2007 Starlight Annual Repor t Every family, Everywhere, Every day The wonderful services provided by Starlight are key components in the provision of total care. These services not only change the hospital and illness experience for so many children and their families, but also enhance the capacity of health professionals and the health system in delivering the best possible care. Professor Les White Executive Director, Sydney Children’s Hospital Starlight’s Mission To brighten the lives of all seriously ill and hospitalised children and their families throughout Australia. Contents Chairman and CEO report 2 National Board of Directors 4 Starlight’s Values About Starlight 6 Starlight’s impact 8 Shine brightly for seriously ill children and their families 2007 at a glance 10 Work as one cohesive and caring team 2008 and beyond 12 Take pride in our achievements Expanding our reach 14 Thank you to our supporters 20 Corporate governance 26 Financial summary 27 Frequently asked questions 34 How to support Starlight 36 Be responsible for Starlight’s performance Share ideas, knowledge and experience Chairman and CEO Report Every day we draw inspiration from the strength of the thousands of children and young people living with chronic medical conditions and physical disabilities. While their medical and emotional needs may be complex, their biggest challenge can be to simply feel ‘normal’ and enjoy ‘normal’ childhood experiences. ‘Ordinary’ is something these kids and their families can only dream about – for them, ‘ordinary’ is ‘extraordinary’. At Starlight we are all deeply passionate about achieving the best outcomes for kids and their families. This underpins our every decision. When there is a complicated issue to resolve Starlight has only one criteria: what is in the best interest of the children? By delivering the best programs possible, that are meaningful and relevant, we are being true to our mission and values. To achieve continual improvement, we listen to our stakeholders, adapting to changing environments and healthcare needs. Each year there are over 600,000 child admissions to hospitals in Australia, of which, Starlight programs currently only reach “1 in 3”. Our ultimate goal is to enable every seriously ill and hospitalised child and family in Australia to access our programs and services, everywhere and every day. Currently, we are well on the way to making this a reality and the following report features many of Starlight’s recent achievements. In 2007 we extended our reach into the homes of 10-18 year olds living with illness or disability, with the pilot launch of Livewire, our online program focused on connecting kids to each other and the outside world. We also established a permanent presence in the Northern Territory with Captain Starlight now regularly visiting hospitalised children and remote, Indigenous communities. To ensure we can meet future demand with the most relevant programs, we completed a comprehensive ‘Needs Analysis’ research study with families of children who are seriously ill or living with a disability, with a particular focus in metropolitan, regional, rural and Indigenous communities. By understanding their needs and challenges, and the impact our programs have, we can plan most effectively for the future. 2 “When there is a complicated issue to resolve, Starlight has only one criteria: what is in the best interest of the children?” In the coming years our focus will be on ensuring Starlight is well positioned to support children and their families alongside the healthcare system. We will focus on evolving our program strategy to embrace learnings from our Needs Analysis study and ongoing program evaluation. By introducing the most efﬁcient systems, investing in development initiatives for our team, and by continuing to work closely with our valued supporters, including our donors and volunteers, we can be sure that their Starlight experience is positive and enriching. Starlight’s programs signiﬁcantly enhance the wellbeing of a child throughout their illness, which is often over many years. There is still a long way to go to reach our goals and we can’t do it without your support. The incredible efforts and generosity of our team, volunteers, supporters and partners is having a resounding impact on these brave kids and their families. Jill Weekes - Chief Executive Doug Jukes - Chairman Thank you for your dedication and commitment. It is due to the generosity of people like you that we can provide vital support to seriously ill children, young people and their families right across Australia. We look forward to working together to achieve our ultimate aim – every family, everywhere, every day. Jill Weekes - Chief Executive Doug Jukes - Chairman 3 National Board of Directors The Starlight Children’s Foundation Australia Board of Directors consists of fourteen independent non-executive directors and one executive director. Combined, the Board brings a wide range of business and commercial skills to Starlight, spanning numerous industries and sectors. STARLIGHT LUMINARIES “Luminary – leading light, achiever, celebrity, personality” Neil Perry Kieren Perkins AO Sir William Dean AC KBE Starlight is fortunate to have many loyal supporters, however from time to time there are those people who really go ‘over and above’ for Starlight, showing their commitment and publically supporting the Starlight cause to bring great beneﬁt to Starlight families. A Starlight Luminary is such a person, someone who is a ‘leading light’ for Starlight using their inﬂuence to great and positive effect. We are delighted that in 2007 Neil Perry one of Australia’s premium gourmet chefs and Olympic swimming legend Kieren Perkins AO accepted this prestigious position as our ﬁrst Starlight Luminaries. Their continued support will help Starlight achieve our goals in the coming years. STARLIGHT PATRONS “Patron - supporter, protector, advocate, champion” For many years Starlight has enjoyed the support of our two core patrons, Sir William Dean AC KBE and John Newcombe AO OBE. John Newcombe AO OBE 4 Doug Jukes - Chairman “I am passionate about Starlight because I have witnessed our ability to lift the spirits of seriously ill children right when they need it the most. Starlight works in conjunction with the medical profession and provides a total approach to care using innovative programs of distractive therapy. From all the feedback of health professionals and personal observation, I know that this is an essential part of the healing process.” Ian Kennedy OAM - President “Starlight is truly there for the children. Once, I granted a wish for a 14 year old boy who was dying from muscular dystrophy. Leaving his home one night after looking at the pictures of his father carrying him on his back into the porpoise pool, his mother said to me ‘it will be a wonderful place to go to when he’s gone’. That we can help Starlight take children and families in despair to such places I ﬁnd astonishing, humbling and rewarding all at the one time.” Jill Weekes - Chief Executive “Making a positive difference to sick children is so rewarding – I see so many children and families who are confronted by real challenges. Fortunately, Starlight can help them smile, laugh and cope better. Having now been CEO for ten years, it’s been the most wonderfully rich, challenging and rewarding journey and continues to be