Vista ‘Vision for improving continence care’ Spring 2014

Spring 2014
‘Vision for improving continence care’
All systems are go here at B&BF HQ as
we fly eagerly into another year. With a
host of projects planned for the coming
year we could witness one of the charity’s
greatest years yet!
To begin, we would like to ‘welcome’ you
all to the first transformation of the new
year - the launch of the B&BF newsletter
‘Vista’. Vista aims to explain who we
are and what we do and to be a source
of refreshing news and information on
current bladder and bowel related issues.
Vista replaces the B&BF Magazine which
was released twice a year but Vista will
be more frequent. Each issue you’ll see a
collection of fascinating stories and news
from the world of continence all brought
to one place, for you the reader. Whether
you’re a member of the public or a heath
care professional, there will always be
something for everyone in Vista!
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© Copyright Reserved
What else? I hear you ask curiously –
well there are too many new ventures to
mention here in this short space – but, we
will keep you updated throughout the
year on the B&BF News
Round Up
page and of course on our website.
Now, a quick look at the year just gone.
2013 saw the start of the momentum.
We launched our first ever Facebook
campaign on Stress Urinary Incontinence
with ERIC the childrens continence charity.
B&BF’s Clinical Manager Debbie Gordon,
featured on a panel of clinical experts
taking part in online clinics for IBS and
for men’s problems. We launched a new
Catheter Care Booklet and numerous
factsheets and we also developed our
own accredited catheterisation courses for
health care professionals. We would like
to take this opportunity to thank everyone
who supported us in 2013; without your
kind and generous support much of our
work simply would not happen.
Finally, all of us at B&BF hope you enjoy
reading ‘Vista’ and like its format. It is
different from the B&BF Magazine yes, but
we are confident that you’ll find the content
engaging and interesting as always.
Thank You.
Registered Charity No: 1085095 and a Company Limited by Guarantee No: 4125585.
About B&BF
Click to view
3 News Roundup
6 Patient Stories
7 B&BF News
Vista is produced by B&BF . B&BF is the only UK wide
charity dedicated to helping people manage their continence
needs as a result of either or both bladder and bowel control
The charity is passionate about raising awareness of these
often hidden conditions and provides information and advice
services for individuals, patients and health professionals.
B&BF campaigns for better services, treatments and
products by working with researchers, individuals and
related organisations, and will work towards delivering the
kind of services that meet the needs of people affected by
these conditions.
The following services are available:
8 Our Fundraisers
9 Health Care News
11 A Bit Extra
The Trustees
Prof Alan Cottenden: Chairman
Prof Chris Chapple
Wendy Colley, OBE
Jane Dixon
Rob Fletcher
Tim Harvey
Julia Herbert
Joanne Townsend
The B&BF Team
Robert Dixon: Chief Exec
Heather Ellison: Support Services Manager
Debbie Gordon: Clinical Manager
Diane Jeffs: Admin Assistant
Anne Shehzad: Clinical Project Assistant
Jason Tate: Partnership Consultant
Michelle Tysoe: Information Officer
Helpline: Offering confidential, clinical advice from
specialist continence nurses and physiotherapists.
Tel: 0845 345 0165 (24 hour answer phone).
Website: Browse information on symptoms, treatments
and product choice, and access information resources.
Just Can’t Wait Toilet Card: A wallet sized card
designed to help you gain access to toilets when you’re
out and about.
Individual Supporter: Register online as an individual
supporter to get access to all website areas, download
resources, and receive our Just Can’t Wait toilet card.
Health Professional Supporter: Register online as a
Health Professional supporter to gain access to the
Resource Centre and Library.
NHS Continence Clinic Database: Our clinic facility
provides local information on NHS and private
continence services. For details on local continence
services please contact the B&BF office on 01536
General Enquires: 01536 533255
Clinical Helpline: 0845 345 0165
Email: [email protected]
Please support our work
if you are not already an online supporter,
please consider registering. As an online
supporter you will have your own login and
password which will help you gain access to
all of our online resources, including ‘Vista’ &
you’ll receive our Just Can’t Wait toilet card.
