GrowthXP Efficient and powerful Your tool to monitor growth from infancy to adulthood High quality growth charts Instant calculations & validation checks Chart design and reference data follow each country’s local standards Using the PC PAL Reference Library 2800 files from 45 countries GrowthXP.com GrowthXP Make the best use of growth data Smooth and efficient data entry providing instant feedback Complete pubertal data Gestational age correction Bone age and adult height predictions Timeline and visit list for easy navigation and viewing historical data at a glance Notes and comments can be added for each visit All charts provide: Advanced zoom features Export or save chart as PDF Additional features in full page charts ff Plot bone age ff Plot parental heights ff Make chart anonymous ff Corrected age curve for preterm ff Choose reference type SD or Percentile ff Plot measurements as discrete dots Single user Multiple users Free trial version available GrowthXP.com Contact us for a quote [email protected] Chart engine also available as a component to be integrated into EMR systems. EMR integration EMR integration GrowthXP.com PedigreeXP Accurate family history recording An important aspect of each medical record Interested in trying PedigreeXP? To best assess an individual’s risk for an inherited disease, it’s essential to have a detailed pedigree Today in the time of increasing information exchange, our pedigree drawing tool is currently being developed with the goal of facilitating the collection and interpretation of family medical history. If you’re passionate about genetics and pedigrees just drop us an email and we will offer a trial version. PedigreeXP.com Free trial version available Email us at [email protected] PedigreeXP Your assistant for pedigree construction Use Quick Start Wizard to start a pedigree with 3 generations at a time Standardized symbols make medical and genetic information easy to interpret Register details and important factors as age at onset, age at death, mutations Identify familial risks disorders where known inheritance patterns are present PedigreeXP I James Mary II 114y, 9m Cindy B: 1900 O: 1950 D: 1970 William Charles Diane B: 1916 D: 1986 III 78y, 9m Peter Léa Louis 76y, 9m Michael B: 1936 IV 98y, 9m 69y, 9m Larry B: 1938 56y, 9m Pamela B: 1945 44y, 9m Edgar 43y, 9m B: 1970 N 35y, 9m B: 1971 75y, 9m 86y, 9m Harry B: 1958 Lou B: 1939 O: 1995 46y, 9m B: 1979 B: 1928 38y, 9m B: 1968 B: 1976 PedigreeXP 188.8.131.52 - Developed by PC PAL, 2014 Possibility to handle complex relationships and their offsprings: ff multiple partners or marriages ff consanguineous marriages Update and auto-arrange pedigree chart easily Manage large size family pedigrees and smart print selection Search and auto-select a person in pedigree by name, onset, birth date Convert Cyrillic FAM files to fully reusable PedigreeXP files Import and export pedigrees in various formats: ff PED, GED, DRW, BOADICEA Suitable for integration into medical records PedigreeXP.com Patient Registries Customized solutions for Patient Registries 20 years of experience in registries and rare disorders PC PAL solutions for Patient Registries are successful because they are customized to match the exact needs of both clinics and sponsors and based upon true experience in the field. In the early 1990’s PC PAL built one of the first ever patient registries for pediatric endocrinology (growth hormone) and later extended it to adult endocrinology and ophthalmics. With the launch of the first orphan drug in Europe, PC PAL moved into the rare disease area with a registry for Fabry’s disease (FOS). This registry has since been followed by several others. PCPAL.eu The PC PAL Application Framework is a common framework of reusable code especially developed for registries. It allows intelligent reuse of basic functionality, yet doesn’t prevent custom development where needed. We never say “it can’t be done” and when we do custom coding it integrates seamlessly into the application just giving your registry the extra touch you need. Patient Registries Instant feed back Numerical variables can have charts associated with them to show their evolution over time. Instant feed back charts™ give enhanced data quality in the registry as users can react upon incorrectly entered data and correct it. Lab data and anthropometric parameters can use multiple units, and when data is presented in charts or tables, the values are automatically converted into a standard unit for each parameter. Calculations are executed automatically as soon as a dependent variable is entered or modified. Data validations, when triggered, immediately shows up next to entered data. Validations can be simple range checks, or more complex age and sex related, or be custom built. Such checks can take into account other values, entered or calculated, as well as go across visits or forms, taking into account the entire patient data set. The PC PAL registry platform was created to be the best possible tool for the individual clinics and at the same time satisfy the needs of the study, or multiple studies, for which it was designed. ticipation is decided upon, and study forms are created, available data automatically populate the forms. When a form is electronically signed, a copy is physically sent over to the central registry for that study. Data can reside in the clinic database without the intention of study participation, just to make use of the patient management features within the application. If study par- The PC PAL registry platform was built to handle electronic submission, updates and deletions of registry data to an off-site server across the internet. Disease Registry Study Forms Clinic data Clinics Investigator Sponsored Study Patient Management Research Project National Registry PC PAL registry solutions can be used in a variety of ways, and different solutions combined to suit the needs of the customer be it a commercial company, a national association, or hospital/regional/trust wide usage. PCPAL.eu Case studies GrowthXP.com | PedigreeXP.com | PCPAL.eu GrowthXP CHU Toulouse, France, contracted with PC PAL for a hospital wide implementation of GrowthXP Pro Viewer to obtain high quality visualization of growth and pubertal development along with all the necessary growth calculations. Integrated into the AGFA Orbis platform, GrowthXP Pro Viewer acts upon data recorded in the electronic medical record and also returns derived parameters back. Customizations to GrowthXP were done to adapt to national best practices in collaboration with Dr OLIVER PETIT, Toulouse. Charts designed by the French Auxology Group led by Dr BOUCHARD, Lyon were also incorporated. PedigreeXP In collaboration with the department of neurology at the University Hospital Henri Mondor in Créteil, France, PedigreeXP was enhanced and tailored for the specific needs of an international multi-centre study investigating led by Dr Planté Bordeneuve to study the penetrance of TTR amyloidosis. The tool is used by the participating centres to document the familystructure of each individual family and to collect the data on each of the affected family members. Transthyretin amyloidosis is a slowly progressive condition characterized by the buildup of abnormal deposits of a the protein amyloid in the body’s organs and tissues. EnovDiab To assist pediatric clinics with the management and monitoring of diabetic children, PC PALs platform for patient registries was used to build Enovdiab. In addition the value for the follow up of the individual patient, data can also be analyzed on a cohort of patients from one clinical center or from a group of clinical centers using the same tool. After being used for two years in Rennes and Anger Enovdiab is currently being deployed to other centres in Bretagne and Pays de la Loire and the association Credib led by Dr de Kerdanet welcomes other centres and regions to join. How can we assist you? SWEDEN +46 8 724 44 00 FRANCE The secret of the PC PAL systems is that we offer a combination of great visual output together with advanced data validation handling. This has made our applications widely appreciated by both customers and end-users since the beginning of the 1990’s. Products developed by PC PAL are used in more than 40 countries by many thousands of users. +33 1 69 53 46 20 USA /CANADA Toll-free: +1 877 469 7272 Kaplansbacken 3, SE-112 24 Stockholm, Sweden 3 Avenue Jeanne Garnerin, 91320 Wissous, France © 2014 PC PAL | Design PC PAL Our areas of expertise are applications for outcome surveys and clinical trials and other applications for the health care sector such as electronic health records (EHR), electronic patient records (EPR), growth charts, laboratory data and pedigrees. We’ve worked extensively in the areas of paediatric endocrinology, adult endocrinology, ophthalmology as well as with genetic syndromes and disorders.
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