so. Working here reinforces my faith in human nature, shows me the positive inﬂuence that Starlight has and the important impact individuals can have, working with and supporting Starlight.” “ “ Top Row: Professor Les White, Peter Butler, Mark Burrowes Middle Row: Alison Deans, Carolyn Kay, Laura Andersen, Dr Merci Kusel Front Row: Doug Jukes, Jill Weekes, Ian Kennedy Absent: Philip Hennessy, Neil Flett, Stephen Johnson, Kieren Perkins, Graham Watman Why I’m passionate about Starlight… Dr Merci Kusel “I have personally witnessed the calming effect Captain Starlight’s presence had on a petriﬁed child about to undergo a painful diagnostic procedure.” Kieren Perkins “After having a serious accident in my childhood, I understand the stress, discomfort and loneliness that hospital treatment brings.” Mark Burrowes “Doctors heal their bodies and Starlight helps heal the spirit of the kids and their families.” Steve Johnson “Without the work of organisations such as Starlight it can be very difﬁcult for children and their families to see a light in the dark during these painful and often stressful times – and so the need for such work is profound.” Peter Butler “Starlight is a true pioneer...” Alison Deans “As a mother of three young children I’ve seen the power of Starlight programs.” Laura Anderson “Starlight offers children burdened with serious illness the chance to laugh and feel normal.” Philip Hennessy “Starlight’s focus and initiatives allow me to make a ‘right now’ difference to those children and families facing extra challenges.” Neil Flett “The challenge now is to extend Starlight’s services to the hundreds of thousands still untouched by the many Starlight services.” Graham Watman “Because we aren’t content with brightening the lives of only a third of all seriously ill kids, but are constantly ﬁnding ways to reach every single seriously ill and hospitalised child in Australia.” Carolyn Kay “The beneﬁts of the happiness that Starlight brings to these children and their families is evident time and time again.” About Starlight Living with illness or injury can cause enormous strain in the lives of children and their families. The pain, loneliness and isolation that sick children feel can dominate their lives. They often miss out on normal experiences healthy children take for granted. Starlight’s programs and services deliver meaningful beneﬁts. Research has shown that our work: Many children will live with their condition all their lives, and for seriously ill children physical treatment is only part of the solution. n Stimulates the senses and lifts the spirits Since 1988, the Starlight Children’s Foundation has been providing innovative programs designed to lift the spirits of these children and their families when they need it most. n Provides a more positive experience during hospital treatment Starlight brings fun and laughter to children no matter what their illness or where they live. Delivered both in and out of hospital, Starlight’s programs provide a positive distraction to children, their siblings and their parents. n Provides essential respite from the strain of living with serious or chronic illness by giving a positive focus for the child and family n Promotes the healing process n Assists the medical care team in patient compliance n Enables important social connections with others facing similar challenges, and helps to maintain the family spirit Starlight is a national organisation with ofﬁces in Victoria, New South Wales, Queensland, South Australia, Western Australia and Northern Territory. This national structure allows Starlight to minimise its administration, fundraising and program delivery costs as infrastructure for the organisation is shared. “Starlight was like the gasp of air, in between being dumped by the waves” - John, Starlight Parent 6 CAPTAIN STARLIGHT STARLIGHT FUN CENTRES STARLIGHT ESCAPES Captain Starlight’s sole purpose is to bring smiles to sick children by distracting them from their illness and pain and engaging them with unique skills, companionship and entertainment. In the eyes of a child, Captain Starlight is a magical super hero bringing laughter, games, magic and all kinds of fun activities into their lives. The team of Starlight Captains work their magic across numerous Starlight programs. Starlight Fun Centres give kids the freedom to play what they want, when they want from their bedside. These mobile entertainment units have computer games, a CD and DVD player loaded with numerous movies, lifting children’s spirits during difﬁcult times. There are 478 Starlight Fun Centres in paediatric wards around Australia. Starlight Escapes offer families a much needed break from the stress of a child’s illness with a fun family experience. By providing simple, unexpected entertainment such as a night at the movies or a picnic in the park, the Starlight Escapes program brings families together and gives them a much needed respite from hospitals and treatment rooms. STARLIGHT WISHGRANTING LIVEWIRE A Starlight Wish is a dream come true for a seriously ill child. Sharing a special, oncein-a-lifetime wish brings a family together and is an experience that stays with them forever. In 2008, Starlight aims to grant 450 life changing wishes for children with serious and chronic illness. Livewire is an exclusive secure online community connecting 10 to 18 year olds living with serious illness or disability. Livewire gives these teens the opportunity to break through the isolation and loneliness they may suffer. It gives them the chance to meet in a safe environment and share their experiences, make friends, have fun and support each other. STARLIGHT EXPRESS ROOMS The Starlight Express Room is a place where Captain Starlight delivers a special brand of fun and entertainment, alongside the latest computer games, movies, crafts and activities. Kids too ill to leave their beds are also visited by Captain Starlight and can join in the fun via the daily Captain Starlight shows broadcast to their bedside TVs. There are 7 Starlight Express Rooms in Australia’s major paediatric hospitals providing a medical free respite for children and their families. STARLIGHT EXPRESS VANS Seriously ill children living in regional and remote areas face enormous challenges such as extended periods away from home for treatment, emotional hardship and isolation from their friends and family. Our Starlight Express Van program ensures that these children have the opportunity to experience the magic of Captain Starlight throughout the year as our vans travels across Australia. CLUB ADO The only facility of its kind in Australia, Club Ado (Princess Margaret Hospital, Perth) is a dedicated space for teenagers where they can hang out and escape the stress and boredom of hospitalised life. Made up of a broad range of interactive activities and with professional room hosts trained in various backgrounds to reﬂect the interests of adolescents, this initiative allows patients to support one another, meet new friends and discover hidden talents. It is Starlight’s aim to provide all paediatric hospitals with a Club Ado facility. 