New Era of World-Class Cancer Care The Center for Children With Cancer and Blood Diseases Dedication. Compassion. Expertise. WELCOM E TO UNIVERSITY OF M I N N ES OTA A M P L AT Z C H I L D R E N’S H O S P I T A L I’m a pediatrician who treats children with cancer, and I work with a coordinated team of health-care professionals to help these children. Cure is our goal. My colleagues and I combine our academic and research backgrounds with determination and passion to achieve this goal every day. Currently, we cure cancer in 80 percent of our patients, but we strive for 100 percent. We’re getting there, and the team at Amplatz Children’s Hospital is leading the way. Our team of pediatric hematologists and oncologists is known for developing new treatments that have become national standards for treating childhood cancers. We can assure the doctor in Omaha, the parents in St. Paul, or the grandparents in Tokyo that their patient or loved one will receive state-of-the-art care at Amplatz Children’s Hospital. Today, we provide this care in a new, world-class facility. After months of planning, building and anticipation, the 227,000-square-foot University of Minnesota Amplatz Children’s Hospital opened its doors to patients, families and staff on April 30, 2011. The positive response from the children, parents and physicians to the facility is inspiring. People tell us that the building is serene and comfortable. We know the children deserve all the amenities offered. The new hospital elevates patient and family care to the level of advanced research that people associate with the University of Minnesota. The hospital embodies the marriage of science and medical care with patient-centered care. For children with cancer, little things often matter a lot — like the unique décor on each floor at Amplatz Children’s Hospital or the additional space and privacy patients and families enjoy because every room is private. We also know big things matter — like having access to a children’s hospital where researchers make groundbreaking discoveries. When doctors in communities outside the hospital reach out to us on behalf of their patients, we know they want the best care and treatment for their patients. As physicians, we constantly review pages of computer-generated notes to assess a patient, yet we know a personal conversation can provide us deeper insight and clues to the diagnosis. Please feel free to call us. Building relationships is about direct communication. At Amplatz Children’s Hospital, a team of highly trained pediatric oncologists and hematologists manage each child’s care and treatment. We specialize in world-class care that makes a world of a difference to a child. A HOSPITAL INSPIRED BY AND DESIGNED FOR CHILDREN The University of Minnesota Amplatz Children’s Hospital is a 21st century facility, designed to provide the most comprehensive healing environment for children. It’s the only children’s hospital in Minnesota that is part of an academic health center, and home to one of the nation’s top 20 pediatric research programs. Our compassionate caregivers include renowned doctors and researchers from the University of Minnesota and its Department of Pediatrics. Their medical breakthroughs improve the lives of children and adults across the nation and globe. Brenda Weigel, M.D., M.Sc. Director of the Division of Pediatric Hematology/Oncology Associate Professor, Department of Pediatrics Lehman/Children’s Cancer Research Fund Endowed Chair in Pediatric Cancer Masonic Cancer Research Center 2 Amplatz Children’s Hospital also partners with Fairview Health Services to provide young patients with leading-edge medical treatments, technologies and services. Our extensive team of highly experienced health-care professionals offers clinical care in more than 50 pediatric specialties. Equally groundbreaking is our approach to care. We recognize that loved ones are the primary source of a child’s strength and support. That’s why collaboration — which includes the patient, family and staff at every level of our organization — is the cornerstone of our culture. University of Minnesota Amplatz Children's Hospital 2450 Riverside Ave. Minneapolis, MN 55454 612-365-1000 888-KIDS-UMN Discover more: uofmchildrenshospital.org “We now have an outstanding physical facility that reflects the quality of care we’ve provided for years. This new hospital offers families a whole new level of service.” 