WINTER 2015 GREATER NORTHWEST CHAPTER MS CONNECTION NEWSLETTER Tim Muck works out on the NuStep, a recumbent stair-stepping machine. Connecting, achieving and getting more out of life ADULT DAY HEALTH CENTERS OFFER A WIDE ARRAY OF SERVICES FOR PEOPLE WITH MS Before he started attending an adult day health center, the most active thing Tim Muck did most days was change the TV channel. Once a disc jockey who spun tunes for a radio station, Tim did his best to stay upbeat as primary-progressive multiple sclerosis took a toll on his ability to move, communicate and enjoy life. Over time, simply getting out of the house became a challenge. Today, Tim rides a recumbent stair-stepping machine for 45 minutes twice a week. It has strengthened his leg muscles and improved his balance. So have the seated tai chi classes he takes alongside people who are living with MS, cerebral palsy and other conditions that compromise the central nervous system. The MS Achievement Center at the nonprofit Full Life Care offers nursing, occupational therapy and support groups, as well as exercise classes and cognitive activities. Participants can enjoy cooking, conversations about current events, and community service projects such as assembling sack lunches for homeless shelters. Since Tim started coming to Full Life, he has more than tripled the distance he can cover with his walker. He experiences much less fatigue. And he’s found comfort learning to manage his MS in a social setting that’s supportive and fun. Adult day health centers, continued on page 3 FIND LOCAL AND CALL-IN PROGRAMS ON PAGES 12–15 EVENTS 02 MS CONNECTION: WINTER 2015 Save the dates! The new year brings with it the opportunity to get involved in the MS Movement in new and different ways as you rally alongside your friends, family and community to raise awareness and funds that bring us closer to a world free of MS. State Action Day Tuesday, January 27 MS Awareness Week Monday through Sunday, March 2 – 8 Run MS Seattle 5K Sunday, April 12 – Seattle World MS Day Wednesday, May 27 BIKE MS 2015 Saturday, May 30 Bike MS: Hope to a Cure, Girdwood, AK Saturday, August 15 Bike MS: Ride the Sky, Bozeman, MT Saturday & Sunday, September 12 – 13 Bike MS: Deception Pass Classic, Mount Vernon, WA Saturday & Sunday, September 19 – 20 Bike MS: Cycle the Silver Valley, Kellogg, ID This is the year to take the next step! See pages 12 – 15 or visit MSnorthwest.org to learn more about these and other activities. WALK MS 2015 WASHINGTON Saturday, April 11 – Bainbridge Island, Bellingham, Kitsap County, Olympia, Snohomish County, South Sound &Tri-Cities Sunday, April 12 – Seattle (& Run MS, left), Spokane Saturday, April 18 – Wenatchee Sunday, April 19 – Clarkston NORTHERN IDAHO Saturday, April 25 – Coeur d’Alene MONTANA Saturday, May 2 – Billings Saturday, May 9 – Helena Saturday, May 16 – Great Falls Sunday, May 17 – Bozeman Saturday, May 30 – Missoula Saturday, September 19 – Butte ALASKA Saturday, April 25 – Ketchikan Saturday, May 2 – Fairbanks Saturday, May 9 – Anchorage, Soldotna Saturday, May 16 – Copper Valley, Mat-Su Valley 03 MSNORTHWEST.ORG | 800-344-4867 Adult day health centers, continued from page 1 “It’s nice to know that I’m not alone — that this disease can be altered and that I can make that happen,” Tim says. Full Life coordinates transportation to and from participants’ homes, serves lunch, and offers referrals for mental health services if they’re needed. Tim Muck pets Addy, a sweet Samoyed who works as a therapy dog at Full Life. “Every day, people are finding new ways to get the most out of life at home by staying active, engaged with others and thriving in their own unique ways,” says Nora Gibson, Full Life Care’s Executive Director and a member of the Greater Northwest Chapter’s Board of Trustees. The Society provides referrals to adult day health providers like Full Life Care in various cities across Washington, Alaska, Montana and Northern Idaho. n To learn more about adult day health services in your area, or for questions about insurance coverage, call an MS Navigator at 1-800-344-4867 or reach out online at nationalMSsociety.org/Helpful-Links/ Contact-Us REFLECTIONS Dear members of our Chapter community, Those of you who have come to rely on the Greater Northwest Chapter know very well how we can enrich your lives. We help you connect with others, meet the day-to-day challenges of living with MS, and learn how to live a healthier