7 Starlight’s Impact Every day Starlight employees and volunteers devote their time to help bring much needed laughter and smiles to sick children and their families across the country. In 2007… n 80 highly trained professionals made up our passionate Captain Starlight team visiting children in hospitals, clinics and special schools every day. n 7 Starlight Express Vans reached more than 22,500 children during over 80 hospital visits. “The Starlight Express Room is a focal point, it’s a centre for activities for children in this hospital. I know that because the children are waiting at the door well before Starlight opens, n Captain Starlight entertained over 400,000 visitors across Starlight’s 7 Starlight Express Rooms. and they’re there at the very end and n 478 Starlight Fun Centres are in paediatric wards throughout 170 hospitals. they’re very disappointed to see the n 520 Starlight Escapes entertained more than 900 families. doors close. There’s so much activity in n Over 360 children had their Starlight Wish granted. n Starlight launched the Livewire pilot program. that room, that children tear in there at all times of the day to participate n Over 8,500 teens visited Club Ado. n Over 1,580 volunteers supported Starlight programs. and enjoy themselves.” - Dr Luce Dalla Pozza, Staff Specialist Oncology, Westmead 8 4 14 6 11 38 1 1 1 288 Captains Starlight Fun Centres Starlight Express Room Starlight Express Van Club Ado Volunteers Captains Starlight Fun Centres Volunteers NT 15 85 1 1 225 QLD Captains Starlight Fun Centres Starlight Express Room Starlight Express Van Volunteers WA SA NSW 26 214 3 2 489 ACT VIC 4 56 1 26 Captains Starlight Fun Centres Starlight Express Van Volunteers 16 57 2 1 376 Captains Starlight Fun Centres Starlight Express Rooms Starlight Express Van Volunteers 4 6 1 1 31 TAS 8 27 Captains Starlight Fun Centres Starlight Express Rooms Starlight Express Vans Volunteers Captains Starlight Fun Centres Starlight Express Van Starlight Wall Volunteers Starlight Fun Centres Volunteers 9 2007 At a Glance Thanks to the continuous support of our partners we are pleased to share with you some signiﬁcant milestones and achievements Starlight celebrated in 2007. Completion of the ‘50 Towns in 50 Weeks’ tour in conjunction with Caltex. Captain Starlight travelled over 40,000 kms to bring Starlight magic to remote and regional areas for the ﬁrst time. 10 Captain Starlight lands in the Northern Territory and now regularly reaches children in communities as far apart as Alice Springs and Gove, Darwin and Katherine. The ‘Starlight Wall’ is launched at Canberra Hospital providing hospitalised kids with ongoing interactive entertainment and distraction. “Starlight creates smiles, ends loneliness and fear and holds families like ours together.” - Lillian, Starlight Parent. Livewire pilot is launched. A secure online community where 10 - 18 year olds living with serious illness or disability can make friends and share experiences with their peers facing similar challenges. The ﬁrst Club Ado ofﬁcially launches in Perth, giving hospitalised teenagers a dedicated space of their own, with exclusive access to a games room, café, arts studio, media station and lounge. Starlight undergoes a comprehensive ‘Needs Analysis’ research study to identify how, in the future, Starlight programs should support seriously ill children, young people and their families, especially those in remote and regional areas. To respond to these needs Starlight develops a long term program strategy. 11 2008 and Beyond Our goal is to enable every child to access Starlight’s programs. This will require continual evolution and in 2008 we will focus on: The Livewire program membership will be opened up to ALL teenagers living with serious illness or disability. Hospital trials enabling bedside access for seriously ill teenagers will commence ensuring they can remain in touch with their peers and family even during medical treatment. 12 Starlight Escapes will evolve to provide more activities allowing even more families to relax and enjoy much needed fun time together. Our Starlight Wishgranting program will be expanded by 25%, with 450 life changing wishes planned for 2008. As part of our Regional Needs project we will begin Indigenous consultation and develop program models to optimise Starlight activities in remote communities. “It’s been a difﬁcult year healthwise for my daughter but also for the whole family. Seriously, Starlight is the only thing that enables us to all focus on something positive and generate lots of smiles.” - Kylie, Starlight Parent. 3 new Starlight Express Vans will be launched, 1 in QLD, in NSW and in the NT which will take Captain Starlight to regional hospitals and special needs schools on a more regular basis. A review of Starlight Fun Centres will be completed to evolve these into new dynamic, interactive units for the future. Final planning is underway for the ﬁrst ever Starlight Express Room in South Australia, due to open in the Women’s and Children’s Hospital in Adelaide in 2009. Planning will commence for new Starlight Express Rooms in the redeveloped Royal Children’s Hospital, Melbourne and the new Queensland Children’s Hospital in Brisbane, both due to open in 2011. Starlight will invest in a more sophisticated infrastructure with better technology, to ensure we maximise efﬁciencies as we continue to grow. 13 Expanding Our Reach We will expand our services geographically, offering relevant programs for more remote and regional areas. We will also deepen our programs for teenagers and young people with speciﬁc facilities to support their wellbeing by keeping them connected with ‘normal life’ and their peer group both in and out of hospital. 50 Towns in 50 Weeks In 2006 Caltex celebrated 50 years of reﬁning in Australia, and to commemorate this milestone the ‘50 towns in 50 weeks’ tour was developed in conjunction with the Starlight Children’s Foundation. The tour represented the single biggest community initiative ever for both Starlight and Caltex. Captain Starlight traveled almost 40,000kms over a 50 week continuous tour around regional areas of Australia. Visiting numerous hospitals, special schools and remote communities, the Captains put on magic shows, karaoke competitions and computer game challenges and painted hundreds of kid’s faces. The 50 towns in 50 Weeks tour increased Starlight’s reach to remote areas including towns such as Nhulunboy in the Northern Territory as well as raising signiﬁcant funds through Caltex fundraising activities. A documentary, ‘Miles for Smiles’, screened on Channel 9 and featured the story of Captain Starlight’s trip across Australia and the incredible individuals that were touched by Starlight’s magic along the way. “The 50 Towns tour has set an amazing precedent for what can be achieved when two like minded organisations come together for the beneﬁt of communities across Australia, and work in a truly symbiotic partnership. We are all extremely proud of this achievement.” 