2013 ISSUE
S T O R I E S O F I N S P I R AT I O N ,
C O M PA S S I O N &
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Hopes and Dreams is published by the Phoenix Children’s Hospital
Foundation. To share your comments call (602) 933-2668 or email
[email protected]
Phoenix Children’s Hospital Foundation Board Members
Chairman – Brian Swartz, Apollo Group, Inc.
Vice Chairman - Scott Rehorn, RED Development
Steven S. Schnall
Immediate Past Chairman - Larry Clemmensen, Community Volunteer
Cheriese Chambers
PCH Senior Vice President, Chief Development Officer - Steven S. Schnall
Troy Aossey Photography
Taylor Burke, Rainy Partners
Board Secretary - Sheila Zuieback, Halle Family Foundation
PCH President and CEO – Robert L. Meyer
Richard Kuhle, Vestar Development Company
Anderson Advertising & Public Relations,
Greg Kruzel, Braun Siler Kruzel PC
Mark Love, LKL Partners
Manny Molina, Molina Media Group
OneTouchPoint – CCI
Jonathan Pinkus, Arizona Nutritional Supplements
Frank Placenti, Squire, Sanders & Dempsey
David A. Ralston, Bank of Arizona
David Watson, Revolution Tea
Director Emeritus - Herbert J. Louis, M.D.
Page 3 Phoenix Children’s Hospital - Our History and Future
Page 6 A wish from Steve Schnall
Celebrating the Birthdays of 30 Patients
Page 7 Jeremy, Nathan & Patrick
Page 8 Ethan & Erin
Page 9 Maggie & Nathan
Page 10 Emma & Amanda
Page 11 Sebastian & Ethan
Page 12 Kade & Mia
Page 13 Jayson & Liam
Page 14 Maya & Kyle
Page 15 Brian & Cora
Page 16 Jake & Jazzy
Page 17 Emmett & Zachary
Page 18 Aiden & Dana
Page 19 Nathaniel & Joel
Page 20 Avery & Deanna
Page 21 Mackenzie & Hayley
Page 22 A Community that Cares
Page 26 Join the Party
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September 18, 1983 marks the day that the efforts of
so many practicing pediatricians in the Valley came
to fruition, and Phoenix Children’s Hospital became a
reality. For five long years, the doctors – along with other
influential community members – had studied, planned,
and spearheaded the charge to open a dedicated children’s
hospital in Arizona.
The current size, breadth, and scope of our institution are
astonishing when considered against the history of our
humble beginnings. Today we are one of the ten largest
children’s hospitals in the country. More importantly, we
are among the most respected, with many of our clinical
programs ranked as the best in the nation by U.S. News
and World Report.
We have transitioned from a community children’s
hospital to a full-fledged regional and national powerhouse
in the field of pediatrics with more than 70 subspecialties
offered. We are now home to six topnotch Centers of
Excellence, including Arizona’s only Level 1 Pediatric
Trauma Center, a renowned Children’s Heart Center and
our world-class Barrow Neurological Institute at Phoenix
Children’s Hospital.
Over the past three decades, we’ve transformed from
a clinically-focused children’s hospital to a pediatric
medical center with a laser-like focus on building research
infrastructure, recruiting leading physician-scientists, and
forging important research collaborations with partners
of note from across the country.
The current size, breadth, and
scope of our institution are
astonishing when considered
against the history of our
humble beginnings.
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Below are photos of children who were
our “firsts”—the initial patients treated
by our various departments or to
undergo a lifesaving procedure.
Like pediatric medicine in general, we have grown enormously in skill
and sophistication since we opened our doors three decades ago:
• In 1983, the world’s first successful pediatric heart transplant
was still a year away. Thirty years later, the Phoenix Children’s
Heart Center is averaging one heart transplant per month.
• In the early 1980s, nearly 40 percent of kids diagnosed with
the most common type of pediatric cancer, acute lymphoblastic
leukemia (ALL) would not live five years past diagnosis. Today,
nearly 90 percent of those treated for ALL at our Center for
Cancer and Blood Disorders will be cured.
• Two years ago we joined forces with the Mayo Clinic to institute
a formal pediatric liver transplant program at the Hospital. One
year later we performed the Valley’s first liver transplant in more
than two decades—and its first living donor liver transplant ever.
Jesus, heart transplant in 2011
• In 1983, if babies even survived a severe lack of oxygen at
birth, they would typically suffer from cerebral palsy, lifelong
seizures, and an array of other neurological conditions. The
cooling therapy offered in our Neuro-NICU has dramatically
changed that. The overwhelming majority of the more than 165
babies treated with the therapy have had near normal outcomes.
• In the early 1980s, a diagnosis of HIV/AIDS was essentially
a death sentence. Today, the Bill Holt Pediatric HIV Clinic is
treating more than 60 children infected with the virus who can
expect to live a nearly normal life span.
• Before 2003, and the creation of our Ottosen Family Blood and
Marrow Transplant Program, patients would need to travel to
Tucson (or out of state) to receive a transplant. Now we perform
more than 30 each year with one of the highest survival rates in
the nation.
Daniell, liver transplant in 2012
Macie, cooling therapy in 2009
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Ashley, bone marrow transplant in 2006
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We have bold ambitions for our future—and for
the future of pediatric medicine locally, regionally,
nationally, and even on an international scale.
The ultimate objective is to find
cures for a host of devastating
childhood illnesses.
In 2012, we launched the Ronald A. Matricaria Institute
of Molecular Medicine. Joining forces with the
University of Arizona College of Medicine-Phoenix,
and the Translational Genomics Research Institute—
and led by two distinguished scientists formerly from
Johns Hopkins and USC/Children’s Hospital Los
Angeles—the Hospital’s clinical researchers will
use the genomic information of patients to develop
highly individualized drug therapies for children with
cancer. But the ultimate objective is to find cures for
a host of devastating childhood illnesses like cancer,
type 1 diabetes and more.
We plan to further bolster our research infrastructure
with investments in people, partnerships, and
technologies. We strive to become even more of
a magnet for young doctors-in-training through a
Ronald A. Matricaria Institute of Molecular Medicine announcement
wider array of medical education programs and
collaborations—helping our region’s medical schools develop a corps of exceptional
medical professionals who will remain in the region for the duration of their
professional careers. We have substantial plans to broaden and expand our patient
care offerings, and continually make good on the core mission that has motivated
and sustained us for the past three decades: to offer hope, healing, and the very best
pediatric healthcare available anywhere. Period.