1 Joseph Neglia, M.D., M.P.H. Physician-in-Chief, University of Minnesota Amplatz Children’s Hospital Chair, University of Minnesota Medical School, Department of Pediatrics 3 Am erica’s Hospitals 2011 in Cancer Care 2 University of Minnesota Amplatz Children’s Hospital ranks as one of the best children’s hospitals in the nation for cancer care. Our hospital’s cancer program is part of the Masonic Cancer Center at the University of Minnesota, which the National Cancer Institute designated as a comprehensive cancer center. In 2011, U.S. News & World Report once again recognized University of Minnesota Amplatz Children’s Hospital as among the nation’s best — topping all other children’s hospitals in Minnesota with a record of eight specialty services rankings. In cancer care, Amplatz Children’s Hospital has the highest rankings in Minnesota and the ﬁve-state region for the fourth year in a row. 4 Opposite Page: 1. Playroom, Level 5; 2. Main Lobby, Level 2; 3. Staff Corridor, Level 3; 4. Patient Room, Level 3; 5. Family Resource Center, Level 2; 6. Waiting Area, Level 5; 7. Care Team Desk, Level 4 5 6 7 University of Minnesota Amplatz Children’s Hospital built its reputation on breakthrough research programs. Evidence of our research strength includes the facts that Amplatz Children’s Hospital: • Maintains a higher rate of enrollment onto clinical trials than any other pediatric cancer program in the state. • Offers the only Pediatric Oncology Phase I program in the state. • Provides patients with relapsed/refractory cancers access to the newest drugs and therapies. • Offers a vast portfolio of treatment options for any child with any stage of cancer. • Participates in national randomized trials for newly diagnosed cancers. Annually, we offer an average of 95 research studies to patients. Of those studies, nearly two-thirds are therapeutic cancer trials and half involve investigational drugs only available at select pediatric centers, such as Amplatz Children’s Hospital. P E D I A T R I C H E M A T O L O G Y/O N C O L O G Y PROGR A M OVERVIEW º VonWillebrand’s disease – Fanconi anemia º Factor deficiencies – Aplastic anemia º Developed over time due to liver or kidney disease – Diamond Blackfan anemia 100 – Sickle cell disease • Neuroblastoma – Extra-corporal circulation management • Germ-cell tumors Tu m s lT um or s or s el er -C m er na Re Liv G N eu ro bl as ph to lT um m or a a om a ’s Ly m in gk od H gk in ’s Ly m ph om rc om as s or od • Non-Hodgkin’s lymphoma – Acute and chronic anticoagulation management -H • Leukemia and solid tumors º Pulmonary embolism Sa º Thrombosis on • Hodgkin’s disease Tu m º Factor V Leiden n – Thalassemia ia – Hemoglobinopathies ai º Thombophilia Recently, my experience proved true again when I had a patient with a mass under the arm, and we needed further tests to determine malignancy. Amplatz Children’s Hospital took my call and my patient right away. em – Clotting tendencies 200 N We welcome the opportunity to discuss patient cases and provide evidence-based advice about treatment choices with referring physicians. During consultations, we discuss the latest treatments, clinical trials and availability. We’re happy to talk to patients and families, and provide expert second opinions that might provide a measure of comfort about the difficult decisions they face. We readily provide multidisciplinary reviews and recommendations for any patient. • Hematologic conditions – Anemia 300 Br We’ve equipped our new hospital and clinics to care for children, adolescents, and young adults who have cancer. For patients and survivors older than age 25, we partner with our colleagues at the University of Minnesota Medical Center, Fairview, and Masonic Cancer Center to ensure the best possible care throughout the lifespan of patients. • Blood-Clotting disorders – Bleeding tendencies 400 uk We offer access to conventional and innovative childhood-cancer therapies, many developed at the University of Minnesota and now standard treatments of care. We also offer more clinical trials than any children’s hospital in the region, as well as one of the nation’s most advanced survivorship programs. Learn about our leukemia, bone and soft-tissue cancer, brain tumor, and survivorship programs on the pages that follow. Amplatz Children’s Hospital also provides specialty care for (but not limited to): I’m a pediatrician in a close-knit community, so my patients and their families are my neighbors and friends. When I have a patient with cancer, I contact the University of Minnesota Amplatz Children’s Hospital. That’s because Amplatz Children’s Hospital is easy to work with, they see my patient immediately, they get back to me with the diagnosis and