Click here for details.
News Roundup
Should you get a PSA
Making the decision to have a PSA test depends on a
variety of factors. Here is some information that may
help you in your decision.
The PSA test is a blood test which can detect the
early signs of prostate cancer. The test measures the
total amount of prostate specific antigen (PSA) in your
blood. PSA is a protein produced by normal cells in the
prostate and also by prostate cancer cells. It is normal for
all men to have a small amount of PSA in their blood. A
raised PSA level may show that you have a problem with
your prostate, but not necessarily prostate cancer.
What can affect your PSA level?
Urine infection
An enlarged prostate
Prostate cancer
You can find out more
about PSA tests on the
NHS Choices website.
Truly a Man’s best friend!
A study in 2011 revealed that dogs can be trained to
detect prostate cancer by smelling urine.
The Belgian Malinois shepherd used in the study was
trained by the clicker training method to recognise the
scent of urine from men with prostate cancer. The dog
completed all the runs and correctly identified the
cancer samples in 30 of 33 cases.
To read more of this story please go to the News
Section on our website.
What are the three most
common prostate problems?
1.An enlarged prostate - this is the most common
2.Prostatitis - an inflammation or infection of the prostate
3.Prostate cancer
Symptoms to look out for;
• Needing to pee more often, especially
at night.
• Difficulty starting to urinate.
• Straining or taking a long time to finish urinating.
• A weak flow when you urinate.
• A feeling that your bladder has not emptied properly.
• Needing to rush to the toilet - you may
occasionally leak before you get there.
• Dribbling urine.
If you are experiencing any of these problems it’s a
good idea to get things checked out, even if it is just to
put your mind at rest.
Speak to your GP or contact our Helpline 0845 345
You can also find out more in our For Men section on
our website.
News Roundup
A nonsurgical treatment
for women with Pelvic floor
Pelvic floor dysfunction (PFD) refers to a wide range
of conditions that occur when the muscles of the pelvic
floor become weakened. Weak pelvic floor muscles can
result in bladder and bowel problems such as
incontinence, prolapse as well as pelvic pain. Both
women and men can experience PFD and at any age,
however it is more common in women.
Women with bladder, bowel or pelvic pain symptoms
could benefit from pelvic floor rehabilitation, which is
a ‘work out’ for the pelvic floor muscles. Women who
experience tearing after vaginal deliveries could also
benefit from this. Yet many women are offered
medication to treat their symptoms and are not aware
that alternative treatment methods exist, even though
nonsurgical options can be as good as medicine or
In a study published in Female Pelvic Medicine &
Reconstructive Surgery, researchers analysed data
from nearly 800 women with symptoms of pelvic floor
dysfunction who underwent the treatment.
You can read this research in our News section on our
How smoking can make you
feel 9 yrs older!
Scientists have given us many reasons not
to smoke, but now, researchers from the
University of Pennsylvania provide evidence that, in white women with specific genetic
variations, smoking causes early signs of
menopause - up to 9 years earlier than
You can read more of this in our News section on
our website.
Something coming down
If you’re feeling a sensation of ‘something coming down
below’ you may have a prolapse. Prolapse is a
condition in which one or more of the pelvic organs
comes down or bulges into or out of the vagina. The
pelvic organs consist of the uterus, bowel and bladder.
Symptoms include:
• A heavy dragging
feeling in the vagina or
lower back.
• Feeling of a lump in the
vagina or outside the
• Urinary problems
• Bowel problems such as
difficulty moving the bowel
or a feeling of not
emptying properly.
• Discomfort during sexual intercourse.
If you have any of these symptoms speak to your GP or call
our Helpline on 0845 345 0165.
You can also read more on the Prolapse page of our
News Roundup
Did you know that smoking can
cause bladder cancer ?
Once again smoking and its adverse effects have been
scrutinised and thanks to years of research, the links
between smoking and cancer are very clear. The risk of
a smoker developing bladder cancer increases with age
and men are more likely to develop this form of cancer
than women. If you smoke the risk is up to 4 times that of
someone who has never smoked.