and happier life. In 2014, you and others who care about the MS movement helped us deliver on those goals in record numbers. Our Chapter-wide fundraisers, led by Bike MS and Walk MS participants, generated more than $7.6 million – one of our strongest fundraising years ever! As a result, we were able to provide customized support to three times as many people through our MS Navigator program than we did the previous year. We also dedicated $2.3 million to MS research that will one day realize the vision of a world free of MS. I’m also very proud of our dedicated MS Activists who worked so hard to raise awareness, educate elected officials and drive change on behalf of people living with MS. In 2015, I hope you’ll join us at an event, program or activity that stirs your passions. Go to MSnorthwest.org to learn how you can be involved. Sincerely, Patty Shepherd-Barnes Chapter President 04 MS CONNECTION: WINTER 2015 INSPIRATION Stories of a father’s ‘grace and courage’ FIRST LADY’S BROTHER, CRAIG ROBINSON, INSPIRES GUESTS AT CHAPTER FUNDRAISER Fraser Robinson III never let MS or any other hardship get in the way of living a full and meaningful life. That’s the legacy their father left to Craig Robinson, an accomplished basketball player and coach and now an ESPN broadcaster, and his sister, First Lady Michelle Obama. Regaling the crowd with anecdotes of growing up with Michelle – “a health nut, even back then” – Craig recalled that his dad never missed more than a few days working the swing shift at the Chicago Water Department and was always there as a steady presence in his family’s lives. “I do not know where I would be if I didn’t see my dad battle this disease with such courage and with such grace. I don’t know who I would be,” he said. “In a funny way, MS has had a profoundly positive effect on my life.” Craig praised the work of the National MS Society. “It’s thrilling to see that you don’t have to go through this by yourself,” he told guests. n Craig and Michelle with their parents, Fraser and Marian “People ask me all the time, what the heck did your parents do, and they look at Michelle and they look and me. And I tell them, my parents never held us back. They never let MS hold us back,” Craig told 700 guests at the Greater Northwest Chapter’s On the Move Luncheon in October. The event raised $350,000 for research, programs and services for people affected by MS. Fraser was diagnosed with MS when Craig and Michelle were very young. Although their father walked with a pronounced limp that got worse and worse through the years, the kids never thought of him as being anything less than fully able to work, play and enjoy life. Craig Robinson and Chapter President Patty Shepherd-Barnes 05 MSNORTHWEST.ORG | 800-344-4867 ADVANCE YOUR EDUCATION WITH A SOCIETY SCHOLARSHIP Are you college-bound? Gearing up for vocational training? If so, apply for a 2015-16 Society scholarship by January 15. Applicants must: n Have MS or have a parent with MS. n Plan to attend an accredited postsecondary school. n Enroll in at least six credit hours per semester in course work leading to a degree, license or certificate. n Meet certain residential requirements. Learn more at nationalMSsociety.org/ scholarship. “After I was diagnosed with MS, I felt useless for a while. I barely did anything. A National MS Society Scholarship changed my outlook and gave me the confidence to pursue my dream of becoming a nurse. I’ve completed my training as a certified nursing assistant and am eager to achieve my next goal: getting my nursing degree. I’m so grateful for my scholarship, for the many opportunities it’s opening up for me, and for all the adventures that lie ahead.” — Allexis Dizon, recipient of a four-year National MS Society scholarship GET ENGAGED Offering countless ways to uplift and empower BY KAYCEE KIESZ, DIAGNOSED IN 2001 When I was first diagnosed, I was angry and scared. I cursed my fate and grieved the loss of life as I knew it. But I was also determined not to let MS change the positive person that I am. I quickly found out about the National MS Society. I learned that what makes the Society so amazingly powerful in the lives of people with MS is that there are so many ways that you can get involved. For those who want to jump in and take charge, there’s the opportunity to informally counsel others who’ve been newly diagnosed, to lead a team at Bike MS or Walk MS, or to advocate for public