they update me on my patient’s progress. Pediatric Hematology/Oncology Program Patients 2000–2010 (ages 0–25) Le The team of pediatric hematologists and oncologists at the University of Minnesota Amplatz Children’s Hospital collaborates with physicians from across the nation and the globe to treat children who have malignant and non-malignant diseases. Our specialists have earned a national and international reputation for their leading-edge research and comprehensive care. • Wilm’s tumor and other kidney tumors • Other rare cancers • Other conditions – Hemangiomas Referrals Made Easy WE EVALUATE MORE THAN 100 NEW PATIENTS EACH YEAR. Some say university systems are bureaucratic, but this isn’t the case with the University of Minnesota Amplatz Children’s Hospital. If I have a complicated case, I know that Amplatz Children’s Hospital offers a quick, easy and thorough process for my patient and me. Michael D. Bateman, D.O. Afﬁliated Community Medical Center Willmar, Minn. – Langerhan’s cell histiocytosis – Mastocytosis Left: Alexis Maciej, C.N.P., M.S., R.N., and patient Cameron Cleaves Right: Emily Lipsitz, M.D., and patient Ashley Chow 6 7 P E D I AT R I C L EU K E M I A P RO G R A M The University of Minnesota Amplatz Children’s Hospital is an international leader in the treatment of pediatric leukemia, the most common cancer among children. We offer patients the most advanced treatments — including participation in research studies — whether the diagnosis is acute lymphoblastic leukemia, acute myeloid leukemia, chronic myelogenous leukemia, or Hodgkin’s or non-Hodgkin’s lymphoma. National Leader Collaboration and Coordination • University of Minnesota Amplatz Children’s Hospital’s multidisciplinary team includes leading experts in pediatric oncology, hematopathology, cytogenetics, and blood and marrow transplantation. • The first successful bone-marrow transplant in the United States. • The team works seamlessly and swiftly to provide each child with the most effective treatments, including blood and marrow transplants within the hospital. • The use of umbilical-cord blood as a cell source for transplantation for young children and adolescents. Clinical Outlook University of Minnesota medical researchers pioneered many innovative leukemia treatments that are used widely today, including: • The discovery that transplants using two umbilical-cord blood units results in markedly lower rates of leukemia relapse. Pediatric Leukemia Program Patients 2000–2010 (ages 0–25) “The doctors and nurses at Amplatz ﬁxed my child.” —Mark Lazarchic • The survival rate for Amplatz Children’s Hospital patients with relapsed leukemia (either early or late acute lymphoblastic leukemia) at five years is 20 percent higher than the national average. • Approximately 70 percent of our leukemia patients — both newly diagnosed and relapsed — participate in research studies for their cancer treatment. 180 160 • Our researchers lead the newest trial for high-risk leukemia sponsored by the Children’s Oncology Group, the world’s largest, cooperative children’s cancer research entity. 140 120 100 80 Treatments in One Central Location Defeating Leukemia with Marrow Transplant 60 • Radiation therapy 40 • Chemotherapy “Take my broken child and make her well again.” Mark Lazarchic’s remembered those words running through his mind when the doctors at University of Minnesota Amplatz Children’s Hospital diagnosed his 7-year-old daughter with leukemia in June 2009. • Blood and marrow transplants 20 • Cellular therapy L AP L M C L AL ll AM L T-c e Pr e- B AL L • Combination therapy • New drug therapy SINCE THE START OF THE PEDIATRIC LEUKEMIA PROGRAM, 70 PERCENT OF OUR PATIENTS—NEWLY DIAGNOSED OR REL APSED—WERE ELIGIBLE FOR AND CHOSE TO TAKE PART IN AVAIL ABLE TRIALS. 8 Cecilia’s Story Two years later, Cecilia is cancer-free, but the experience was arduous for Cecilia and her family. “My daughter almost died three times,” Lazarchic said. “But she didn’t because the specialists at Amplatz Children’s Hospital saved her life.” Cecilia’s journey with leukemia started with a visit to her neighborhood clinic in Minneapolis. After evaluating Cecilia, a nurse at the clinic quickly surmised something was seriously wrong and recommended immediate follow-up care. Cecilia’s mother, Gwen Lazarchic, rushed her little girl to University of Minnesota Amplatz Children’s Hospital, where the doctors diagnosed Cecilia with double pneumonia. Tests also revealed that Cecilia had an extremely high white-blood-cell count. The next day, doctors told the family that Cecilia had