14 – Des King, Managing Director & CEO, Caltex Australia Limited. Starlight reaches the NT “It is a joy to see the transformation when Captain Starlight visits, as so many children, especially Indigenous kids, are withdrawn and suddenly they come out of their shell. It makes our job so much easier and the hospital a happy place.” - Christine Finlay, Director of Nursing, Royal Darwin Hospital, NT Healthcare for children in the Northern Territory presents unique needs and challenges, one of which is reaching Indigenous children in remote areas who face cultural as well as geographical issues. Around 30% of the population in Northern Territory is Indigenous, but more than 90% of the child admissions to paediatrics wards in Alice Springs and Darwin are Aboriginal. These children typically remain in hospital for more than twice the average time as those in a metropolitan hospital in the southern states. Historically, reaching these children has been extremely difﬁcult for Starlight however, in late 2006 Starlight established a permanent presence in the NT. Captain Starlight is now bringing fun and laughter to hospital wards and clinics in Darwin, Katherine, Alice Springs and Gove on a regular basis. To meet the unique needs in the NT, basic health and hygiene tips have helped to form part of the Captains’ fun and interactive shows. When visiting the Yirrkala health clinic the Captains’ shows focus on messages around the importance of nose blowing, ear cleaning and washing hands. Thanks to a new Starlight Express Van, Captain Starlight can also visit children living outside major regional centres. Starlight Wall, Canberra The Canberra Hospital is the primary public health facility serving the ACT and surrounding regions in southern NSW. Starlight launched the Starlight Wall in early 2007 to provide an interactive facility within Canberra Hospital’s existing play therapy room. In addition to the Starlight Wall, two Captain Starlights are now based in the ACT, spending three days a week in the Canberra Hospital as well as visiting hospitals on a monthly basis in surrounding towns including Goulburn, Albury, Wodonga, Wagga Wagga and Grifﬁth. 15 “We would love to meet other parents who understand our son’s condition so we could talk it over with them. The medical people are not really allowed to tell you what to do. It would just be so good to know another family and what they are doing.” - Geoff, Starlight Parent. Needs Analysis In 2007 Starlight undertook a Needs Analysis research project to help us better understand the experiences of children and young people - who have a serious illness, chronic health condition or disability - and their families. Funded by the Macquarie Group Foundation, the groundbreaking initiative will provide vital information on how Starlight can expand and enhance its programs. The consultation program involved almost 300 people including families, children, health professionals, service providers, Starlight volunteers, academics, government agencies and others. Over 70 family members took part and it is their stories and experiences in particular that have helped to bring a new perspective to existing knowledge. The ﬁnal phase of this research involves consulting Indigenous and isolated communities. Around 40% of children reside in regional Australia and Starlight currently has limited means in reaching these kids. One of the most exciting outcomes of this project will be the development of more comprehensive and sustainable regional models. “The work Starlight do is something that we will never do. That isn’t because we don’t believe it is important, it is because there are so many other services that we have to provide ﬁrst. The reality is we operate in an environment of scarce resources and if Starlight wasn’t here, the types of things they do just wouldn’t happen.” - Health Professional 16 “In the case of families living in regional and remote areas, those problems are compounded by the need to travel long distances for treatment and the extended family separation this often entails. In supporting this study, we hope that some of the pressures on regional families can be alleviated and the needs of seriously ill children better addressed.” - Julie White, Head of the Macquarie Group Foundation “I was with her in hospital for every single day of the nine months. How do you describe it? You are so desperate for things to do or talk about but even things you would normally talk about are taken away from you because you are limited to what goes on in this one, tiny room.” - Amanda, Starlight Parent 17 Young People and Teens The needs of adolescents are quite speciﬁc. Young adults need opportunities to be independent, to make choices and to interact with their peers in a safe and private environment. This was the primary motivation for Starlight to develop the pilot program of Livewire, an exclusive, secure online community connecting 10 to 18 year olds living with serious illness or disability. Livewire gives these teens the opportunity to break through the isolation and disconnectedness they may suffer. It gives them the chance to connect with their peer group and share their experiences, make friends, have fun and support each other – even as they cope with medical treatment or prolonged hospital stays. Livewire is all about the members, who can visit the chat room to connect with others, start a blog and keep up to date with all the latest news on music, movies and sports gossip. The Livewire website has three separate communities for three age groups; 10-12 years, 13-15 years and 16-18 years, ensuring all content, language and chat topics are relevant and age appropriate. This is one of Starlight’s largest and most signiﬁcant programs. Ultimately, the aim of the program is to connect these young people not only with their peers, but with their parents, siblings and friends. “The hosts and members are all absolutely friendly and brilliant and it’s good to get to know people that might have been through what I’ve been through.” - Livewire Member “Livewire is a really cool place for sick kids to hang out and talk to others with similar conditions. This is a big plus for those kids who live out of the city.” - Livewire Member 18 club ADO The only facility of its kind in Australia, Club Ado is a dedicated space for teenagers, where they can hang out and escape the stress and boredom of hospitalised life. Made up of four distinct zones, each providing different activities and distractions, Club Ado is a collaborative initiative managed by Starlight and Perth’s Princess Margaret Hospital. Imaginations are unleashed with painting and arts in the Creative Cosmos room, the Star Studio has all the latest DVDs, plus ﬁlmmaking technology to produce shows, patients and their visitors can hang out in the games room, grab a quick snack in the funky Star Bites café or enjoy some fresh air in the outdoor area. Club Ado also has its own TV station, reaching isolated teenagers on the wards. With professional room hosts trained in various backgrounds to reﬂect the interests of these young people, this initiative allows patients to support one another, meet new friends and discover hidden talents, all the while ﬁlling the room with smiles and laughter. “Starlight lets you experience what’s great in life when other things aren’t so good. Even though I was very sick, with Starlight I could still enjoy myself and have fun. That’s what life is about – living in the moment.” – Cody, previous Starlight Wish Child 19 Thank You To Our Supporters Starlight relies entirely on the generosity of the Australian public to exist. It is due to the kindness of individuals, businesses and community groups that we are able to continue to provide our vital support to seriously ill children, young people and their families. Volunteers Volunteers are Starlight’s most valuable resource in making the dreams of Starlight and the children a reality. Volunteers from across Australia generously donate their time and effort to bring magic across numerous activities to support Starlight. These amazing individuals lend a hand on a regular basis, fundraising for Starlight, helping to grant Starlight Wishes, working in our Starlight Express Rooms, in our ofﬁce and at our events, truly becoming part of the Starlight family. Volunteering for Starlight not only makes a positive change in the lives of Starlight families but often makes a strong impact on those giving up their time too. Adre vero odiamet. Each year, over 4000 people lend their support on Starlight Day, our annual ‘cause day’ in May. Individuals and corporate groups volunteer their time to sell merchandise and host Star Party fundraisers in the name of Starlight. Volunteers are essential to the success of the Starlight Children’s Foundation - a huge thank you to all of our big hearted supporters. “In January, after 18 years of organising wishes and decorating rooms, I ﬁnally hung up my fairy wings. Looking back on my time with the Starlight Children’s Foundation, I’m so proud to have been part of such a wonderful organisation.” – Faye, Starlight Volunteer since 1988. 