So in honor of our 30th birthday we applaud the heroic efforts of our staff and our
patient success stories. We celebrate 30 years of additional birthday parties, days
at the beach, picnics, school recitals, proms and graduations. We commemorate 30
years of special moments, both big and small. We observe a history of achievements,
breakthroughs, and numerous lives saved.
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Dear Friends:
Birthdays are one of the most anticipated days of the year. For a child, it’s
a day of fanfare with family and friends that is all about them. Time seems
to pass more quickly as we grow older, and our own birthdays pose less
significance. For parents, the joy of commemorating another year shifts to our
As my kids (below) have blown out the candles on their cakes, I’ve made
many wishes of my own. Most of all, I wish them happiness and health. I
hope they discover, question, contribute and feel empathy towards others. I
want them to have the confidence to pursue their dreams and find contentment
in the choices they make. I’m not alone. These are the things most of us wish
for our children.
Phoenix Children’s Hospital turns 30 this year, and I’m honored to serve an
organization that has given more birthdays to our patients, and offered their parents hope that what they desire for their
children can be realized.
In this issue of Hopes and Dreams we celebrate the birthdays that have been reached, and the wishes granted. For some,
the care our patients received saved their lives. Others, we gave quality of life. Many have chronic diseases that impact
their lives in ways most of us will never understand. Here, bonds have been shared and friendships forged that will last
a lifetime. A handful of them were impacted so strongly by their stay at Phoenix Children’s that it changed the course of
their career paths.
But these 30 patients who have celebrated a total of 348 birthdays all have one thing in common: A hospital where
everything we do, and every decision we make, is decidedly focused on giving them a brighter future.
I hope that you’ll celebrate this milestone year with us, and join Phoenix Children’s in our resolve to make even more
birthday wishes come true for our patients and families.
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30 Birthdays
Jeremy was transferred to
Phoenix Children’s Hospital
at just 4 months old after
suffering severe congestive
heart failure. He was one
of the Hospital’s very
first patients. Diagnosed
with a single ventricle and
transposition of the greater
arteries, Jeremy was
essentially born with half
of a heart. At the time, this heart defect was nearly always fatal, and it continues to be one of the most
challenging forms of congenital heart disease to treat. Jeremy has undergone five open heart surgeries
to reconfigure his heart. He still sees his Phoenix Children’s cardiologist, Dr. Roy Jedeikin, every six
months. Beating the odds, Jeremy says, “I owe my life to Phoenix Children’s.”
5 Birthdays each
Nathan and Patrick were born conjoined from the chest to
the hip. Five months after their birth they were separated
at Phoenix Children’s during a complex 18-hour surgery
that included more than 20 doctors and nurses. Since
then, the boys have had additional surgeries, but are happy
and healthy. According to their mom, Dana, the two have
an incredible bond. “It doesn’t surprise me. For the first
few months of their lives they were connected not just
physically, but emotionally,” she says. “Our wish for them
is that they have the same strength and determination
they’ve had since they were born, and to realize they
are two very special people who can overcome anything
together - and on their own.”
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16 Birthdays
Two years ago Ethan left to spend the night at a friend’s house.
His mom, Kristine, got a call from a police officer less than an
hour later saying there had been an accident. Ethan’s friend,
not knowing a gun was loaded, had shot Ethan in the upper
left pelvic area. The blast severed Ethan’s femoral artery. He
lost so much blood at the scene that by the time he arrived at
the Hospital’s Level 1 Pediatric Trauma Center he had virtually
no blood flow left in his body. Ethan’s parents rushed in to find
their son surrounded by a team of surgeons. “We didn’t know if
he was going to make it. As a parent it was horrible to see that
and not be able to help your son. You’re so helpless,” recalls
Kristine. Surgeons operated through the night, first to save
Ethan’s life – then to save his leg. They did both. “It really is a
miracle what they did. Ethan would not have lived if it had been
a different hospital. We’re lucky that we have a miracle story.”
19 Birthdays
Born premature, Erin spent
the first six weeks of her life
in the Phoenix Children’s
Hospital Newborn Intensive
Care Unit. Little did her
parents know that four
short years later she’d be
back with a much more
alarming diagnosis; a
brain tumor. Doctors were able to surgically remove the tumor, but she spent months at Phoenix Children’s
learning to walk and talk again. Erin is now a volunteer at the Hospital and hopes to someday return in a
different role - as a nurse. “Phoenix Children’s is so important to me because it’s been a part of my life for
so long. They gave me a second chance and helped me become the person I am today.”
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4 Birthdays
Maggie was the seventeenth newborn to be treated with cooling
therapy at Phoenix Children’s. “If it didn’t save Maggie’s life,
it certainly gave her a life she wouldn’t have had without it,”
explains her mom, Kristin. Maggie was airlifted to the Hospital
after suffering a severe lack of oxygen following her birth, and
underwent the therapy for 72 hours. It was long enough to halt the
cascading effect of brain damage that can occur without oxygen
– a situation that can be fatal or result in cerebral palsy, lifelong
seizures and other neurological issues. Like the overwhelming
majority of children treated in our Neuro-NICU, Maggie made
a full recovery. “I can’t imagine if she hadn’t had access to this
technology. There’s no doubt in my mind that Phoenix Children’s
Hospital gave our daughter quality of life.”
8 Birthdays
“Cystic Fibrosis is a disease with no mercy,” says Nathan’s mom,
Lesli. She knows all too well. Her son was diagnosed with the
disease at just 10 weeks old. The chronic disease clogs the lungs and
can lead to life-threatening infections. It can also render the body
unable to break down and absorb food. Today, approximately 220
children and 150 adults are cared for at our Cystic Fibrosis Clinic at
the “High Five Hospital” – what Nathan has called Phoenix Children’s
since he was a small child and could see the hand in heart logo from
the freeway. Nathan has recurring medical issues and for five years
couldn’t eat food, receiving all of his nutrition through a feeding tube.
But the disease hasn’t slowed Nathan down or hampered his zest
for life. He says his greatest accomplishments are being a friend to
others and making people laugh.
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1 Birthday
Emma was born with several birth defects; cloacal exstrophy,
spina bifida aculta, a clubbed foot and short gut syndrome.