It’s all to do with chemicals in the smoke that get into the
bloodstream. The chemicals are filtered out of the blood
by the kidneys and end up in the urine. When the urine
is stored in the bladder, these chemicals come in contact
with the bladders innermost lining.
One of the common symptoms of bladder cancer is
blood in the urine, which is not usually painful and can
come and go. There can also be a burning feeling when
you go to the toilet and you may need to go more
frequently than usual or you may need to pass urine
very urgently.
If you have these symptoms it’s important that you go to
your GP as soon as possible.
How does it all work?
Everybody does it, but do you know how your gut
works? until now even researchers were unsure
about the exact mechanisms behind a bowel
Well new research reveals that two sets of so-called
"pacemakers" work
together to create a
certain rhythm, and
these pacemakers use
nerves and muscles to
help you have a bowel
You can
this in our News
section on our website.
Hurrah for Cranberries
We’ve all heard the age old wisdom that cranberries are
able to prevent a urinary tract infection – but is this
actually true and does it matter what form they are
consumed in? Well according to scientific research,
cranberries, whether in a sauce or as a juice do help
prevent UTI’s.
So what about cranberry
extract tablets? According to
a study held in 2011,
cranberry juice itself, is
much better at
preventing biofilm formation,
the precursor of urinary tract
infections, than cranberry
So if you have a UTI such as cystitis, consider trying
cranberries. If it works, let us know and we can feature
you in our Patient Stories section.
You can read more of this research here.
Continence Advisor or Continence
Physiotherapist, do you know who does
what? Click here to find out.
Patient Stories
“I first remember going to the doctors about my bladder
problems when I was seven. My Mum was fed up of me going
to the loo and then a few seconds later demanding to go again.
We were told it was nothing to worry about and I would grow out
of it, but I didn’t.
Emma’s story:
I went to the loo around 20 times a day and got up three times at night. It
disrupted everything in my life - my sleep, schoolwork and friendships. At senior
school we weren’t allowed to go to the toilet during class and I was reduced to
tears many times because I was literally bursting for the toilet. When the lesson
ended I would run as fast as I could to the loo. If I was out with my friends I would
leave them every five minutes to go. On one occasion there was the inevitable
queue for the ladies so I had to pretend I was going to be sick so I could be next
otherwise I would have probably wet myself.
In 2008 I spent four months with Camp America working as a special needs
counsellor. The first few weeks my bladder problem got worse. I thought I had an infection and drank lots of
cranberry juice which made matters worse. On my return I insisted my doctor refer me to a urologist. After
scanning my bladder and having a urodynamics test I was finally told I had a very overactive bladder. I simply
burst into tears with relief. It wasn’t all in my mind after all and now there was a possibility I would get some
help”. You can read more of Emma’s story here.
Daniel’s story:
Daniel shares his story of living with faecal incontinence from
birth and talks about his aspirations for his European walking
challenge which will see him endure a 1600+ mile walk.
“I am 31 years old and was born with imperforate anus. As a
baby, I underwent an emergency ileostomy followed by further surgeries to construct a rectum. However, the
surgery left me incontinent of faeces, a condition I have had my entire life. I have tried several other
surgeries in recent years but with no success and now use anal irrigation and drugs to help control the impact
of my incontinence.
Had it not been for the advertisement on the back of a toilet door at a service station stop which my fiancee
saw, I would not have been encouraged to seek further help as an adult. It was through visiting the
Bladder and Bowel Foundation website and following a link to a forum of others with bowel problems that I
first opened up and asked others for advice and went to the doctors to discuss options I had read about.”
The challenge…Daniel’s trip will see him walk the entire length of the GR 5 from Hoek van Holland to Nice in
France, more than 1600 miles, along with his wife.
He says “It is my intention to use my trip to raise awareness of the issues I and many other people with
bladder and bowel problems face and show that it needn’t be a hidden problem. I also hope to show others
like me what is achievable when you ask for help and have the support of those around you.” We will bring
you more news about Daniel’s trip later in the year.