policies. For those who want to learn how to live their best lives with MS, there are countless classes about how to manage employment issues, stress, finances, exercise, relationships and future health care challenges. For those who need practical help, there are programs that offer scholarships, short-term financial assistance and professional guidance on legal issues, employment and health insurance. For those who feel comforted and empowered by connecting with others, there are many different ways to get together in person, to talk on the phone or to connect online. When you live with MS, your future is so uncertain. I’m glad the Society is there for me – and anyone affected by MS – to make that uncertainty feel so much more manageable. n Learn more about all the ways to get connected at MSnorthwest.org or call an MS Navigator at 1-800-344-4867. 06 MS CONNECTION: WINTER 2015 RESEARCH Talking about stem cells The National Multiple Sclerosis Society recently sat down with Dr. Richard Burt, Chief, Division of Immunotherapy at Northwestern University’s Feinberg School of Medicine in Chicago, Ill., to talk about hematopoietic stem-cell transplantation as a possible treatment for relapsing-remitting MS. An established international researcher, Dr. Burt pioneered the use of hematopoietic stem cells to treat autoimmune diseases. COULD YOU EXPLAIN THE PROCEDURE THAT YOU’RE TESTING? We are testing a procedure called hematopoietic stem-cell transplantation (HSCT). In HSCT, we use standard immune-suppressant drugs in a very short exposure and high dose to knock down the immune system, and then we give the patients back their own immune stem cells that we collected before the procedure. HOW DOES IT WORK? In multiple sclerosis, the immune inflammation that destroys myelin requires two signals to get started: The first is exposure to myelin or something that looks like myelin, and the second is a danger signal that tells the body there is a need for an immune attack. If either of these two signals is missing, you will not get the inflammation that causes MS. In HSCT, we are resetting the immune system. Think of it like a reboot of your computer, wiping the hard drive clean and starting over. The immune system learns all over again which things to fight (pathogens like bacteria and viruses) and which things to leave alone (myelin). We think what happens in HSCT is that the immune response is exposed to myelin in the absence of the danger signal and as a consequence is rendered harmless (tolerant), unable to do any more damage. WHAT TYPE OF MS IS MOST LIKELY TO BENEFIT FROM HSCT? What we’re doing is stopping the inflammation that you need to treat when the disease is in its inflammatory stage, which occurs in relapsingremitting MS. We don’t think this treatment will benefit people with late progressive forms of MS. 07 MSNORTHWEST.ORG | 800-344-4867 Our early data suggests that HSCT does something that second-line therapy has never done: it reverses disability and significantly improves quality of life. ARE YOU STILL RECRUITING PEOPLE FOR YOUR TRIAL? The trial is open and ongoing. We are looking at people who have failed a first-line therapy and who have opted for stem-cell transplantation over a second-line treatment. Our goal of the trial is to establish in a randomized trial that this is the proper role for HSCT. Our early data suggests that HSCT does something that second-line therapy has never done: it reverses disability and significantly improves quality of life. (Visit nationalMSsociety.org/clinicaltrials for more information about how to participate in clinical studies.) THERE ARE DIFFERENT CENTERS PERFORMING HSCT AROUND THE WORLD. IS THE TREATMENT STANDARDIZED IN ANY WAY? I hope that when our clinical trial data is published, it will help standardize HSCT. We are coordinating the trial at a few other centers around the world, including the University of São Paulo, Brazil, and the University of Uppsala in Stockholm, Sweden, and the University of Sheffield in the UK. ARE THERE ANY RISKS? All procedures come with risk, but you can minimize them if you follow proper procedures. For example, in HSCT, there is a risk for infertility, although many trial participants have gone on to become pregnant. As a precaution, we encourage people who are concerned about infertility to consider options such as sperm or egg storage prior to the procedure. Late complications of this procedure unique to MS that