leukemia. “Cecilia started chemotherapy that night,” said Lazarchic, who stayed by his daughter’s bed side as much as possible, while Gwen cared for three of Cecilia’s siblings at home. During those ﬁrst weeks in the hospital, Lazarchic researched everything he could ﬁnd about his daughter’s disease and her treatment at the University of Minnesota Amplatz Children’s Hospital. “I discovered that my daughter was receiving the most advanced care available anywhere,” Lazarchic said. Cecilia’s disease went into remission at one point, but then roared back. Doctors concluded that chemotherapy alone would not defeat the disease; Cecilia’s best chance for a cure was a bone-marrow transplant. Fortunately, her 18-month-old brother, Silvio, was a perfectly matched donor. To prepare for the procedure, Cecilia underwent radiation to kill the cancer cells and suppress her immune system so the healthy transplanted cells could take hold. Today, Cecilia is home and “almost as good as new,” Lazarchic said. “The doctors and nurses at Amplatz Children’s Hospital ﬁxed my child.” 9 Aeslyn’s Story P E D I AT R I C B R A I N T U M O R P RO G R A M “The doctors and nurses are experts in treating brain cancer. They also know how to help kids and families cope with the disease.” —Nicole Moy Brain tumors are the second most common childhood cancer, next to leukemia. Today, doctors will cure more than half of the approximately 2,200 children who are diagnosed with a brain tumor in the U.S. But the condition remains highly complex because of the location of the tumors and the rapid development of children’s brains. The brain-tumor specialists at University of Minnesota Amplatz Children’s Hospital apply the most advanced approaches to treat brain tumors, integrating science with multispecialty care. We provide a full spectrum of options for patients with brain and spinal tumors, retinoblastoma and neurofibromatosis. Every day, our researchers discover new insights into the root causes of brain tumors. Continuous Innovation • Amplatz Children’s Hospital is one of two centers in the nation to provide a chemotherapy approach that directly delivers therapy to the brain (Blood Brain Barrier Disruption Program). • We developed a multispecialty Brain Tumor Program to understand and effectively treat these cancers. • Through clinical trials, we translate laboratory discoveries into novel treatments for the most aggressive tumors. Oligodendroglioma 6% Looking back, Nicole Moy realized her daughter had many classic symptoms of medulloblastoma, the most common type of malignant brain tumor in children. The usually rambunctious 8-year-old was lethargic and suffering from headaches. Moy took her daughter to a walk-in clinic, where the staff suspected Aeslyn had strep throat. Three days later, Aeslyn attended a party in her Eau Claire, Wis., neighborhood. “At ﬁrst, Aeslyn was okay, but then she started vomiting horribly,” Moy recalled. Moy said she saw other disturbing signs in her daughter. “Aeslyn was walking with an odd gait, like a limp on one side.” The next morning, Moy took her daughter back to the walk-in clinic. Doctors did a CT scan that revealed a mass in Aeslyn’s cerebellum. A follow-up MRI showed a tumor about the size of a golf ball. “The doctor told us that she needed to see a pediatric neurosurgeon at Amplatz Children’s Hospital,” Moy notes. Two hours later, Aeslyn arrived at the University of Minnesota Amplatz Children’s Hospital. The next morning, she underwent surgery to remove the tumor. 10 “In less than 24 hours, they had the tissue samples back and the diagnosis was medulloblastoma,” her mother recalls. “Of course, I didn’t know what that was, but I learned from the doctors at Amplatz Children’s Hospital who took care of Aeslyn. The doctors and nurses are experts in treating brain cancer. They also know how to help kids and families cope with the disease.” Moy said Aeslyn’s neurosurgeon at Amplatz Children’s Hospital removed the entire tumor. “It was a full resection and we were able to go home two days later,” she said. Over the next two months, Aeslyn returned to the hospital for outpatient radiation treatments, and her chemotherapy lasted several months more. She received her last chemotherapy treatment in July 2010. “Today, Aeslyn is cancer-free,” Moy noted. “We’re in a good place now, focusing on helping her grow.” PNET 8% Medulloblastoma 8% Retinoblastoma 23% Glioblastoma 8% Astrocytoma 22% Malignant Glioma 9% • Our pediatric brain-tumor team is led by pediatric oncologists who are experts in neuro-oncology, cellular and immunebased