20 “I’ve been a Starlight volunteer for ten years now, as I know ﬁrst-hand how a wish can positively impact the life of a seriously ill child. It gives them something exciting to think about in the midst of medical appointments and worry.” – Lyndal, Starlight Volunteer since 1997 and Starlight Wish child in 1992. Individuals Philanthropy is deﬁned as ‘the love of humankind’ or ‘private action for the public good’. Philanthropy is the reason why generous, caring people support Starlight to brighten the lives of seriously ill children and their families. Starlight is fortunate to enjoy the support of many individuals whose philanthropy inspires them to help in a variety of ways and Starlight helps ensure their inspirational generosity makes a real difference to the children and families we help. There are a multitude of ways to support Starlight, which include caring people who make donations through mail, phone or internet, those who make a regular monthly donation, or have included Starlight in their Will, or those who through Foundation Grants or major donations contribute to Starlight’s work. Every donation makes a difference and helps us grow the extent and impact of our programs. Declan raised $110 with his impromptu music performance which has helped more hospitalised kids have fun in the Starlight Express Room. Max chose to forgo his Christmas beer so he could make a donation and help grant more wishes. And Gloria made a bequest to Starlight so sick kids in the future will have the chance to smile again. “I was on my way down to the supermarket where there was a Christmas Special on my favourite beer. However I saw the postman coming and there was Starlight’s letter. After reading about Christian and his ‘Rocket Ship Plans’ how could anyone purchase beer? As an old age pensioner I can’t afford both so it might just be that your letter and Christian’s story have cured my liking for alcohol.” – Max, Starlight Supporter. Grants from caring donors and philanthropic organisations have taken the Starlight Express Van to more hospitals, sent more families on Starlight Escapes, granted more wishes and brightened more lives in many ways. 21 Community Partnerships Starlight is grateful for the support of a number of community groups and corporate partners that kindly donate funds or goods and services, to further develop our programs. Throughout the year community supporters host a wide range of fundraising activities for Starlight including dinners and balls, sporting and recreational challenges, movie nights, garage sales, BBQs and morning teas, merchandise sales and Christmas light shows – just to name a few! While some activities are one off events, many become annual events with structured committees. Starlight receives support from a broad range of community groups including service and sporting clubs, purpose built committees, councils, schools, universities and mother’s groups. Some key community organisations and initiatives that support Starlight include: n Organised committees such as Young Starlight who have managed cocktail events and designer fashion shows throughout Australia. n Dinner and dance events such as Star Ball organised across the country. n Cycling events such as Tour de Kids and Chain Reaction. n Social fun events like Big Kids Night Out in Perth. n Kick 4 Kids, a great day where healthy kids kick goals to help sick kids. n Purplehaze football match with Fremantle Dockers and supporters Fremantle Ports. n Challenging events like Star Jump (abseiling down city buildings), for the adrenalin and sporting individuals. n Sporting activities like City2Surf or Bridge to Brisbane. n For driving enthusiasts, events like Cruise for Charity and Starlight Trek. 22 “For the families of seriously ill kids, and the children themselves, the pain must be unbearable. The fundraising bike rides I’ve done for Starlight have been one of the toughest things I have done physically, if not the toughest. But tomorrow I can go back to work and the pain will be gone with the help of an ice pack. For the kids who beneﬁt from the Starlight Children’s Foundation and their families, the pain and suffering is constant and ongoing.” - Warrick Waugh, TDK rider. Case Study: Star Ball The concept of Star Ball was created by a passionate Starlight supporter in Sydney in 1997. What started as one event raising $8,000 for Starlight has now grown to annual blacktie dinners attended by over 1600 people in Canberra, Melbourne and Sydney, raising signiﬁcant funds for Starlight. Founder and Chairman of the National Star Ball Committee, Scott Didier turned his passion for Starlight into an amazing fundraising concept. “Having experienced it ﬁrst hand, I ﬁnd the wonderful work Starlight does both motivating and inspiring. The Starlight culture and its people are infectious. All of us who work on Star Ball are honoured to be able to contribute and play our part in putting smiles on children’s faces.” “It’s such an important cause, one that the mums and dads of our little players will embrace. Apart from $1 from each registration that will be donated to Starlight, we’re looking forward to the many different ways we can all fundraise throughout the year!” These events raise signiﬁcant funds for Starlight largely thanks to the passion and dedication of the external organising committees, who work tirelessly for a large part of the year. To help minimise event costs they aim to secure prizes and pro bono support for event facilities, prizes and entertainers. This helps to minimise event costs and ensure the greatest possible portion of funds raised goes directly to beneﬁting Starlight kids and families. – Terry, Executive Ofﬁcer, Parramatta District Junior Rugby League. “I think the fear you feel abseiling off a building is a little taste of how scary it is for families in those situations” – Steve, Star Jump participant. 