“We had the best team of surgeons a person could ask for,”
says her mom Jacque. Emma is still followed by an entire
team of specialists – all under one roof. “Our little girl is a
fighter and we know in our hearts that she will continue to
defy the odds and amaze all of her doctors and surgeons. With
the team we have anything is possible!”
23 Birthdays
“Having a team of specialists on hand
was especially important in Amanda’s
situation. There was so much going on all
at the same time that made her situation
very critical. We understand how truly
amazing and skilled the Phoenix
Children’s doctors are, and know that’s
why Amanda is still with us today,” says
Amanda’s mom, Julie. Amanda was 16
when she became violently ill. Diagnosed
with the extremely rare Lemierre’s syndrome, an emergency surgery at Phoenix Children’s saved her life.
She had six surgeries in five weeks and spent nearly two months recovering at the Hospital, with more than
50 people involved in her care. The experience changed her life in many ways, including the career path she
would eventually take. Amanda earned her BSN and is now a registered nurse at Phoenix Children’s.
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7 Birthdays
Sebastian was born weighing only 2 pounds,
5 ounces. He was also born with Prader-Willi
Syndrome, a rare genetic disorder. Sebastian
spent the first five months of his life at the
Hospital. When he did finally go home it was with
a ventilator, feeding tubes, oxygen tank, suction
machine and apnea monitor. The family spent the
next five years making multiple trips each month
to the Hospital from Surprise. But the 40-mile
drive was worth it. “I don’t know of any other
place that makes sure the patient is taken care of
so well, not just while you’re in the hospital, but
once you take your child home,” says his mom,
Cindy. Today she calls her son a walking miracle.
“If you don’t think you’ve ever seen a miracle just
stop by Phoenix Children’s.”
6 Birthdays
Four years ago Ethan’s mom said, “We just got placed on the
kidney transplant list. My hope for Ethan’s future is for him to
have a kidney and be even more of a boy than he is now.” Wish
granted. Four months later Ethan underwent a successful kidney
transplant at Phoenix Children’s. The donor was his grandma.
Ethan was diagnosed at 6 months with a genetic disorder that makes
the kidneys unable to filter protein. Prior to his transplant, Ethan
underwent eight surgeries – including two to remove his kidneys. He
spent years on dialysis, and months at a time at the Hospital. “It’s
so amazing to watch our son grow along with a great hospital like
Phoenix Children’s. Our family has seen so many wonderful stories
come from this Hospital and we’re honored to be one of them.”
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6 Birthdays
Kade was age 2 when his mom, Brooke, brought him to Phoenix
Children’s for a second opinion. The medications her son had been
prescribed to control his epileptic seizures weren’t working. He
was still having up to 100 each day. Kade was evaluated in our
Pediatric Epilepsy Monitoring Unit so doctors could determine where
the seizures were originating, what type they were, and whether
medication or surgery was the best option. Doctors at Phoenix
Children’s put Kade on a new combination and dosage of medications.
He hasn’t had a seizure since and went off all of his medications one
year ago. “Kade actually loved going to the hospital. He loved the pet
therapy dogs, and the child life specialists would bring him games,
puzzles and coloring books. The nurses and physicians thought
outside of the box and really provided personal care,” says Brooke.
“Every birthday is a special celebration for Kade as we look back
to where he was, and how far he has come because of Phoenix
Children’s Hospital. I will always be grateful for the excellent care he
received. It’s been life changing.”
16 Birthdays
A fun day on the lake quickly turned to horror five
years ago. The float tube inside the family’s boat
caught wind and soared out of the boat, with the
slack of the rope tangled around Mia’s right foot.
The force of it not only pulled Mia into the water,
it virtually severed her foot from her leg, leaving
it attached only by a few tendons. Airlifted to the
Hospital’s Trauma Center, Dr. Jozef Zoldos and
Dr. Greg White operated on Mia for eight hours
that first night to reattach her foot. A series of
four more surgeries were performed over the
next 12 days to reconstruct the nerves and transfer ligaments and veins from her left leg to her right. “It’s
impossible to put into words how much we love and appreciate everyone at Phoenix Children’s for not
only saving Mia’s foot, but providing the entire family with safety, security and a sense of peace that we
all so desperately needed,” says her mom, Angela. “My wish for Mia is that as each year passes she grows
more and more proud of the physical scars that are left behind. Instead of them being a bad memory, I hope
they become a constant reminder of what a strong young lady she truly is.”
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6 Birthdays
Jayson was just 2 when his grandma found him face down in the
bottom of her swimming pool. The two had been playing with
the dog in the backyard when Stephanie got distracted for just a
moment. A moment was all it took. When she pulled him out he was
unconscious. Lifeless. She and a neighbor performed CPR before
he was brought to the Phoenix Children’s Hospital Emergency
Department. “I don’t know why we were one of the lucky ones,”
she says now. Jayson made a full recovery and Stephanie is now an
advocate for water safety. She says the day they were released from
the Hospital the nurse wheeling Jayson out told Stephanie that she
couldn’t wait to see what Jayson grows up to be, because it’s going to
be something really special. We couldn’t agree more.
9 Birthdays
Liam was diagnosed with acute lymphoblastic leukemia when
he was 7, and is now in remission. “The care we have received
from Phoenix Children’s has been extraordinary. All the doctors
and nurses have been more than compassionate. They value our
opinions and trust our instincts. They just don’t treat, they care.
They laugh with us and cry with us,” says his mom, Michelle. “We
wish for more birthdays to come than have passed, and to have
them be healthier and happier than any ever before.”
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6 Birthdays
Maya was diagnosed at age 3 with skeletal dysplasia, a condition
that is associated with abnormalities in the size and shape of
arms, legs, trunk and skull. She’s had a series of surgeries at
Phoenix Children’s that enable Maya to walk and ensure that
she’ll have a better quality of life in the future. “If she hadn’t
had these surgeries she’d be wheelchair bound,” says her
mom, Elizabeth. Maya is now in first grade and can do almost
everything her classmates can. “She’s actually learning to jump
rope in P.E.! We are so grateful for Phoenix Children’s Hospital.”
3 Birthdays
Kyle was born at just 26 weeks at a hospital in Chicago.
During his stay in the Newborn Intensive Care Unit he
developed necrotizing enterocolitis, a condition where
the lining of the intestinal wall dies and the tissue falls
off. Following seven surgeries in Chicago, the family
moved to Phoenix. Kenneth, Kyle’s 5-year-old brother
also has cerebral palsy. Knowing they would both need
continued care, and that Kyle would eventually require
a kidney transplant, their mom says that finding the
right medical home for her sons was challenging.