therapies, and cancer genetics. • Our team includes pediatric nurse practitioners, surgeons, pathologists, radiologists, neurologists and endocrine specialists who collaborate on each patient’s course of treatment. • Amplatz Children’s Hospital offers the Minnesota Neurofibromatosis Clinic Without Walls, in which physicians from Amplatz Children’s Hospital and Gillette Children’s Specialty Healthcare in St. Paul collaborate to offer specialized care for patients with neurofibromatosis. • Amplatz Children’s Hospital is a member of the Children’s Tumor Foundation Neurofibromatosis Network. Striving for Breakthroughs Brain Tumor Program Patients 2000–2010 (ages 0–25) Surviving a Brain Tumor Multidisciplinary Collaboration Ependymoma 16% • Researchers continuously explore new drugs, vaccines and radiotherapy techniques to treat tumors in the brain and nervous system. • Amplatz is only one of two centers in America developing and testing brain tumor vaccines for children with brain tumors. • Options range from national trials for newly diagnosed patients to Amplatz Children’s Hospital Phase I trials for patients with relapsed or refractory cancers. • Through the Center for Magnetic Resonance Imaging, patients have access to the fastest, newest and largest imaging technology in the nation. AMPL ATZ CHILDREN’S HOSPITAL BRAIN TUMOR PROGRAM HOUSES THE ONLY MULTIDISCIPLINARY PROGRAM FOR RETINOBL ASTOMA IN THE REGION. 11 BONE AND SOFT TISSUE CANCER P R O G R A M (S A R C O M A) The care of a child with bone or soft-tissue cancer poses many challenges. The detection and treatment of bone and soft-tissue cancers requires a truly comprehensive approach conducted by multiple specialists. Search for a Cure Our Team on Your Side • Osteosarcoma The Bone and Soft Tissue Cancer Program at University of Minnesota Amplatz Children’s Hospital emphasizes a multidisciplinary approach. Our team includes pediatric oncologists, orthopedic surgeons, radiation oncologists, pathologists, physical therapists and oncology nurse practitioners. • Ewing sarcoma Personalized Patient Care Translating Research into Therapies From biopsies to treatment, Amplatz Children’s Hospital offers dedicated practitioners, the latest technology and a healing environment. Our experts collaborate to provide a personalized treatment plan for the child, which might consist of radiation therapy, chemotherapy, surgery, stem-cell therapy or combination therapy. We’ve received national recognition for our successful limbsalvage procedures. • Amplatz Children’s Hospital achieved leadership status for a national rhabdomyosarcoma trial that demonstrated a 20 percent improvement in survival for the highest-risk patients. Bone and Soft Tissue Cancer Program Patients 2000–2010 (ages 0–25) Other Sarcomas 7% Neil’s Story Our goal is a cure for all patients with soft tissue and bone cancers that include: • Rhabdomyosarcoma • Synovial sarcoma • Other tumors • The University of Minnesota houses 26 faculty members across nine departments working on preclinical to translational/Phase I clinical trial research related to bone and soft-tissue cancer. • Amplatz Children’s Hospital enrolled more patients with osteosarcoma in the current international trial than any other children’s hospital in the nation. Rhabdomyosarcoma 9% Synovial Sarcoma 10% Osteosarcoma 40% Ewing Saracoma Family of Tumors 34% AMPL ATZ CHILDREN’S HOSPITAL HAS MORE PATIENTS WITH OSTEOSARCOMA ENROLLED IN THE CURRENT INTERNATIONAL TRIAL THAN ANY OTHER CHILDREN’S HOSPITAL IN THE NATION. 12 “We felt conﬁdent that we were in the right place after meeting Dr. Weigel, she had the experience we needed to feel secure putting Neil’s care in her hands.” —Sarah Egar Finding the Right Treatment For most 14-year-olds, pain and swelling in the knee is often the temporary result of a fall or a slide into home plate. But Neil Egar had experienced discomfort in his knee at night for several months. The discomfort progressed into swelling and sharp pain. “We decided to take him to the doctor because his knee wasn’t getting better,” says Bill Egar, Neil’s father. After meeting with several oncologists, Neil and his family decided to pursue treatment at University of Minnesota Amplatz Children’s Hospital. The family met with pediatric oncologist Brenda Weigel, M.D., who leads the Bone and Soft Tissue Cancer Program at the University of Minnesota Amplatz Children’s Hospital. “We felt conﬁdent that we were in the right place after meeting Dr. Weigel,” said Sarah, Neil’s mother. “She had the experience we needed to feel secure putting Neil’s care in her hands.” The doctor diagnosed Neil with osteosarcoma, a type of cancer that typically develops in the bones or soft tissues of the body, and is often found in the legs. In the United States, sarcomas account for 10 to 15 percent of all newly diagnosed cancers in people under the age of 20. 