B&BF News
We are very proud to announce that we have developed, in
partnership with the Quality Care Academy (QCA), accredited
catheterisation courses and a Level 3 qualification in catheterisation
for health care staff.
Our Training
Other continence courses we
deliver in partnership with the
Quality Care Academy (QCA) are
as follows:
Continence Bladder
Continence Bowel
Paediatric Catheterisation
Could you deliver our training?
You will need to be a registered
nurse, (Band 7 and above), have at
least 36 months of previous clinical
experience and have post graduate
training in catheterisation.
to Julie Marsden
our new Helpline Nurse
Ideally you will have delivered
similar training during your
career although this is not an
essential requirement.
The venue and candidates will
be organised by QCA. You will
be provided with the course
content and any equipment
needed to deliver the course.
You will work on a self employed
basis, with flexible hours and
competitive rates of pay.
Interested? Then we want to
hear from you.
Please send your CV to;
Debbie Gordon,
Clinical Manager.
to Carlene Igbedioh our new
Clinical Tutor
New B&BF Fact Sheets
Penile Sheaths
Bladder control after a
prostate operation
Medication for OAB
Pelvic Floor Repair Surgery
Click here for details
Study Day: Chartered
Physiotherapists Promoting
14th June in Kettering.
Please click here for details.
Clinical Tutors Required
We are still looking for more
Clinical Tutors to deliver our catheterisation
training and
other continence courses at venues across
United Kingdom.
Click here for more details.
Our Fundraisers
For some, fundraising can seem a bit of an overwhelming task, for others they see a challenge.
By showcasing our 2014 fundraising champions we hope you will find the inspiration and maybe
the courage to have a go too!
Don’t worry if fundraising is not your thing, you can also show your support by donating on our
Fundraising Champions’ Just Giving pages.
2014 looks set to be one of our best years yet for fundraising, so we would like to say a huge
thank you to all our amazing supporters below and on our website.
Virgin London Marathon April 13th 2014
Matt is running the 2014 Virgin London Marathon and has chosen B&BF as the charity he will raise money for.
Matt says “I hope that I can reach my own goals while at the same time
create some awareness to this problem and raise some money for the
Please support Matt via his Just Giving Page
Matt’s coast 2 coast challenge July 7th 2014
Matt, who was recently diagnosed with Interstitial Cystitis, is aiming to
run 140 miles in 7 days across the coast to coast path from Whitehaven
to Tynemouth. Matt has chosen to raise money for B&BF.
Please support Matt via his Just Giving Page
Charity Ball and Auction May 10th 2014
Alice Bettney is hosting a Charity Ball and Auction on May 10th 2014 to raise money and awareness for B&BF. The ball is being held at The Press Rooms Bistro in Ashford Kent and those attending will enjoy a 3 course meal, live music, an auction and a raffle. This ball is to honour Alice’s mother Sharon who passed away 4 years ago from a bowel obstruction which led to septicaemia. Please support Sharon’s Charity Ball & Auction via her Just Giving Page
Health Care
News Round Up
Consensus review of transanal irrigation in adults
A consensus group of specialists
from a range of nations and
disciplines who have experience in
prescribing and monitoring patients
using TAI worked together
assimilating both the emerging
literature and rapidly accruing
clinical expertise.
The object of the review was to
provide a consensus expert
review of the treatment modality for
transanal irrigation (TAI).
To read the results of this review
please visit our Health Professional
Resource Centre.
NICE gives go ahead
to NeoTract’s
ground breaking
UroLift® prostate
following prostate
cancer surgery
The Author and B&BF trustee,
Wendy Colley, is a nurse with
25 years’ experience in
continence care.
This case study describes her
personal experience of
managing urinary incontinence
after her husband’s radical
prostatectomy for prostate
Click here to read the article.
We have more articles
on our website
within the
Health Professional
Resource Centre
Looking to further your
How about
Catheterisation Training?
During April we are holding
catheterisation training sessions
at the following locations;
- Croydon
- Brighton
Contact us for details.