“Phoenix Children’s Hospital was the fourth facility we
tried, and it’s been amazing to say the least,” says Kyla.
“Dr. [Mark] Joseph is so good with Kyle. I’ve never seen
a doctor get along so well with children.”
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28 Birthdays
Brian’s left arm was severed
completely from his body when he
was hit by a truck in a parking lot at
age 7. He was airlifted to Phoenix
Children’s Hospital where surgeons
performed a complex 10-hour
surgery to reattach it. “Although
my accident was tragic, being at
Phoenix Children’s put everything
in perspective. At the end of the day,
I’m alive, healthy and still have my arm,” says Brian, who founded the Foundation’s Patient and Family
Alumni Leadership (PALs) program. He underwent a total of 21 surgeries and extensive physical therapy
to regain use of his arm, and received follow-up care for the next six years. “I got to know many other
children while I was there who had conditions that were terminal. Their smiling faces and attitudes made
me realize how lucky I really was. These people had a larger impact on my life than the accident did.”
5 Birthdays
It’s fitting that Cora returned home on Valentine’s Day following
her heart transplant at age 4. The transplant was a last resort,
following years of surgeries and months of hospital stays to
correct the serious heart defect that doctors found just hours
after Cora’s birth. “It’s a huge deal. You want your daughter to get
better, but somebody loses a child for your daughter to get better,
so you have guilt. We never wished for a new heart. We wished and
prayed that she would get better, but she just kept getting sicker
and sicker,” explains her dad, Dana. Healthy and now keeping
up with her big brother, Cora is home for good. And today, her
parents’ wishes can be firmly focused on the future. “Our wish for
Cora is that she will succeed at whatever she wants to do in life.”
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9 Birthdays
“Type 1 diabetes is one of those diseases you’ve heard of, but you
don’t realize the impact that it has on a child’s life until your own
child is diagnosed with it,” says Jake’s mom, Brandi. Jake learned
he had the disease when he was just 4. Now insulin-dependent, Jake
checks his blood sugar levels several times each day and counts his
carbohydrates before he eats or drinks anything. The goal is to keep
his blood sugar level as close to normal as possible. Low blood sugar
can cause seizures. High blood sugar can cause long-term damage
to organs. Jake is now on an insulin pump, which freed him from the
several insulin shots he once needed each day. But it hasn’t freed him
of the 24/7 management of the disease. Brandi says endocrinologists
at Phoenix Children’s have helped them keep Jake’s blood sugar under
control, and her son attended a weeklong camp for patients with Type
1 this summer. “Even eating a piece of birthday cake requires some
serious forethought now. You grow accustomed to it, but you never
stop holding out hope for a cure someday. That’s what we always wish
for when we blow out our birthday candles.”
16 Birthdays
Jazzy had always been a dancer. So at age 12 when her leg began
hurting she thought it was just a knee injury. Instead, it was bone
cancer. Unlike younger children who are diagnosed with cancer and
unfamiliar with the word and what it means, Jazzy was old enough
to know how this was going to affect her life. “I asked if I was going
to die. You see it on TV and how it looks and what people go through.
It was terrifying,” she says. Jazzy would need chemotherapy, along
with surgery to remove her tibia and replace it with a steel rod. Last
year doctors removed two cancerous tumors from Jazzy’s right lung.
“My journey with cancer is nowhere near over, but my faith will not be
shaken. It has changed me as a person and showed me that life can
change in an instant. But it’s made me stronger than I was before.”
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3 Birthdays
It was supposed to be a celebration of Emmett’s first birthday, but
something was wrong. Karla and Michael’s son was lethargic, coughing
up mucus, wouldn’t eat and couldn’t sleep. Little did they know he
had swallowed a small battery that had fallen out of the back of
their TV’s remote control. For days it had been stuck in Emmett’s
throat, burning a hole in his esophagus. Since then, little Emmett has
undergone several reconstructive surgeries, a complete replacement of
his esophagus, and has spent nearly a year in the Hospital’s Pediatric
Intensive Care Unit. Emmett has chronic lung damage and is on a
feeding tube and trach tube for breathing. But his family is just grateful
that he survived. “There were times when we weren’t sure he’d make
it. I can’t express how much we love this Hospital and everything they
have done for Emmett and our entire family,” says Karla.
19 Birthdays
Zachary was misdiagnosed until age 14 when Dr. Rupali Drewek, director
of the Sleep Clinic at Phoenix Children’s, heard of his case. Zachary’s mom,
Dennise, had known since elementary school that something wasn’t quite
right. Zachary would fall asleep in class or on the bathroom floor. There
were even times he wouldn’t come home from school and she would find
him asleep in the bushes along his route home. And when he did sleep, it
was so deep she couldn’t wake him. Zachary has narcolepsy, but had been
diagnosed with everything from attention deficit hyperactivity disorder to
restless leg syndrome. They’d been to several different hospitals, and tried
various medications that never seemed to help. Thanks to Dr. Drewek they
got a definitive diagnosis, and a treatment that is working. “Because of Dr.
Drewek, Zac has now been given a true opportunity to lead a fulfilling life.
His doors are wide open and it’s so empowering,” says Dennise. “The new
Phoenix Children’s tower is beautiful. But it’s not about the building, it’s
about the people inside. Great things happen there.”
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9 Birthdays
Aiden plays basketball, swims, and last year at heart camp
climbed the rock wall all the way to the top – one of his
proudest moments. These are all things his mom, Jennifer,
worried he wouldn’t be able to do when she learned during
her pregnancy that Aiden had tricuspid atresia. He was
missing the valve that controls blood flow from the right
atrium to the right ventricle. Aiden had his first surgery at
Phoenix Children’s at 6 months, and more at ages 2, 3 and
9. “Many times I look at him with amazement because he
will never know all that he’s gone through. But I do, and I’m
so proud,” says his mom, who considers her family Phoenix
Children’s “alumni” now. “We know how strong we are now,
and we don’t sweat the small stuff because you never know
what the future holds.”