13 Shari’s Story CANCER SURVIVORSHIP PROGR A M Advances in cancer treatment today enable 80 percent of patients to survive at least five years beyond their diagnosis, but cures sometimes come with long-term medical consequences. The specialists at University of Minnesota Amplatz Children’s hospital are committed to helping cancer survivors live full and productive lives, through advanced clinical programs, therapies, counseling and ongoing research. The Long-Term FollowUp Clinic is available to all cancer survivors regardless of age, diagnosis, or initial treatment center. —Shari VanPuyvelde Our Survivorship Program centers on minimizing long-term health complications for cancer survivors, which can include cardiac problems, visual and hearing deficits, endocrinopathies, and secondary cancers. Coordinated Care Our Survivorship Program team: • Provides personal patient treatment summaries to primary-care providers to ensure coordinated care. • Screens for delayed complications (late effects), including clinical exams and laboratory tests. • Evaluates for adverse general and mental health, functional impairment and activity limitations. Number of Follow-up Clinic Visits by Year Life after Cancer When Shari VanPuyvelde started feeling pain in her right hip, her parents thought the 10-year-old gymnast had pulled a muscle. An MRI, however, showed a type of bone tumor, called Ewing’s sarcoma, on her hip. Doctors prescribed chemotherapy to treat the disease. “My parents explained to me that I had cancer, but I didn’t know what cancer was,” said Shari, now age 22. “I could tell by my parents’ and doctors’ reactions that my illness wasn’t going to be easy to deal with.” During the next couple of years, Shari and her family became very familiar with the University of Minnesota Amplatz Children’s Hospital. Shari had chemotherapy for a year, and six weeks of radiation to shrink the tumor. On January 7, 1998, Shari had a stem-cell transplant using her own stem cells that physicians had harvested months earlier to help rebuild healthy cells in her body. 14 “My parents call my stem cell transplant my second birthday, because it was like being born again,” Shari said. Now, more than a decade from her last day of cancer treatment, Shari feels good, though she deals with a few late effects of her treatment. The type of chemotherapy Shari received led to diminished lung function. “When I go running in the morning, I get short of breath,” she shared. In addition to a yearly lung test at the Long-Term Follow-Up Clinic at the University of Minnesota Masonic Cancer Center, Shari is also screened for late effects based upon current Children’s Oncology Group Survivorship Guidelines. But the residual effects of Shari’s cancer aren’t holding her back. She’s ﬁnishing up her bachelor’s degree at the University of Wisconsin–Eau Claire, and just landed her “dream job” as an oncology nurse in Wisconsin. The Survivorship Program helps cancer survivors improve their long-term health potential with tools and counseling on issues regarding: • Health-risk monitoring • School and learning disabilities • Keys for healthy living • Fertility and sexuality A Focus on the Child’s Future “My parents call my stemcell transplant my second birthday, because it was like being born again.” Education for a Lifetime Leaders in Survivor Research Our experts: • Founded the University of Minnesota Childhood Cancer Survivor Study, a national database of childhood cancer-survival research that started in 1993 and continues today. • Coauthored the national long-term followup guidelines for survivors of childhood cancers, which is the national standard for survivorship programs. • Pioneered new technologies to understand early signs of heart damage following treatment for cancer, ultimately leading to prevention strategies. 194 200 159 126 117 2007 2008 96 100 51 13 2004 2005 2006 2009 2010 SERVICES PROVIDED BY OUR LONG -TERM FOLLOW- UP CLINIC TO CANCER SURVIVORS HAVE QUADRUPLED SINCE THE PROGRAM STARTED IN 2004. 