23 Corporate Partnerships Many businesses, from large scale multinational companies, to small owner operator businesses support Starlight. Our long term corporate partners have been built upon an understanding of each other’s goals. A Starlight partnership can be linked to a company’s ‘corporate social responsibility’ objectives, which often focus on supporting local communities, enriching culture and engaging staff. We pride ourselves on developing mutually beneﬁcial relationships with all our corporate partners to deliver tangible beneﬁts to those who support us. We encourage volunteering and staff engagement with our partners and offer corporate sponsors rewarding opportunities including customised employee programs such as fundraising initiatives, team-based volunteering opportunities and workplace giving programs. There are many ways a company can support Starlight including: sponsorship, causerelated marketing, fundraising, workplace giving, staff volunteering and donated goods and services. “Partnering with Starlight has proven to be both beneﬁcial and rewarding. What is most exciting has been the incredible sense of cohesion and support that has ﬂowed through the organisation. Employees at every level have embraced our relationship and enhanced outcomes through internal initiatives to support Starlight.” - Dennis Mahoney, National Sales & Marketing Manager, BIC “Reed Construction Australia embarked on a joint cause-related marketing campaign with Starlight and the Manly Sea Eagles team. The campaign was a huge success and increased the amount of web trafﬁc to Reed’s website from 40,000 hits to 200,000 hits per month.” - Kristy Reilly, Marketing Manager Reed Construction Australia Pty Ltd 24 Case Study: AXA “A very high proportion of our people want to volunteer and get involved. Starlight Day has become a major milestone on the KPMG calendar each year. Teams around Australia take time off from their day job, and have great fun, collecting much needed funds for Starlight.” In November 2006, AXA partnered with Starlight via the AXA Charitable Trust and Hearts in Action (HIA) community investment programme to fund a series of national Starlight Escapes - fun days out for seriously ill children and their families. see how the partnership beneﬁts seriously ill children on a ﬁrst hand basis. To date, AXA and Starlight have ‘delivered smiles’ to children in Maitland, Hervey Bay, Dubbo and Adelaide with a further 15 Escapes planned for 2008. AXA’s community investment strategy is to develop partnerships with charities that support sick or disadvantaged children and those affected by poverty and homelessness. In line with this strategy, AXA provided funding for 19 fun and memorable Starlight Escapes which will beneﬁt more than 380 families across metropolitan and regional Australia. The programme has been affectionately dubbed “The AXA ‘delivering smiles’ Plan” in reference to AXA’s current marketing campaign. Summarising the relationship with Starlight, AXA’s Corporate Social Responsibility Manager, Jennifer Dew, said: “AXA’s support of the Starlight Escapes has enabled our organisation to give back to the community in a genuine way and play a small part in brightening the lives of seriously ill children at a challenging time.” Rewarding volunteering opportunities were incorporated into the Escapes programme allowing AXA’s employees and its network of ﬁnancial advisors to directly interact with Starlight families and Geoff Wilson, Chief Executive Ofﬁcer, KPMG. 25 Corporate Governance Starlight does not aspire to be the biggest, only the best. Our aim is to help as many seriously ill children as possible, in a personal, principled and meaningful manner. The Starlight Board and executive team are committed to the highest level of ethics in the management and governance of Starlight, ensuring full transparency and accountability at all times and compliance with Starlight’s Code of Conduct and Values. The two underlying principles which govern every decision and action are: n What is best for the children? n We are only the trustees of the funds donated. The Board shall comprise no fewer than six directors and no more than 17 at any one time, the majority of whom must be independent and non-executive directors. The Chairman shall be elected by directors and must be an independent, non-executive director. New directors should be nominated and seconded by current Board Members and then conﬁrmed by the Nominations Committee. Starlight’s Board of Directors supports the ASX Principles of Good Corporate Governance and Best Practice Recommendations. The Board meets bi-monthly and also conducts an Annual General Meeting. In accordance with these principles, the Board has adopted a formal charter incorporating their responsibilities which include to:- n Approve and review the strategic direction and plans of the organisation, n Monitor the performance of the CEO and executive team in accordance with the strategic business plan and performance goals, n Review the structure, charter and composition of the Board and Board Committees and review outcomes of Board Committees, n Identify business risks and approve controls to manage risks and monitor compliance, n Conﬁrm the appointment of auditors, review the audit process and audit reports and approve annual forecasts and budgets, n Determine and approve the level of authority to be granted to the CEO and authorise any further delegation by the CEO, n Approve major operating and capital expenditure as well as credit facilities where required and n Approve and review executive team’s performance targets, remuneration and succession plans. Starlight’s non-executive directors do not receive any fees. Operational management is the responsibility of Starlight’s CEO, with all powers, discretions and delegations as authorised by the Board. 26 2007 Financial Summary Over the following pages we include ﬁnancial highlights of Starlight’s performance in year ending 31st December 2007. In reviewing these please note that in 2006 Starlight changed the reporting period to a calendar year. The graphs and table information shown on the following two pages have been extracted from audited accounts. In the case of 2006 the January to December data has been extracted from the audited report for 18 months (June 2005 to December 2006). Prior to 2006 the information shown is for 12 months (June to July) each year. Full audited accounts are available on request or can be viewed on our website www.starlight.org.au. 27 $10,142 $17,425 2007 10 2006 Where our funds came from Income Sources of Income 5 n Individual Income in and 2007Community was signiﬁcantly above that achieved in any previous Growth donations continue to be our major sourceyear. of income came from Community Events, Individual Giving and an increase in the level of and have shown the largest growth in 2007. Bequests. n Our most signiﬁcant single fundraising event continues to be Starlight Day where we receive support from over 4000 volunteers either selling merchandise on the day or holding Star Parties to raise funds for Starlight. $8,030 10 18239 21313 17% 2007 2006 5 2004/2005 2003/2004 0 Expenses 5 0 $7,573 $7,786 15 DONATED GOODS AND SERVICES $6,010 20 OTHER INCOME INDIVIDUAL & COMMUNITY DONATIONS CORPORATE PARTNERS $5,372 EVENTS 10 Our thanks go to staff, partners and volunteers who have all contributed to achieving these Other Income 441 354 -20% signiﬁcant results. $13,461 15 $10,914 20 programs are being perceived by those who access them and how we might enhance and extend them to be3909 able to meet the3935 objective of reaching Events 1% 3 out of 3 seriously or chronically ill young people. n Given the size of these investments, a deﬁcit of $0.2m was recorded for the year. This is reﬂected in the slight decline in the level of Net Assets. Donated Goods & Services 3250 3887 20% $17,638 Income n Our intention to grow our online donations signiﬁcantlyforimprove our During Expenses also isgrew during 2007 as we investedand in programs the future. relationship management capability to grow return for on seriously direct ill the year Starlight established a pilot inoforder a secure onlineour program marketing. young people under the banner ‘Livewire’. An investment of $0.9m was made in this pilot which was an essential step in securing Federal Government funding to establish a robust and scaleable platform so this can be rolled out to the wider community, particularly those young people located in rural and remote locations. 