may arise in a small subset of participants are hypo- or hyperthyroidism, or more rarely, a drop in platelets that may require transient medical treatment. Most people get blood transfusions during this treatment, so there is a small risk of infection with HIV or hepatitis. In my lifetime, I’ve probably transplanted about 1,500 patients and none have had any problem. n Originally published on MSconnection.org/ blog. Join the conversation about stem cell treatments at MSconnection.org. Visit us at MSnorthwest.org and click on Chapter & Society news to read another Q&A about stem cells – this one with Dr. Jeffrey Cohen, Director of the Experimental Therapeutics Program at Cleveland Clinic’s Mellen Center for Multiple Sclerosis Treatment and Research, who shares insights on mesenchymal stem cells as a treatment for both progressive and relapsing forms of MS. 08 MS CONNECTION: WINTER 2015 MONEY MATTERS Health insurance marketplace: what you need to know It’s important to evaluate your health insurance options and whether your current coverage is meeting your needs throughout the year – not just during fall open enrollment periods. If you want to switch your plan, or if you’re uninsured and are trying to get coverage, you can shop and enroll in a plan through the Health Insurance Marketplace until February 15, 2015. Visit healthcare.gov to register or change plans. MEDICARE If you need assistance paying your Medicare prescription drug costs, learn more about the Extra Help program at socialsecurity.gov/i1020 or call 800-772-1213. You can apply for Extra Help at any time. If you’ve moved, lost insurance coverage or experienced certain other life-changing events, you could be eligible to make changes to your Medicare Advantage and Medicare prescription drug coverage. To learn more about Medicare’s Special Enrollment Periods (or SEPs) call 800-633-4227. EMPLOYER-OFFERED PLANS Many employer-offered plans offer open enrollment during the fall, but your human resources representative can answer questions about health coverage any time of year. For help understanding and evaluating plans, talk to an MS Navigator at 1-800-344-4867 or visit nationalMSsociety.org/healthinsurance. n LIVE YOUR BEST LIFE The National MS Society’s free telelearning program, which launched this past fall, aims to provide information, resources and guidance on a range of topics essential to living one’s best life with multiple sclerosis now. Each presentation features experts addressing topics such as MS research, employment, financial and life planning, cognitive issues, bladder and bowel challenges, intimacy and MS, and how to maximize doctor’s visits. Presentations are followed by a Q&A, in which attendees submit questions online or ask them via phone. Join us January 20 and 22 for “MS Research – Your Questions Answered,” on February 12 for “MS and Employment – Legal Basics: Know Your Rights,” and on February 26 for “MS and Employment – Managing Cognitive Symptoms and Fatigue in the Workplace.” Call 800-344-4867 or register online at nationalMSsociety.org/telelearning, where presentations will also be archived for people unable to attend in person. n 09 MSNORTHWEST.ORG | 800-344-4867 FUNDRAISING Make a difference with a year-end gift As the new year approaches, remember the two-fold benefits you get from making a year-end donation to the National MS Society, Greater Northwest Chapter: the satisfaction of making a difference for people living with MS and the tax deduction you can earn for your charitable gift. When you donate to the Chapter, you support the myriad opportunities that we provide for people to connect, learn and live better with MS. The Chapter relies on donations to fund self-help groups, public policy advocacy, educational programs, financial assistance, college scholarships, MS Navigators, wellness programs and countless other initiatives to support our Chapter community. As one grateful community member told us: “As a person who struggles with the ever-changing impact MS has on my life and my family’s life, I appreciate all of the resources, support and information provided. Knowing that there are others trying to connect people together, find answers and just sympathize with the struggles makes the challenge that much easier. Thank you for all that you do.” Your donations also fund cutting-edge research to stop MS in its tracks, restore lost function and end MS forever. Nearly a dozen research projects