16 Birthdays
When Dr. David Notrica, surgeon and trauma medical director, came out
of surgery with Dana he told her mom, Susan, that he was surprised Dana
had even been able to function. He presumed he would need to remove
about seven inches of Dana’s small bowel. But during surgery he found so
much scar tissue that he needed to remove 32 inches. Prior to that, Dana
had endured years of severe stomach pain. She had stopped growing and
eventually became frail and weak. “She basically started to deteriorate from a
lack of nutrients,” says Susan. Even though doctors had been warned of their
family’s history of Crohn’s disease, it was dismissed. One night after rushing
Dana to the emergency department at another hospital, they transferred her
to Phoenix Children’s where the family finally got a definitive diagnosis of
Crohn’s. But medication wasn’t helping, and a small bowel resection surgery
was the only option. “When you go there, they make you feel like your child
is their number one priority. And thanks to Phoenix Children’s, my daughter
is now living a happy, healthy life and doing all of the things a 16-year-old girl
should be doing.”
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9 Birthdays
It all started one year ago
when Nathaniel began
complaining of arm pain.
The next day his wrist
was swollen and hot to
the touch. The family’s
pediatrician suspected
cancer and sent them from
their home in Safford to
Phoenix Children’s. An MRI
confirmed that Nathaniel had bone cancer. “When you hear cancer, you automatically think defeat,”
his mom, Christiana, said. Nathaniel had other plans. He began chemotherapy immediately, but
his arm couldn’t be saved and was amputated at the elbow. Nathaniel took it in stride and taught
himself to write – and even play Xbox 360 – with his left hand. He recently had to have emergency
surgery, and further tests revealed cancer in his lung and femur, which will require additional
treatments. But that doesn’t deter Nathaniel. Just two days after his recent surgery he visited the
San Diego Zoo and Sea World. For his next round of treatments, Nathaniel’s mom feels confident
in his care at Phoenix Children’s. “Everything about the Hospital is so nice, and I love it. It’s just for
kids, so I can’t imagine a better place for him.”
5 Birthdays
When Joel was 4-months-old his mom took him to his pediatrician
for a regular checkup. What she expected to be a 15 minute
appointment lasted two hours after the doctor recognized light brown
spots on his skin. Those spots turned out to be the telltale sign of
neurofibromatosis type 1, a condition where tumors grow along the
nerves of the skin, brain, spinal cord and other parts of the body.
Neurosurgeons found a tumor in his cervical spine area, and Joel had
surgery to remove his C4 vertebra and fuse his C3 to C6 vertebrae.
“Dr. [Nicholas] Theodore was one of only 12 surgeons in the country
who could perform that surgery, so we felt very lucky that Joel was in
his care,” said Joel’s mom, Jolyn. Joel continues to be monitored for
tumors and an optic glioma, which could cause blindness if it grows.
“We’re not out of the woods, but he’s such a spirited, happy-go-lucky
little boy. Life gives us challenges and the families here all have their
own battles. Phoenix Children’s is here for the big and little dramas
raising children can bring.”
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9 Birthdays
At the start of every school year, Avery stands in front of his
class and explains his condition. He’s just like them; he likes
to swim and go to the movies. But he’s dealing with more than
most 9-year-olds. Avery was born with autosomal recessive
polycystic kidney disease (ARPKD), which causes clusters of
fluid-filled cysts to form in the kidneys. The disease often leads
to kidney failure, and more than one-fourth of infants with
ARPKD will die within hours or days after birth due to breathing
difficulties. “Phoenix Children’s has cared for Avery since he
was 1-month-old,” says mom Adrian. “More than that, they
have cared for us.” At age 4, Avery received a kidney from his
mom. Three days later, he ate food for the first time in his life,
no longer receiving nutrients from a port. Unfortunately Avery
lost his mom’s kidney in April, but he is a fighter and is currently
undergoing dialysis. Looking to the future, Adrian says, “My wish
is for Avery to see the world. I have agreed to be his tour guide if
he’ll have me!”
18 Birthdays
A typical teenager, Deanna saw her world turned upside down last year when
she suddenly experienced an extremely painful headache. Her mom called an
ambulance, and the next thing Deanna remembers, she woke up at Phoenix
Children’s, having had two surgeries for a ruptured aneurysm that caused a
stroke. “I had to relearn everything – walking, talking, everything,” she says.
“It was a shocking experience.” Deanna spent a few weeks in the Hospital,
focusing on speech and physical therapies. Today she continues her own type
of therapy in the form of dancing, writing, walking and exercising. Her future
looks bright, as she focuses on her senior year of high school and prepares for
college. Deanna’s wish for the future is to study respiratory medicine so that
she can help fellow sufferers of asthma and allergies. She feels she had some
great role models in the doctors at Phoenix Children’s. “The doctors there are
really great. If not for them, I wouldn’t be here today.”
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17 Birthdays
Mackenzie recalls what she wore that day, what she had for breakfast,
trying to help her twin brother and screaming for help. Then it gets
a little fuzzy. The next thing she remembers, she woke up at Phoenix
Children’s and found out the car that she and her brother had been
traveling in was involved in a head-on collision with a semi-truck. It
seemed like a dream, but she had the brain injury, fractured skull,
broken shoulder, broken nose, broken jaw and blood clots to prove
that it wasn’t. After multiple surgeries, extensive therapy, and two
months at Phoenix Children’s, Mackenzie was able to go home and is
excited about being back in school. Since the accident, Mackenzie has
changed her outlook on life and appreciates everything she has. That
appreciation extends to her care team at Phoenix Children’s. According
to Mackenzie, “They were wonderful. They did everything they could to
heal my body and make me who I am today.”
15 Birthdays
Hayley says that before her family arrived at Phoenix Children’s
she felt like she had an “old person’s” disease. But approximately
300,000 children in the U.S. have some form of arthritis. She has
the most crippling form, juvenile rheumatoid arthritis. She was 7
when she was diagnosed, the disease so painful at times that she’s
confined to a wheelchair. Her treatment regimen includes regular
cat scans, MRIs, pulmonary function tests and echocardiograms
to see how the disease is affecting her organs and lungs. She
spends one night at the Hospital each month for IV treatment,
takes several pills each morning and gives herself two shots each
week. But this singing, acting, painting and piano playing teen
hasn’t slowed down. “My wish for the future is to have more painfree days, and no physical limitations,” says Hayley. “Phoenix
Children’s is the place you come when you find out that your life
will never be the same. But the care I’ve been given there is what
has given me the ability to dream big dreams, and achieve my
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“Friendship is essentially a partnership.” -Aristotle
As we turn 30, we celebrate the time, talent and resources of our friends and partners for
their recent contributions to Phoenix Children’s.