2006market research 2007 n In addition we conducted extensive exploring howChange Starlight n An investment was also made in upgrading our web presence and establishing Individual & Community 7510 9909and maintain32% it on a software platform that will enable us to update the site ourselves ensuring content is fresh and informative for everyone who wishes to interact with Starlight. Corporate Partners 3129 3228 3% 2004/2005 2003/2004 0 Expenses Totals $14,989 2007 Financial Summary 15 $11,640 20 2007 2006 2004/2005 2003/2004 Net Assets * Note: The above ﬁgures exclude donated goods and services. 30 28 Ratios The following ratios are extracted from audited ﬁnancial reports. The ratios for 2006 are based on 18 months data. Ratio 2005 2006 2007 Direct cost of Fundraising/ Gross Income from Fundraising 14% 9% 11% Administration costs/Gross Income from Fundraising 20% 23% 17% Total cost of Services provided/Total Expenditure 51% 52% 61% The above ratios are measures of efﬁciency within the overall operation and include donated goods and services. The ratio of Direct cost of Fundraising to Gross Income from Fundraising will vary depending on the mix of fundraising activities. Our strategic focus is to shift to fundraising activities which have a higher net yield to Starlight. “The focus is on the kids and the Captains treat them all equally. We love this because they don’t judge. The Captains don’t even ask which one has the problem and which are her brothers and sisters.” - Cindy, Starlight Mother, WA Administration costs as a percentage of Gross Income from Fundraising can be adversely effected by changes in the level of depreciation and any investments we might make to gain longer term efﬁciencies. Our objective is to see this ratio continue to decline over time. Total cost of Services to Total Expenditure relates our program spend to overall costs. Our objective is to see our program spend as an increasing proportion of our overall costs. 29 $10,142 $17,425 2007 10 2006 Where our funds came from Income of Income Sources 5 in and 2007Community was signiﬁcantly above that achieved in any previous Growth n Income Individual donations continue to be our major sourceyear. of income camehave from Community Events, Individual Giving and an increase in the level of and shown the largest growth in 2007. Bequests. n Our most signiﬁcant single fundraising event continues to be Starlight Day where we receive support from over 4000 volunteers either selling merchandise on the day or holding Star Parties to raise funds for Starlight. $8,030 10 18239 21313 17% 2007 2006 5 2004/2005 2003/2004 0 Expenses 5 0 $7,573 $7,786 15 INDIVIDUAL & COMMUNITY DONATIONS DONATED GOODS AND SERVICES $6,010 20 OTHER INCOME CORPORATE PARTNERS $5,372 EVENTS 10 Our thanks go to staff, partners and volunteers who have all contributed to achieving these Other Income 441 354 -20% signiﬁcant results. $13,461 15 $10,914 20 programs are being perceived by those who access them and how we might enhance and extend them to be3909 able to meet the3935 objective of reaching Events 1% 3 out of 3 seriously or chronically ill young people. n Given the size of these investments, a deﬁcit of $0.2m was recorded for the year. This is reﬂected in the slight decline in the level of Net Assets. Donated Goods & Services 3250 3887 20% $17,638 Income n Expenses Our intention to grow our online donations signiﬁcantlyforimprove our During also isgrew during 2007 as we investedand in programs the future. relationship management capability to grow return for on seriously direct ill the year Starlight established a pilot inoforder a secure onlineour program marketing. young people under the banner ‘Livewire’. An investment of $0.9m was made in this pilot which was an essential step in securing Federal Government funding to establish a robust and scaleable platform so this can be rolled out to the wider community, particularly those young people located in rural and remote locations. 2006market research 2007 n In addition we conducted extensive exploring howChange Starlight n An investment was also made in upgrading our web presence and establishing Individual & Community 7510 9909and maintain32% it on a software platform that will enable us to update the site ourselves ensuring content is fresh and informative for everyone who wishes to interact with Starlight. Corporate Partners 3129 3228 3% 2004/2005 2003/2004 0 Expenses Totals $14,989 2007 Financial Summary 15 $11,640 20 2007 2006 2004/2005 2003/2004 Net Assets * Note: The above ﬁgures exclude donated goods and services. 30 28 How we applied our funds Expenditure Summary n While income from Community fundraising grew signiﬁcantly 2006 to 2007, our costs in generating this income also grew signiﬁcantly. n Program costs increased 2006 to 2007 due to both the investment in Livewire and an increase in the number of Captain Starlights around Australia. n Administrative costs have declined but this is largely due to a very large depreciation expense in 2006 with the write down in value of the Starlight Fun Centres. This is in accordance with conservative accounting policies adapted by the Starlight Board. 2006 2007 Change Partnerships 3148 3789 20% Fundraising Costs 1423 2045 44% Programs 5536 8617 56% Administration 3354 3187 -5% Totals 13461 17638 31% PROGRAMS FUNDRAISING COSTS PARTNERSHIPS ADMINISTRATION * Note: The above ﬁgures exclude donated goods and services. 31 Frequently Asked Questions How does Starlight determine which children get access to Starlight programs? There seems to be a few charities doing similar work, why doesn’t Starlight work more closely with these charities? Our in-hospital programs do not discriminate – any hospitalised child, and their siblings, parents and friends are welcome in a Starlight Express Room, or may use a Starlight Fun Centre. The Starlight Wishgranting program is open to seriously, chronically, terminally ill and disabled children aged 4-18 years, who have not previously received a wish from Starlight, or a similar wishgranting organisation. The child must be referred to Starlight by their healthcare practitioner. Children eligible for a Starlight Wish are also eligible to participate in the Starlight Escapes program, which provides Starlight kids and their families with a break from the ongoing pressures of long term illness. Starlight liaises with other children’s charities on a regular basis to ensure our services are differentiated and complement the support provided by other charities. Starlight’s programs are unique, and provide an invaluable service to families experiencing difﬁcult circumstances. Starlight does not offer ﬁnancial or medical assistance to families. How does Starlight evaluate its programs? Recently, we