Please consider becoming a B&BF
Health Professional Supporter.
Find out more here.
National Institute for Health and Care
Excellence (NICE) has issued full
guidance to the NHS in England,
Wales, Scotland and Northern Ireland
on insertion of prostatic urethral lift
implants to treat lower urinary tract
symptoms secondary to benign
prostatic hyperplasia, in January
For further reading of this guidance
please visit the NICE website.
If you have received poor care, or you know that poor care is
being given somewhere, you can report it to the Care Quality
Commission (CQC). The CQC would like as many people as possible
to tell them about the care they or loved ones have
received, or to hear from staff about their
experiences of care where they work - the good as well as the
bad. Click here for more.
Health Care
News Round Up
NICE issues guidance
on drugs in care
People in care homes should
have the same involvement in
decisions about their treatment as
patients living in their own home.
NICE has produced guidance on
managing medicines in care
homes that applies across both
health and social care.
You can read this guidance here.
Review of new and
emerging technologies
for urinary and faecal
The Inaugural National
Continence Care
The expert group on lower urinary
tract symptoms (LUTS), including
urinary incontinence, is delighted to
be hosting the Inaugural National
Continence Care Awards.
The Awards are organised by MHP
Health with funding from Astellas
Pharma Ltd and will take place in the
House of Commons in May 2014.
We have more articles
on our website
within the
Health Professional
Resource Centre
To read more please visit our Health
Professional page.
If you are a health professional and
would like to work with us, either by
writing an article or helping with our
Helpline, please contact us.
01536 533255
The review aimed to identify new
and emerging health technologies,
including drugs, medical devices
and procedures, for the diagnosis,
monitoring and management of
urinary incontinence (UI) and
faecal incontinence (FI) in both
men and women.
B&BF helped construct the in depth
Horizon scanning review on new
and emerging technologies for
urinary and faecal incontinence.
Please click here to read more.
If you have an event you would
like to include in Vista please
let us know. Or if you would like
any B&BF literature for delegate
packages we would be happy to
discuss this with you.
Conference and Exhibition 2014
8-9 May 2014 Hilton
Birmingham Metropole
Exhibition 2014
Programme highlights include:
• Dementia – Mental Health Conditions and the Impact on Continence
• Dementia and the Impact on Continence – A Professional’s Experience
• Dementia and the Impact on Continence – A Carer’s Experience
• Catheter Troubleshooting
• Identifying Continence OptioNs after Stroke (ICONS) – Findings from a
Randomised Controlled Trial
• Measuring Outcomes in Respect of Continence Issues
• Different Way of Looking at and Treating Bladders – The Social Bladder
• The Cystitis and Overactive Bladder (COB) Foundation
• Circumcision a Form of Male Genital Mutilation?
• Female Genital Mutilation – Impact on Continence
• Lower Urinary Tract Symptoms (LUTS) Quality Standards –
• Erectile Dysfunction
Register Now
For more information visit
or call ACA on 01506 811077
Sold out
last year
book early
to avoid
Driving Excellence
in Bladder and
Bowel Care
A Bit Extra
Visiting or going
shopping in a new
town? Or maybe
you’re travelling
abroad, wherever you go this tool will no doubt become
your best friend. Bathroom Diaries .com lists public toilets
in 100 countries and rates them from poor to good. You
can even find out if there is baby changing, disabled
access or if you have to pay a fee.
The RunPee
tagline says it all:
Because movie
theatres don’t have pause buttons. The RunPee app will
give you a list of 1-to-4 moments in each movie when
you can run and pee. It will tell you the best times to
go to the toilet during a movie without missing the best
parts. It also lets you know if there is anything
extra after the end credits.
A new app turns any smartphone into a portable medical diagnostic device.
The Colorimetrix test analyser app allows semi-quantitative measurement
of colorimetric test strips or solutions and could make monitoring conditions
such as diabetes, kidney disease, and urinary tract infections much clearer and easier for both patients and doctors.
01457 872 273
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Please use the discount
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* Offer expires 31 July 2014. 10% discount
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