Valley Walmart and Sam’s
Club locations raised a
whopping $1,055,922 during
their annual campaign for
Phoenix Children’s held in
May and June. In addition to
asking customers to give at
the registers, employees held
softball tournaments, golf
tournaments, black tie affairs
and more. Walmart has now
raised more than $7 million for the Hospital.
Desert Schools Federal Credit Union
raised $300,000 for the Hospital’s 1
Darn Cool School during their annual
Desert Schools Golf Tournament in
March at Encanterra Golf Club.
Costco stores raised an incredible $1,015,256 for Phoenix
Children’s during their May campaign at Valley locations.
Customers gave at the
registers, while employees held
BBQs, bake sales and other
fundraisers. The location on
Thomas Road was the highest
fundraising location in the
entire country for Costco, and
three cashiers at various stores
each raised more than $5,000
at their registers. That’s a lot of asking!
Sands Chevrolet and the Desert
Sands Corvette Club raised more
than $30,000 for the Phoenix
Children’s Hospital Specialty and
Urgent Care Center in Avondale
during their 4th Annual All
American Car Show held in May.
During April’s El Tour de Mesa, 22 riders participated in
honor of a Phoenix Children’s patient through our Miracles
in Motion program, raising $5,500 for Phoenix Children’s.
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The Jalapeño Inferno Bistro
Mexicano hosted a Cinco de
Mayo celebration with live
music, food and fun, raising
$1,500 for Phoenix Children’s.
The inaugural DHL Express Charity Golf Tournament
held in June at ASU’s Karsten Golf Course raised $1,500 for
Phoenix Children’s.
Walgreens raised more than
$195,000 for Phoenix Children’s
during their annual campaign
held in March and April. In
addition to selling icons at Valley
locations, they hosted bake sales
and other creative fundraisers.
Another $40,000 was raised
during the Walgreens LPGA Golf
Tournament. The Legends Tour,
the official senior tour of the
LPGA, featured some of biggest
names in women’s golf. Michelle
Redman, a two-time LPGA tour
winner took home the trophy.
Leadership Circle members raised $419,000 and awarded
six grants. In April, Hospital leadership and physicians
presented their proposals at the Paradise Valley Country
Club, with the 232 members voting on how their donated
funds would best benefit the Hospital. Members funded
the purchase of 11 NM3
monitors, which will give
critical care physicians
real-time information on a
patient’s lung status, thereby
reducing complications.
Another grant will provide
genome sequencing for
patients with brain tumors
that have had a high mortality
rate, helping to find alternative treatments through
molecular medicine and accelerate discovery of new
therapeutic treatments.
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Held in April, the 3rd Annual Desert Peaks Golf Invitational
hosted by Desert Peaks Pizza and Grille raised $5,500 for
the Hospital.
More than 100 Kohl’s
Department Stores
A-Team community
volunteers hosted their
fifth “Day of Play” for our
patients in May. Kohl’s
associates read books to
our patients, participated
in craft activities and
passed out stuffed animals.
The patients were able
to practice their medical
skills on the stuffed
animals at “wellness
check” stations. Since
2003, Kohl’s has donated
more than $2.9 million to
Phoenix Children’s.
ABC15 hosted their 2nd annual Telethon benefiting Phoenix
Children’s in April, raising more than $332,000. While
broadcasting live from the Hospital, the station’s on-air
personalities interviewed patients, families and special
guests. In honor of the Hospital’s 30th birthday, viewers
making a $30 donation had
a stuffed PetCake delivered
to a hospitalized patient in
their name. Thank you to
the event’s sponsors: Desert
Schools Federal Credit
Union, Hungry Howie’s
Pizza, Sanderson Ford and
Wells Fargo. And supporters:
Arizona Central Credit Union,
Big Two Toyota, Charleston’s
Restaurant, Culver’s, Dolce
Salon & Spa, IM=X Pilates,
Jersey Mike’s, Curacao, Lerner
& Rowe, Macy’s, Panda
Express, Papa Murphy’s,
Rural/Metro Southwest Zone,
Sagicor Life Insurance, Total
Freedom Dental Implant
Center, Walgreens, Walmart,
Zerorez and Zevia.
How many Phoenix
Children’s employees
and candy stripers will fit
in the second employee
transport van donated to
the Hospital by Toyota?
That would be 25. It was
the Load-a-Toyota event held in June to thank Valley Toyota
Dealers for contributing more than $700,000 in support of
the Hospital over nearly a decade.
Raising $104,000 for Phoenix
Children’s and the Children’s
Cancer Network, the Grand
Canyon University – Run
to Fight Children’s Cancer
held in March hosted more
than 4,000 runners and
March’s Rock N’ Glow 5k Race Series presented by
Hi5F Events held in downtown Phoenix and Glendale was a
unique combination of 4,000 glow-in-the-dark participants,
and a rockin’ after-party that raised more than $5,000 for
Phoenix Children’s.
Green Street Realty, LLC
partnered with Phoenix Fashion
Week for an evening that
celebrated local clothing designers
and boutiques. A fashion show
was held on Green Street Realty’s
rooftop overlooking Phoenix that
raised $9,800.
During their Month of
Giving in March, Dolce
Salon & Spa raised
nearly $12,000. Each
Tuesday they donated
all proceeds from select
services to the Hospital,
and for every customer
who donated $5 to
Phoenix Children’s, Dolce donated an additional $2.
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Ethan Maurice is a former patient
of Phoenix Children’s who was
born with a rare blood disorder,
and suffered a stroke while in high
school. He wanted to give back
to the hospital that saved his life,
and rode his bike from coast to
coast this summer to raise money
for Phoenix Children’s. Starting
in Virginia, Ethan and his brother
Reid, pedaled more than 4,000
miles. So far the two have raised
more than $20,000 for the Hospital.
You can still give to their “Pedaling
with Purpose” campaign by visiting or texting “PEDAL” to
50555 to make a $10 donation.
The Sereno Soccer Club held
their first ever 24-hour soccer
marathon in April that raised
$15,000 for Phoenix Children’s.
Students at the Glendale
TaeKwonDo Academy
held a “Board Break-AThon” in May that raised
$10,000 for our patients
and families.
The McLane Sunwest Golf
Tournament held in May at
Greyhawk Golf Club raised
The 4th Annual “A Night to Shine for Reese Golf
Tournament” held in March at the Belliar Golf Course
raised nearly $8,000.