15 OUR PHYSICIANS Michael Burke, M.D. Emily Lipsitz, M.D. Christopher Moertel, M.D. Daniel A. Mulrooney, M.D. Joseph Neglia, M.D. Marie Steiner, M.D. Brenda Weigel, M.D. 612-626-2778 [email protected] 612-626-2778 [email protected]u 612-626-2778 [email protected] 612-626-2778 [email protected] 612-626-2778 [email protected] 612-626-2778 [email protected] 612-626-2778 [email protected] Medical School Ross University School of Medicine Roseau, Commonwealth of Dominica, West Indies Medical School St. Louis University, St. Louis, Mo. Medical School University of Minnesota Medical School, Minneapolis Medical School Loyola University Chicago, Stritch School of Medicine, Illinois Medical School Loma Linda University School of Medicine, Loma Linda, California Medical School University of Minnesota, Minneapolis Medical School MacMaster University, Hamilton, Ontario, Canada Residency Baylor College of Medicine Affiliated Hospitals, Houston Residency University of Minnesota, Minneapolis (Internal Medicine and Pediatrics) Residency Baylor College of Medicine, Houston Fellowship Mayo Clinic - Rochester, Minn. (Pediatric Hematology/Oncology) Fellowship University of Minnesota, Minneapolis (Pediatric Hematology/Oncology and Blood Marrow Transplantation) Residency Medical College of Virginia - Virginia Commonwealth University, Richmond, Va. Fellowship Children’s Memorial Hospital - Northwestern University, Chicago (Pediatric Hematology/ Oncology and Blood Marrow Transplantation) Residency Children’s Memorial Hospital - Northwestern University, Chicago (Pediatrics) Fellowship Children’s Hospital of Philadelphia-University of Pennsylvania, Philadelphia (Pediatric Hematology/ Oncology) Fellowship University of Minnesota, Minneapolis (Pediatric Hematology/Oncology and Blood Marrow Transplantation) OUR NURSE PR ACTITIONERS Melissa Claar, C.P.N.P., M.A. Jody Dahl, C.N.P., M.S., R.N. Tambra Dahlheimer, C.N.P., M.S., R.N. 612-626-2778 [email protected] edu 612-626-2778 [email protected] edu 612-626-2778 [email protected] umn.edu Bachelor of Science in Nursing College of St. Catherine, St. Paul, Minn. Bachelor of Science in Nursing University of Minnesota, Minneapolis Bachelor of Science in Nursing St. Thomas University, St. Paul, Minn. Master of Art in Nursing and Nurse Practitioner Program College of St. Catherine, St. Paul, Minn. Master of Science in Nursing University of Wisconsin, Madison, Wis. Master of Science in Nursing and Nurse Practitioner Program University of Minnesota, Minneapolis 16 Pediatric Nurse Practitioner College of St. Catherine, St. Paul, Minn. Jill L. Lee, C.P.N.P., AC 612-626-2778 [email protected] Bachelor of Science in Nursing University of North Carolina at Chapel Hill Master of Science in Nursing Duke University, Durham, N.C. Lexi Maciej, C.N.P., M.S., R.N. 612-626-2778 [email protected] umn.edu Bachelor of Science in Nursing College of St. Benedict. St. Joseph, Minn. Master of Science in Nursing and Nurse Practitioner Program University of Minnesota, Minneapolis Residency University of Minnesota, Minneapolis (Pediatrics) Fellowship University of Minnesota, Minneapolis (Critical Care, Pediatric Hematology/Oncology) Residency University of Western Ontario, London, Ontario, Canada (Pediatrics) Fellowship University of Minnesota, Minneapolis (Pediatric Hematology/Oncology and Blood Marrow Transplantation) Responsive Partners in Care University of Minnesota Amplatz Children’s Hospital possesses worldrenowned capabilities for pediatric oncology and hematology. They house every subspecialty and have the foremost blood and marrow transplant program, so we are conﬁdent our patients receive the best possible care. Our patients feel the same way. For example, I have a mother who has brought her six daughters to me for years. We found blood abnormalities with one of the daughters and immediately sent her to Amplatz Children’s Hospital for treatment of acute lymphoblastic leukemia. The mother, a traditional Lakota woman, is one of the quietest women I’ve ever met. She rarely spoke. But when she returned from Minneapolis, she told me how well the children’s hospital took care of her little girl. She talked more after her trip to Amplatz Children’s Hospital than in all the years I’ve known her. The physicians at Amplatz Children’s Hospital also are fantastic partners — collegial, respectful and responsive. They tell us what they’re doing and what more is needed. I’m never pulling teeth for more information, which is critical because we do go back and forth with patients. Lynn Simmons, M.D. Black Hills Pediatrics Rapid City, S.D. 1 S P E C I A LT Y S E RV I C ES University of Minnesota Amplatz Children’s Hospital is designed to provide the most supportive, comfortable, and clinically advanced environment for young patients and their loved ones. Blood and Marrow Transplantation (BMT) Program • Houses the largest pediatric Blood and Marrow Transplantation Program in the nation. • Performs more pediatric cord-blood transplants that any other center in the nation. • Equipped with HEPA-filtrated rooms with air exchanged 15 times per hour to ensure patients breathe the purest air at all times. • Offers interactive rooms with large-screen televisions where patients can watch movies, play video games and even explore the outdoors through a zoom camera on the hospital roof. Center for Children with Cancer and Blood Diseases (Journey Clinic) • Houses pediatric infusion center for outpatient chemotherapy and blood transfusions. • Provides convenient and child-friendly blood draw stations. • Includes an outpatient pharmacy for easy patient access. Pediatric Radiation Therapy Clinic • Offers the nation’s only dedicated pediatric radiation-therapy clinic associated with a research university. • Houses an image-guided Elekta Synergy linear accelerator, which provides intensity-modulated radiation therapy. 2 Pediatric Imaging • Offers a full-range of pediatric imaging services, including ultrasound, CT and MRI scans. • Houses Minnesota’s only Dual Source Flash CT scanner from Siemens in Minnesota, which works twice as fast as most scanners, provides better images and reduces required number of scans. Pediatric Emergency Department, Open 24 Hours • Staffed by national experts in pediatric emergency medicine and research; pediatric emergency-medicine nurses who are patient and family-focused; full time Child-Family Life specialists and care coordinators. • Features eight state-of-the-art treatment rooms where parents have space to remain with their children. • Offers two fully equipped trauma rooms that allow emergency staff to care for children who have severe illnesses or injuries. Pediatric Observation and Sedation Unit • Led by a pediatric anesthesiologist, and includes patient and family-focused pediatric sedation nurses and a full-time concierge scheduler. 3 Immediate Access to More than 50 Pediatric Specialties, such as: • Neonatology • Pediatric Ophthalmology • Pediatric Urology • Pediatric Neurosurgery • Infectious Disease 4 Family Resource Center and Children’s Library • Offers professional staff to help families find information on their child’s medical condition. • Provides online and print resources geared to young children and teens. • Assists with creating a Caring Bridge site, and connecting to organizations that help kids and their families. • Pediatric Cardiology Other Special Features of Amplatz Children’s Hospital • Endocrinology (including diabetes care) • Houses all private patient rooms, speeding recovery by reducing noise and interruptions, while also decreasing the spread of infection. Rooms offer 35 percent more space than the industry average, providing space for loved ones to work, share a meal and sleep next to their child. • Surgery • Transplantation Convenient Family-Centered Services • Occupational therapists • Physical therapists • Provides the latest electronic technology, allowing children to learn and play during their stay. Child-Family Life Specialists • Houses a feeding clinic, where children with eating difficulties can see a speech therapist, occupational therapist and a dietitian — all in one convenient visit. • Offer activities to reduce patient and family stress, including therapeutic play and child-appropriate hospital tours. • Offers a therapy gymnasium, including swings, a climbing wall and a zip line. • Help families cope with death, dying and bereavement issues. • Provides interpreter services for more than 150 languages. Social Workers Community Outreach Clinics • Specialize in assessing and helping with the emotional, social and financial impact of treatment on your family. • Fairview Maple Grove Clinic, Maple Grove, Minn. • Speech-language pathologists • Black Hills Pediatrics, Rapid City, S.D. • Offer counseling and coping techniques. • Help children and families adapt to illness and treatment. • Offers two state-of-the-art procedure rooms and 10 spacious treatment rooms, each tailored to provide diagnostic testing, monitoring or observation for young patients. 1. Jason Albrecht, C.C.L.S., and patient Kyle Cook; 2. Imaging Tech, and patient Tyler Deer; 3. patient Owen Kolbinger and his mother, Bonnie; 4. Family Resource Center, Level 2; 18 19 2450 Riverside Ave. Minneapolis, MN 55454 612-365-1000 888-KIDS-UMN Discover more: uofmchildrenshospital.org ©2011 Fairview Health Services. SmartWorks 541201, Marketing 7937.
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