are currently underway right here in our own Chapter community. One is studying a new MRI technique that could help to accurately predict the progression of a person’s MS. In addition to being tax-deductible in 2014, your year-end gift also can improve your wellbeing. A 2006 study found that when people give to charities, it activates regions of the brain associated with pleasure, social connection and trust. So, donate to a great cause and feel good while you do it! n Contribute securely online at nationalMSsociety.org/Chapters/ WAS/Donate, or learn more by contacting Laurie Johnson at 800-344-4867, ext. 40253 or [email protected] 10 MS CONNECTION: WINTER 2015 Has Multiple Sclerosis (MS) Affected You? Join us for this free and interactive live event for people with MS and their care partners. Interact with a leading MS expert and others living with MS Learn about a therapeutic option for MS Space is limited so RESERVE YOUR SPOT TODAY! ONLINE: livemsevent.com PHONE: 1-800-397-8082 Presented by Light meal will be served Kyle Smoot, MD The Grant House Neurologist & MS Specialist Providence MS Center - Portland 1101 Officers Row Vancouver, WA 98661 Roopa Bhat, MD, PhD Anthony's Homeport - Olympia Neurologist Puget Sound Neurology 704 Columbia Street NW Olympia, WA 98501 Steven Pugh, MD The Onion Bar & Grill 1/22/2015 Neurologist Providence MS Center - Spokane 302 West Riverside Spokane, WA 99201 6:00pm Theodore Brown, MD, MPH Grazie Ristorante - Canyon Park Director of Neuro Rehabilitation MS Center at EvergreenHealth 23207 Bothell - Everett Highway Bothell, WA 98021 1/28/2015 6:30pm Roopa Bhat, MD PhD Verrazanos Italian Restaurant Neurologist Puget Sound Neurology 28835 Pacific Highway South Federal Way, WA 98003 Peiqing Qian, MD The Rock Wood Fired Kitchen - Lynnwood Neurologist MS Center at Swedish 4010 196th Street SW Lynnwood, WA 98036 Kim Kobata, PT, NCS Azteca - Bellevue Physical Therapist MS Center at Swedish 150 112th Ave NE Bellevue, WA 98004 1/21/2015 6:30pm 1/21/2015 6:30pm 1/29/2015 6:30pm 2/12/2015 6:30pm 3/5/2015 6:30pm Find an MS event in your area by visiting livemsevent.com Sponsored by Acorda Therapeutics®, Inc. MS3254 PAID ADVERTISEMENT 11 MSNORTHWEST.ORG | 800-344-4867 Questions about an oral treatment option? Join a live interactive webcast that lets you talk with a medical expert and a person living with MS from the comfort of your home. Join us online every: Tuesday at 7:00 pm ET (4:00 pm PT) and Thursday at 10:00 pm ET (7:00 pm PT) Reserve your spot: MS-Web-Events.com Novartis Pharmaceuticals Corporation East Hanover, New Jersey 07936-1080 © 2014 Novartis T-XMG-1309029 Questions about oral treatment 7.5x8.75 B+W Ad 14011-14.indd 1 Printed in USA 10/14 T-XMG-1309029 PAID ADVERTISEMENT 11/6/14 9:49 AM 12 MS CONNECTION: WINTER 2015 PROGRAMS Living, learning and connecting The Greater Northwest Chapter offers many opportunities to improve your health, enhance your relationships, connect you with others and educate you about living well with MS. All our programs are free. Many require advance registration and some have limited space, so sign up early. To register, visit MSnorthwest.org or call 800-344-4867 and press 1. You can also access videos anytime at nationalMSsociety.org/MSlearnonline. TELE-LEARNING: PARTICIPATE FROM HOME FREE AND AVAILABLE TO EVERYONE IN THE GREATER NORTHWEST CHAPTER AREA — AND BEYOND! Research in MS: Let us answer your questions Learn about the latest discoveries and most promising initiatives on the horizon from two National MS Society research executives, Bruce Bebo, Associate Vice President of Research, and Doug Landsman, Senior Director of International Research Programs. You’ll also have the opportunity to ask questions. OVER THE PHONE Tuesday, January 20: 4:00 – 5:00 p.m. PT 5:00 – 6:00 p.m. MT 3:00 – 4:00 p.m. AKT Thursday, January 22: 7:00 – 8:00 p.m. PT 8:00 – 9:00 p.m. MT 6:00 – 7:00 p.m. AKT Mood & Cognition: What you can do How does MS affect your moods and cognitive functioning – and what can you do about it? You’ll get the answers from Dr. Patti Brettell of Skagit Regional Clinics and learn how to address symptoms with physical activity, medications, counseling, self-management strategies and more. MT VERNON, WA Tuesday, February 10, 6:00 – 8:00 p.m. Skagit Valley Hospital, 1415 E. Kincaid St. SPEAKER : Dr. Patti Brettell KENNEWICK, WA Saturday, February 21, 10:00 a.m. – Noon Three Rivers Convention Center 7016 W Grandridge