Jersey Mike’s Subs
raised more than $54,000
for Phoenix Children’s
during their March Month
of Giving. Their customers
gave at the stores, and on
March 27, all sales from
all Valley Jersey Mike’s
Subs were donated to the
The 11th Annual Golf Tournament hosted
by Arizona Precision Sheet Metal raised
nearly $12,000 for the Hospital. It was held
in April at the 500 Club in Phoenix.
The McDowell
Mountain Music
Festival celebrated its
10th anniversary in
March, raising $20,000
for Phoenix Children’s.
Held at the Margaret T.
Hance Park, more than
14,000 people attended
the festival.
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Zevia donated $5,000 to Phoenix
Children’s and sponsored the
Hospital’s ASU Dance Marathon
and ABC15 Telethon.
Guests brought their
suitcases packed, hoping to
win the grand prize of jetting
off to Sonoma for a luxury
weekend. The Phoenix
Suitcase Party presented by
Lexus was held in April at
Scottsdale Airpark. It was
hosted by the 20-30 Club of
Phoenix and raised $16,000
for our patients.
During the month of April,
Hungry Howie’s Pizza
donated $1 from every
deep dish pizza sold to
Phoenix Children’s. Along
with their customers’
donations, the campaign
raised $5,000. During the
ABC15 Telethon, Hungry Howie’s also surprised one of our
patients with two suite tickets to the Taylor Swift concert.
8/16/13 2:31 PM
Sela, Alex and Ari Poulos
are triplets who were
cared for in our Newborn
Intensive Care Unit. They
formed the band Triple
Firrre, and performed at
Desert Stages Theatre for a concert fundraiser in May that
rocked $1,550 for the Hospital.
Wendy’s raised $30,000 for
Phoenix Children’s when
their more than 80 locations
in the Valley and northern
Arizona sold $1 Frosty Key
Tags, which entitle holders
to a free Jr. Frosty on every
Wendy’s visit through
With $1 from every
Mini Murph pizza kit
sold in February and
March going straight to
Phoenix Children’s, Papa
Murphy’s locations in
the Valley and northern
Arizona raised more than
On May 21, Valley Dunkin’
Donuts locations offered
guests a small iced coffee for
just 31 cents, with all proceeds
benefiting Phoenix Children’s
and raising nearly $2,000.
America’s Taco Shop
raised $2,100 for the
Hospital during their
Carne for a Cause event.
On June 1, 20 percent
of all proceeds from
their Valley locations
supported Phoenix
Fundraising never looked so
fashionable. White House
Black Market, Soma and
Chico’s raised more than
$20,000 during their May
campaign for Phoenix
Emerging Leader members hosted
their first happy hour in April at
Searsucker of Scottsdale, with 45
guests attending to learn about the
new program. In May, members
held a joint Speakers Panel with
Young Valley Professionals and
the Greater Phoenix Chamber
of Commerce, with Susan
Anable, Vice President of Cox
Communications and Jay Parry,
CEO of the Arizona Super Bowl
Host Committee sharing how they achieved success in their
careers at a young age.
The Phoenix Children’s
Patient and Family
Alumni Leadership (PALs)
group, along with Valley
Leadership, funded the free
Simply Sayin iPhone and
iPad application that explains
medical terminology in kidfriendly terms.
If you or your company
would like to partner with
Phoenix Children’s Hospital,
call (602) 933-4483 or email
[email protected]
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30 ways you can help
our patients as Phoenix
Children’s Hospital
celebrates 30 years of
gifting birthdays.
Donate $30 for 30 years at
KTAR Give-A-Thon
September 24 and 25
Pledge your support for us during the KTAR Give-A-Thon. News-Talk 92.3 KTAR and
Arizona Sports 620 will broadcast live from the Hospital
as we celebrate our 30th birthday, filling the Phoenix
airwaves with amazing stories of courage and hope
from our patients, families and staff. Become a Miracle
Maker and have a teddy bear delivered to a hospitalized
patient with a one-time donation of $300 or a pledge of $30 per
month. During the event call in at (602) 933-4567 or donate anytime
Ignite Hope
December 14
Walk with us during our 2nd Annual Ignite Hope candlelight walk.
Participants will walk 1.7 miles from Central Phoenix Plaza to the
Hospital, where patients will join in the celebration and watch the
program and ceremony from their rooms. Guests may also bring a
toy to place under the Hospital’s holiday tree. The event begins at
5:30 p.m. Visit to register.
Miracles in Motion
Marathon - January 19 • Bike Race - April 5
Get in motion for our patients. Run or walk in the P.F. Chang’s Rock n’ Roll Marathon and Half Marathon
or bike in El Tour de Mesa. Both races are part of our Miracles in Motion program. We’ll help you train,
while you compete in honor of one of our MVPs (Most Valuable Patients) and pledge to raise $1,000 for the
Hospital. We’ll help you do the fundraising and reach the finish line! Visit for
more info and to register.
Leadership Circle
Join the Leadership Circle and have a direct voice in how your
donations are put to work. Each Leadership Circle member
gives a minimum donation of $1,000, with many members
giving more. These annual gifts are pooled and fund highpriority clinical needs through a competitive grant process. For
information email [email protected] or visit
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Festival of Trees
Bid on a beautiful holiday tree during the annual Festival of Trees December
2-5 at the Montelucia Resort & Spa. The trees are decorated by Valley interior
designers, displayed throughout the event, and auctioned off to the highest
bidder. You can bid online at Join us on December 3
for a special Cocktail Party from 5:30-7 p.m. or the event’s Luncheon on
December 4 at 11:30 am. For more information call
(602) 933-2663 or email [email protected]
PCH Golf Tournament
Get teed off. It’s the 15th Annual Phoenix Children’s Hospital
Golf Tournament on November 22 at Troon North Golf Club.
The Valley’s premier charity golf tournament will also include
an exclusive “Night BeFORE Party” on November 21 at The
Casablanca Lounge in Scottsdale. Visit or email
[email protected]
Children’s Fight for Life Casino Night
November 2
Get your poker face on for the Children’s Fight for Life 8th
Annual Casino Night at the Montelucia Resort & Spa with
dinner, cocktails and rolling of the dice. All proceeds benefit
our Center for Cancer and Blood Disorders. Visit
Beach Ball 2014
March 1
We’re celebrating west coast style with a Malibu-themed gala
at The Phoenician. All proceeds will benefit the Hospital’s
Ronald A. Matricaria Institute of Molecular Medicine. Visit
Blue Jeans Day
September 18
Go casual at the office. Encourage your employees to wear
blue jeans to work for a $5 donation in honor of our birthday.