conducted a comprehensive research study in which parents, children and health care professionals were consulted on their needs, and the value of existing programs. Every day we receive feedback from Starlight families, health care professionals and partners - information which is used to reﬁne and enhance our programs. A national evaluation framework has also been put in place which will provide information to improve the quality and focus of each program area. What is Starlight hoping to achieve in 2008? Starlight’s initial goal was to reach 1 out of 3 seriously or chronically ill and hospitalised children. We have now set ourselves the more ambitious target of reaching 3 out of 3 children. This ambitious goal can not be achieved without considerable change and investment. For example, we must build on our recent initiatives – the expansion into the Northern Territory, the extension of services to teenagers, our online program called Livewire, as well as our ongoing core programs. We will also be investing in a more sophisticated infrastructure with better technology to ensure maximum efﬁciency in the future. 34 How does Starlight decide where donations are spent? We seek to maximise the amount of donated funds spent on innovative programs to help seriously ill children and young people throughout Australia. There are operating and administrative costs associated with providing these services and we work extremely hard to make sure these costs are kept as low as possible. How are Starlight’s costs monitored? We are acutely aware that every dollar spent has been donated, and it is therefore everyone’s focus to minimise non-program expenses. Detailed budgets are prepared each year and performance against budget is closely monitored by management and the Board. Starlight seeks to obtain donated goods and services when ever possible. Detailed accounts are produced each year and are independently audited. How do Starlight’s operating costs compare with other charities? Because charities are different sizes and generate their revenues in many different ways, direct comparisons are difﬁcult. Some charities simply receive and distribute donations, others, like Starlight, deliver services directly to those in need. Starlight is a relatively small, specialist charity which relies on the generosity of donors and supporters without the beneﬁt of dedicated support from a religious group or single large corporate sponsor. Does Starlight receive any funding from the government? This year, for the ﬁrst time ever, Starlight (through a wholly owned subsidiary ‘NFP Online’), has applied to receive government funding speciﬁcally to build the pilot of a secure online program called ‘Livewire’. Livewire is a program designed to connect Starlight services to those children who are left at home, away from their friends and unable to remain in contact with their peer group. This funding, if granted, cannot be used for any other purpose and must be matched with in kind contributions from Starlight and its development consortium partners. External auditors have given Starlight members a qualiﬁed audit report. Why? The qualiﬁcation relates to the fact that some community fundraising activities may be undertaken without Starlight’s knowledge or endorsement. This prevents Starlight from monitoring and ensuring receipt of all monies collected. This is common in many charities. Aren’t there Starlight ofﬁces overseas… does any funding come from Starlight’s international partners (and vice versa)? Yes, Starlight does exist abroad and we share key program learnings with these afﬁliates. However, Starlight operates independently in each country – all funds donated in Australia are directed towards the running of Starlight in Australia and Starlight does not remit any funding to international counterparts. Does Starlight have any religious or political leanings? No, Starlight is a non denominational charity. Its goal is for every seriously ill and hospitalised child in Australia to have access to Starlight programs regardless of race, culture or religion. 35 How you can support Starlight Every gift you give helps bring fun and laughter to people whose lives are being adversely affected by illness. People and Time. We understand the importance of staff engagement, and offer our corporate partners rewarding opportunities to become part of the Starlight family. Starlight has a number of ways to engage with staff including customised fundraising programs, teambased volunteering opportunities and payroll giving programs. Sponsorship of Starlight programs, such as the Starlight Express Rooms and Starlight Express Vans. Workplace Giving is a payroll deduction scheme where employees choose to give a portion of their income to a charity. Employees are able to donate from their pre-tax pay, gaining an immediate tax beneﬁt. Fundraising activities are a great Donated Goods and Services Celebrations are a part of life, and if you’ve got all you need, why not ask your guests to make a donation in lieu of buying a gift, be it for your child’s christening or baby shower, your birthday, anniversary, wedding or Christmas. assist Starlight in many ways, from granting wishes, to promoting the Starlight brand to running our Starlight Escape programs, which rely exclusively on the donation of tickets, activities and services etc. 36 Volunteering. You can help to grant wishes, help out in our Starlight Express Rooms, volunteer at Starlight events such as Starlight Day, come into our ofﬁce or become a public speaker for Starlight. way of raising much needed funds and awareness. Anyone can host a fundraising event with their local school, club, community group, work colleagues or on their own. Bequests are a way of remembering Starlight in your Will. Your legacy will help Starlight spread much needed laughter and positive distraction now, and into the future. Donations no matter how large or small, every dollar helps. You can choose to make a one off donation, or become a regular monthly donor, where payments are automatically deducted from your bank account or credit card. All donations over $2.00 are tax deductible. “The Starlight Children’s Foundation really is a bright light in dull days.” – Sarah, Starlight Parent. Starlight would like to thank: AXA for funding the production of this Annual Report. Without your support, this project could not have been completed. Brand Logic Hunt Online Oneill Photographics *Note: Aboriginal and Torres Strait Islander readers are warned that this report may contain images and quotes of deceased persons. How you can help Starlight: There are many ways you can help Starlight, through your workplace, with friends, community groups or on your own! Here are some ideas: Fundraising Host a fundraiser with family, friends, work colleagues, your local sporting group or club. If you’re stuck for ideas, gives us a call and we’ll send you a little inspiration. Volunteer You can help to grant wishes, help out in our Starlight Express Rooms, volunteer at Starlight events such as Starlight Day, come into our ofﬁce or become a public speaker for Starlight. Donate No matter how large or small, every dollar helps! Call us or visit our website and follow the prompts to our donations page. Visit www.starlight.org.au for further information, or call 1300 727 827. Thank you for your support!
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