Blvd. SPEAKER : Dr. Yashma Patel FAIRBANKS, AK MORE TELE-LEARNING: See page 14 for UW Medicine MS Center webinars that are available to anyone in our Chapter. Thursday, January 22, 6:00 – 8:00 p.m. Access Alaska, 526 Gaffney Rd #100 13 MSNORTHWEST.ORG | 800-344-4867 Wasilla Educational Program WASILLA, AK Thursday, March 19, 6:00 – 8:00 p.m. Menard Sports Center, 1001 S Mack Dr. Olympia Multiple Sclerosis Roadshow Experts from the Swedish MS Center are bringing this traveling roadshow of MS education and information to Olympia, WA. Come learn from a nationally recognized team of health care professionals, share your experience and connect with others in the community living with MS. Topics include MS care, the role of MRI, cognition, exercise and more. Brunch will be provided. You do not need to be a Swedish patient to attend. Family and friends are welcome. OLYMPIA, WA Saturday, March 21, 10:00 a.m. – 2:00 p.m. Evergreen State Community College, Seminar II Building, 2700 Evergreen Parkway NW Bellingham Wellness Symposium In this half-day educational event focusing on wellness, you’ll learn from a female urologist with special interest in MS, a physiatrist who will talk about exercise and energy conservation, a counselor who will share stress reduction techniques, and an acupuncture and massage group. Presentations will also address complementary and alternative therapies such as diet and THC. Light refreshments will be provided. SPEAKERS: Carolyn Taylor, MD, Northwest Neurology; Melinda Hardin, MSW, Bayside Therapy Associates; April Sakahara, M.D., Physiatry Associates; Kelly Casperson, M.D., Bellingham Urology Associates; Galie Jean-Louis, LAc, EAMP, RYT, Bellingham Medical Acupuncture BELLINGHAM, WA Saturday, February 7, 8:30 a.m. – 12:30 p.m. Hampton Inn Bellingham Airport, 3985 Bennett Drive MS Center partner programs We are pleased to make our Chapter community aware of these free educational opportunities. EVERGREEN HEALTH MS CENTER Rainier Room, DeYoung Pavilion, Kirkland, WA Register by calling 425-899-3000 or online at evergreenhealth.com/classes Fall prevention for people with neurological problems Friday, January 30, 10:00 a.m. – Noon Neuro-Nutrition Class 4th Friday of each month, 9:00 – 10:30 a.m. UW MEDICINE MS CENTER Northwest Hospital, 1536 N 115th St., Seattle, WA – free parking Register by contacting Kelly at 206-598-3894 or [email protected] Navigating anxiety with MS Wednesday, January 21, 6:00 – 7:15 p.m. SPEAKER: Meghan Beier, PhD, Psychologist 14 MS CONNECTION: WINTER 2015 MS Center partner programs Continued What does an MRI tell you about your MS? Wednesday, February 18, 6:00 – 7:15 p.m. SPEAKER: Annette Wundes, MD, Neurologist Best lifestyle choices and supplement options Wednesday, March 18, 6:00 – 7:15 p.m. SPEAKER: Marie-Sarah Gagne, MD, MS Fellow Can’t make it in person to these UW Medicine events? Join via a webinar by logging into uofw.adobeconnect.com/neurology SWEDISH MS CENTER Swedish Neuroscience Institute, 1600 East Jefferson St., Level A, Seattle, WA Register by calling 206-320-2200 or email [email protected] All classes are FREE and are open to non-Swedish patients. Relaxation and stress reduction Thursdays, 1:00 – 2:00 p.m. Gentle yoga and wellness skills Tuesdays, 1:00 – 2:15 p.m. MS Club Cherry Hill: A support and self-help group Third Friday of every month, 1:00 – 3:00 p.m. Register by contacting Robin Mazna at [email protected] LGBTQ MS connection Second and fourth Tuesday of every month, 6:30 – 8:30 p.m. Register by contacting Shelly Henry-Sharp at 425-481-2667 or [email protected] Care partner support group Third Tuesday of every month, 6:30 – 8:30 p.m. Register by contacting John Daughters at 206-937-9604 or [email protected] VIRGINIA MASON MS CENTER Neuroscience Institute at Virginia Mason Medical Center, 1201 Terry Avenue, Lindeman Pavilion, Seattle, WA Register by contacting Piper Paul at 206-341-0314 or [email protected] MS newly diagnosed seminar Pilates Saturday, March 14, 10:00 a.m. – 2:45 p.m. Lunch will be provided. Music, movement and meditation ALASKA NEUROLOGY CENTER Fridays, 11:00 a.m. – 12:15 p.m. Tuesdays, 11:00 a.m. – 12:30 p.m. 1100 Dimond Blvd, Anchorage, AK Young adults with MS Register by visiting MSnorthwest.org or call 800-344-4867 and press 1 Third Thursday of every month, 6:30 – 8:30 p.m. Like us: facebook.com/MSnorthwest.org MSNORTHWEST.ORG | 800-344-4867 Educational program with Dr. Osterbauer Tuesday, December 