We’ll provide “I’m Casual for Kids” stickers for employees to
wear to show their support. The three companies that raise
the most in donations (minimum of $5K) will be invited to our
KTAR Give-A-Thon on September 24 and 25 to present their
check live on-air. Call us at (602) 933-2649 or email
[email protected]
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Battle of the Bands
October 19
Rock on. It’s the 7th Annual Battle of the Bands at
Cityscape Phoenix. Gates open at 6:30 p.m. for this epic
struggle for rock ‘n’ roll bragging rights while we raise
money for our patients. Join us for music, dancing,
beverages, food and fun. Email
[email protected] or visit
Check out our new website at
Support Partner Campaigns
Say “yes” at the cash register. Look for campaigns
supporting Phoenix Children’s at our following partner
locations: Love’s from August 19 to September 30, Valero
Corner Stores and Great Clips from October 1 to 31, and
Carl’s Jr. from August 27 to September 23. On September 17
and 18, California Pizza Kitchen is celebrating our birthday
by donating 20 percent of all sales to the Hospital and
accepting new toys for our patients at all Valley locations.
The Refreshing Hour
September 25
“Wine down” with us for the final Refreshing Hour at
Beckett’s Table in Phoenix from 5:30-7:30 p.m. Tickets
are $10 and include a signature Refresh Glass product
and cocktail. To RSVP visit
Be an Emerging Leader – young entrepreneurs and professionals
who advocate, fundraise and volunteer for Phoenix Children’s.
Email [email protected]
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Moon Valley Grasshopper Bridge Run
September 28
Walk or run for our patients in the Moon Valley Grasshopper Bridge 5K Run, 5K
Walk, or 2-Person Relay. It’s at Moon Valley Park, with all proceeds benefiting
the Hospital. Visit
Para los Niños Radiothon
December 12-14
Escuchar during the Para los Niños Spanish
Language Radiothon. It’s the fifth year that Entravision
Communications will simulcast their 3-day radiothon for
Phoenix Children’s on each of their Spanish language
stations – 710AM ESPN, 106.9/107.1 Jose and 103.5
Tricolor – with callers pledging their support.
Sold On PCH
Help us build a better hospital. The Sold On PCH
program brings the real estate community together
with pledges to make a contribution to Phoenix
Children’s at the close of escrow for every home
sold, after every appraisal is given, or following every
inspection. For more information, email
[email protected]
Dance Marathon
February (date tbd)
Get your groove thing on Sun Devils! Join
the 2nd Annual Dance Marathon, held at
Arizona State University. Ask your friends
and family to sponsor you, then dance
the night - and morning - away for our
patients. Visit
Hands of Promise
October 12
Make a promise. The Hands of Promise event benefits Phoenix Children’s
at the Arizona Grand Resort with dinner and cocktails. Visit
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Zehring Car Rally
October 19
Get revved up for the 7th Annual Zehring Car Rally at the Walmart at 2621 S. Market St.
in Gilbert. The event begins at 9 a.m. and will be the largest Zehring Brothers car rally
ever, with more than 150 cars on display. All registration fees will benefit the Barrow
Neurological Institute of Phoenix Children’s Hospital. For info or to register your car
call (480) 628-9553 or email ZehringBrothersBenefi[email protected]
Carols and Candlelight
December 7
Join us for the Carols and Candlelight event at
the Terravita Country Club in Scottsdale at 6 p.m.
Enjoy the Dickens Carolers, cocktails, dinner and
a champagne toast during this intimate holiday
celebration that will benefit the Hospital’s Ottossen
Family Blood and Marrow Transplant Program. Visit
Follow us.
Buy holiday cards created by our patients
diagnosed with cancer. ArtWorks is the Center
for Cancer and Blood Disorders’ signature
fundraising program. The festive cards are
available at all Valley Safeway stores or online
Be a PAL – a member of our Patient and Family Alumni Leadership program. PALs are
former patients and family members who give back to the Hospital through events and
personal fundraising. Email [email protected]
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Gym & Swim Festival
November 2
Bring your kids to the Gym & Swim Festival at the Arizona Sunrays Dance Center
& Hubbard Family Swim School from 2:30 – 6 p.m. There will be open gym, swim
and dance classes, live music and food. Email [email protected]
McDowell Mountain Music Festival
March 28-30
Mark your calendar for the 2014 McDowell Mountain Music
Festival. This “party for the people” brings together a number
of bands from all over the world across a variety of genres.
It’s all for charity, with a portion of the proceeds benefiting
Phoenix Children’s. The event will be held at the Margaret T.
Hance Park in downtown Phoenix. Visit
Duel in the Desert Golf Tournament
September 26
Get to the greens for the 12th Annual Duel in the Desert Golf Tournament
hosted by McLane Foodservice. It’s at the Ocotillo Golf Resort in Chandler.
Email [email protected]
Teach your kids that change is good through the
Piggy Bank Club. Kids get a free piggy bank and
decorate it at the Hospital. Children save their
coins, with parents encouraged to match their
child’s donation. For more information, email
[email protected]
Torch Relay
October 14
Join the Torch Relay for Children’s Miracle Network.
Taking place in multiple cities across the country,
our own local 5K walk will raise money for Phoenix
Children’s and will be held at the JW Marriott Desert
Ridge. Visit
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2929 E. Camelback Road, Suite 122 • Phoenix, AZ 85016
(602) 933-4483
1919 East Thomas Road, Phoenix, AZ 85016
(602) 933-1000 | (888) 908-KIDS (5437)
5131 E. Southern Ave., Mesa, AZ 85206
20325 N. 51st Ave., Ste. 116, Glendale, AZ 85308
6990 E. Shea Blvd., Scottsdale, AZ 85254
1665 N. Avondale Blvd., Avondale, AZ 85392
SPECIALTY CARE - (855) 372-0664
1501 W. 24th St., Suite 203, Yuma, AZ 85364
30 Years of Gifting
In celebration of 30 years, you can
help us give a patient another
birthday with your gift of $30.
With a one-time donation of
$300 or more, or a pledge of $30
per month, a Phoenix Children’s
teddy bear will be delivered to a
hospitalized patient in your name.
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