www.torch-relay.org/richmond.
50s Sock Hop
Saturday, October 27
Event rescheduled from June. Join us for a
traditional “sock hop” featuring food, cocktails,
vintage music and other entertainment. Richmond
International Raceway, Old Dominion Building, 600
East Laburnum Avenue, Richmond. www.rir.com.
15
CHILDREN’S HOSPITAL FOUNDATION
2924 Brook Road, Richmond, VA 23220-1298
804-228-5814
www.chfrichmond.org
NONPROFIT ORG.
U.S. POSTAGE PAID
RICHMOND, VA
PERMIT 1146
ADDRESS SERVICE REQUESTED
www.facebook.com/chfrichmond
Making Life a
Little Sweeter
Children’s Hospital Foundation supports the
children and families at Children’s Hospital of
Richmond at VCU, our region’s full-service children’s
hospital. Last year alone, more than 50,000 children
received care at the hospital. As we near the end of
our fiscal year on June 30, please consider making
a donation that will help ensure that these children
continue to have access to world-class pediatric
health care close to home, right here in Central
Virginia.
Please give our children the support they deserve.
www.chfrichmond.org
Harold Parker IV’s energy level has taken off since receiving a liver
transplant at Children’s Hospital of Richmond at VCU last fall. The
4-year-old loves toy cars, the Dallas Cowboys, Spiderman and playing
with his 5-year-old sister and has big plans for his next birthday
celebration. Read more about Harold on page 5.