30, 6:00 – 8:00 p.m. Meet and greet with new physicians Tuesday, January 27, 6:00 – 8:00 p.m. Educational program with Dr. Ellenson Tuesday, March 24, 6:00 – 8:00 p.m. NATIONAL MULTIPLE SCLEROSIS SOCIETY National Multiple Sclerosis Society Greater Northwest Chapter Regional Office 192 Nickerson St., Ste. 100 Seattle WA 98109 800-344-4867 Chairman: Bill Sample Chapter President: Patricia Shepherd-Barnes Contributed Writing & Photography: Moore Ink. PR & Fundraising Communications Design: DavidOwenHastings.com ©2014 National Multiple Sclerosis Society, Greater Northwest Chapter The National MS Society is proud to be a source of information about MS. The content is based on professional advice, review of independent research, published experience and expert opinion. The National MS Society makes no warranties regarding the information provided and the information is provided for your educational purposes only. Any provided medical information is of a general nature and should not be substituted for the individual therapeutic recommendation or prescription by a medical professional. For specific information and advice relating to your personal medical condition, always consult your personal physician. Watch us: youtube.com/GreaterNorthwest/ 15 THE NATIONAL MULTIPLE SCLEROSIS SOCIETY IS DEDICATED TO CREATING A WORLD FREE OF MS. The National MS Society, Greater Northwest Chapter educates, inspires and empowers those affected by multiple sclerosis. We create innovative programs to meet the needs of people with MS and their families, host exciting fundraising events to give supporters a meaningful role in the MS movement, and fund cutting-edge research into treatments and a cure. With a passion for bringing about a world free of MS, we help everyone affected by the disease to live richer, healthier, more independent lives. IF YOU OR SOMEONE YOU KNOW HAS MS Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society at nationalMSsociety.org or 800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. GRUPO DE APOYO EN ESPAÑOL La Sociedad Nacional de Esclerosis Múltiple ha comenzado un grupo de apoyo en español, por teléfono, para las personas con EM. El único requisito para participar es haber sido diagnosticado de esclerosis múltiple. Este programa es totalmente gratis. Para más información, o para registrarse, por favor llame al 800-344-4867, y oprima el número 3. The National MS Society does not endorse or recommend specific products, services or manufacturers. The Society assumes no liability whatsoever for the use or contents of any product or service mentioned herin. We reserve the right to refuse advertising that is deemed to be inconsistent with the Society’s mission. Greater Northwest Chapter 192 Nickerson Street, Suite 100 Seattle, Washington 98109 NON-PROFIT ORGANIZATION U.S. POSTAGE PAID 800-344-4867 SAN JOSE, CA PERMIT NO. 1513 MSnorthwest.org CHANGE SERVICE REQUESTED TAKE ACTION! Speak up and be heard at State Action Day Your voice matters. You can change laws. You can make life better for people living with MS. Join us for Washington’s State Action Day in Olympia on Tuesday, January 27. You’ll meet in small groups with lawmakers, tell them what it’s like to live with MS and discuss the National MS Society’s top legislative priorities. Register for pre-event teleconferences on Tuesday, January 13 and 20 to learn advocacy skills and get up to speed on key issues such as increased funding for accessible transportation programs and protecting resources for the state’s safety net, which provides access to long-term services, supportive housing, and other health programs. State Action Day is free and open to anyone who wants to make a difference by advocating for policies to improve the quality of life for people with MS. n Learn more and register at nationalMSsociety.org/WAactionday. Can’t be there in person? Sign up for Action Alerts at nationalMSsociety.org/msactivist or contact Linnea Nasman at [email protected] or 800-344-4867, ext. 40237 for tips on scheduling a visit with lawmakers in Washington, Northern Idaho, Montana or Alaska. GET INFORMED, CONNECT AND FIND SUPPORT Want to learn more about the many ways the Chapter can help you live your best life with MS? Visit MSnorthwest.org and click on “Sign up for Emails.” It’s easy to set up your personal communication preferences, so you can be sure to receive all the information that’s most meaningful to you.
© Copyright 2019